E-Newsletter

May 2025

Hello TESS Friends,

Today is SLC13A5 Epilepsy International Awareness Day!

This day is deeply personal to me, and every parent, caregiver, and researcher working toward a future where all children with SLC13A5 Epilepsy can lead healthy and independent lives.

Read on to see how you can raise awareness today and every day.

With heartfelt gratitude,



Kim Nye

Founder, TESS Research Foundation

Share your support for TESS today by posting a photo on social media with your I Heart Someone with SLC13A5 Epilepsy sign and tagging @tessresearch. Use the hashtags #SLC13A5Awareness and #TESSResearch.

TESS is on Facebook, X, Instagram, and LinkedIn.

Spreading awareness about SLC13A5 Epilepsy is one of the most helpful things you can do! Share one fact about SLC13A5 Epilepsy with someone you don't know at the grocery store, post office, gym, or anywhere and everywhere you go!

Learn some facts about SLC13A5 Epilepsy on our Understanding SLC13A5 webpage.

Our Founder & Executive Director, Kim Nye, was recently featured in a Charles River video! Watch it now to learn more about TESS Research Foundation.

We have many other videos about TESS and SLC13A5 Epilepsy on our YouTube channel! Watch & Share now.

There's nothing better than looking good AND supporting a good cause! Order a cute crop, comfy sweatshirt, or some basic must-have TESS tees, and a portion of your purchase amount comes back to TESS. Every item you buy contributes to our research efforts!

Buy merch here.

We love sharing the incredible stories of our TESS Superheroes and their journeys! Personal stories create real impact and we would love to post about what your life with SLC13A5 Epilepsy is like.

Interested? Fill out our Google Form.

Help support TESS research, outreach, and community. Make a donation today.

Connect with us

TESS Research Foundation drives cutting-edge research to diagnose, treat, and ultimately cure SLC13A5 Epilepsy, while providing support for affected children and their families.

We will have succeeded when all children with SLC13A5 Epilepsy

lead healthy and independent lives.

TESS Research Foundation is a 501(c)(3) tax-exempt public charity.

Tax ID 47-3108868

Copyright © 2025 TESS Research Foundation, All rights reserved.