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When Lee was born in the mid-80s, even doctors had huge misconceptions about autism. His parents had to learn his sensitivities, his allergies, what he responded to behaviorally. Both parents changed their careers so they had the time and space to support him when the school called. They chose to retire in California because it brought him closer to his radio-controlled car racing community. His father, Don, spends a lot of his time helping his son prepare for races. And his mother, Sally, still spends a lot of time advocating for her son, and making sure he gets all the support he needs, connecting him, for example with an auditory therapist who finally found a methodology that helped him understand math.
When you have someone like Lee, that's grown this much because of the support system he's always had, the next question is always: what is going to happen when I die? How do I make sure he's still thriving when he doesn't have his parents around to help?
It's a little odd to "prepare to die", but that's exactly why Sally came to JLA Trust as a consulting client. She wanted to make sure that the system she and her husband had built for Lee didn't collapse someday when he didn't have them. Together with our team, she quantified the needs Lee would have as goals, and built a detailed roadmap. We're proud to say that they're 95% of the way done with that roadmap now -- and JLA Trust has connected the Passehl family with supports they didn't know existed.
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