December 22, 2023

Dear Kimberly,

With nine days remaining in 2023, we are halfway to our year-end fundraising goal of $225,000 – a big thank you to everyone who has helped us get this far. If you haven’t yet donated, please make a gift to TESS Research Foundation today! 

SLC13A5 Epilepsy is complex, unpredictable, and cruel. We are determined to change the trajectory of this disease so that Tessa, Jacob, Meredith, Colton, Jackson, Rowan, Ellie, and all our Superheroes can live the lives they deserve. Our vision is for all children diagnosed with SLC13A5 Epilepsy to live healthy and independent lives. You can help make this happen. 

Your investment will launch our gene therapy trial to address the underlying cause of SLC13A5 Epilepsy. We are so close to clinical trials and getting these genetic treatments out of the lab and into our kids. As TESS Superhero César’s parents share:

Our science is strong. With your partnership, we are poised to change the lives of children who are suffering now. Please donate today.

Sincerely, 



Kim Lodato Nye

Founder and Executive Director

P.S. If your gift and our email crossed in cyberspace, thank you for your support! 

P.P.S. Please give generously and help unlock our $50,000 dollar-for-dollar match! Your donation will be doubled and will help kids around the world.

OUR MISSION:

TESS Research Foundation drives cutting-edge research to diagnose, treat, and ultimately cure SLC13A5 Epilepsy, and provides support for affected children and their families.

BOARD OF DIRECTORS:

Kimberly Nye, Chair

Michael Black, Vice Chair

Kevin McDonnell, Treasurer

Paula Gani Noah, Secretary

Adam Alberti

Courtney Alberti

Megan Gilbert, MBBS.FRACNZCP

Don Neault

Lee Scheuer

E. Robert Wassman, MD

Rich Windisch, JD

Janet Wojcicki, PhD, MPH

SCIENTIFIC ADVISORY BOARD:

Matthew Bainbridge, PhD

Dawn Blessing, MBA

Dan Lowenstein, MD

Ana Pajor, PhD

Brenda Porter, MD, PhD

Hugh Rienhoff, Jr., MD

Grit Zahn, PhD

Copyright © 2023 TESS Research Foundation, All rights reserved.