Dear TESS Friends:
‘I can help.’ These are words that our team at TESS hears every day.
Whether it is a newly diagnosed family wanting to talk to a parent who has experienced what they are experiencing now — fear, grief, exhaustion. Or the doctor of a patient with SLC13A5 Epilepsy who would like to talk with another treating physician about what medication to try next. Or a researcher who needs an animal model developed in a different lab to move their research forward. Or a donor who generously offers to pay for an affected family to travel to one of our study sites. It is our privilege at TESS to listen to what our SLC13A5 community needs and to find the people who can help. And it is our greatest joy that so many of you respond with ‘Yes, I can -- and want to -- help.’ Thank you.
We are so proud of and grateful for the network of doctors, researchers, families, and donors who step forward to connect, collaborate, and share each and every day. Read on for five highlights from the past month.
Kim Lodato Nye
Founder, TESS Research Foundation