News from the NODCC

Dear DCC Family,


On behalf of the NODCC, we thank you for an incredible 2023! This year, our NODCC community members held four regional gatherings in New York, Missouri, Illinois, and California. These events allowed DCC families to reconnect, meet new local members, and hear from professional speakers. Witnessing these regional gatherings was truly heartening!


We had a strong year in fundraising for the organization. We hosted our first virtual Walk, Run, and Roll event in May and loved seeing your pictures and videos showing how you took part in the event -- we are excited to do it all again next year. Thank you to all who participated in our online fundraisers, created a fundraiser on social media, or hosted local events. In July, we aligned with AusDoCC and Corpal for DCC Awareness Day to spread the word about disorders of the corpus callosum worldwide.


We are so grateful for the support this year and are eager for what 2024 holds. Here are a few reasons we can't wait to ring in the New Year:

1. The NODCC Registry rollout (more information to come)

2. New services to improve the DCC community's quality of life

3. The 2024 NODCC conference in Chicago, Illinois, June 27- 30. We hope to see you all there!

4. Continued community virtual gatherings and webinars. 


It's exciting to think of all the work the NODCC has done over the last 20 years. We can't wait to celebrate and recognize the accomplishments made possible by family and friends of the organization. We wish your family a blessed holiday season and look forward to reconnecting in 2024!


The NODCC Board of Directors

Our Favorite Holiday Memories

Reflections on the Holiday Season from the NODCC Community and Staff

 

Compiled by Miriam Bernard


It is a time of year when the air is thick with holiday nostalgia and memories of yesteryear. In honor of this, we’d like to share some favorite holiday memories from the NODCC community and staff members! We hope that as you read these, your heart is alive with your own memories, or even ideas to create meaningful traditions and moments that you look back on someday. Perhaps it’s a new recipe to incorporate, a game you play with your loved ones, a show you watch, or any of the simple pleasures that make the season a bit more festive. In the extreme busyness of the final days leading up to Christmas and New Year’s Eve, we hope you remember to steal moments of calm, and think back to those happy times that make the holiday season special to you.


“It was 2008 just over a year after learning about my C-ACC diagnosis. The past year had been chaotic within our families out west. We decided we needed a break with just the two of us. So as an impromptu opportunity presented itself, my spouse and I celebrated Christmas and New Year’s in New York City. We watched a couple of off broadway productions and the highlight was the Rockettes Christmas show. New Year’s was celebrated in Times Square. Such a memorable holiday.” – Tami B.


“Generally, my favorite holiday memories are centered around good food, card games, and spending time together. My Meemaw is the BEST cook, so I am always excited when we can sit around her dining room table for a delicious meal and catch up. My family is big on playing card games, and we will spend hours playing SPOONS and 31 -- we are very competitive, so it can get a little crazy at times. My Mom always bakes a birthday cake for Jesus, which I didn't realize wasn't something everyone did, but it has been our tradition for as long as I can remember and one of my favorites.” – Bailey J.


“My dad’s side of the family is Hispanic and I loved growing up celebrating Christmas Eve with them eating tamales, beans, Spanish rice, the works. I remember sitting on my grandma’s staircase with my cousin opening presents. Our big family all cozied up in my grandma’s small living room with her red pepper lights glowing from the entryway of the kitchen. It wasn’t until I was older that I realized not everyone has tamales for Christmas.” – Bridget R.


“When our grandson, Logan, was small I had the opportunity to be with him when he went to see Santa! The twinkle in his eye, along with his sister, Allie, was precious. The excitement of the magic he found in the beautiful Santa. His parents made it possible for him to visit the same Santa and in this same place until his legs were too long to sit in Santa’s lap. Many years of memories were made with Santa and he still loves the magic of Santa!” - Willa Jane M.


“My favorite holiday memories mostly center around my childhood and the magic Christmas held. Getting dressed up and performing holiday songs at church was something I always adored, then some nights after the service we’d drive around and look at Christmas lights. There was a sense of family togetherness that felt so safe and happy. Even thinking back on those days now makes me a bit misty!” – Miriam B.


“Every holiday with my ACC-er was a memorable one; I don’t know that I could really pick one. But thank you for sending me on a trip down memory lane!” – Cindy M.


“A favorite Christmas memory for me is going to the 7:00 Candlelight service at church and then driving around town to look at all the Christmas lights. I also, since having kids of my own, enjoyed celebrating Jesus' birthday by singing Happy Birthday and blowing out the candles on His cake.”  – Mike M.


“I have two favorite Christmas memories. One is my father singing O Holy Night every year-something he does to this day. It’s not Christmas until I hear it. My other favorite Christmas Memory is my stepfather doing a scavenger hunt every Christmas morning-way into our adult years. It was something we always looked forward to. Kept the magic of Christmas alive.” – Sarah M.


“It seems like food is a common theme among Christmas memories. Here's mine:

Christmas Day at my grandparents' home was something to look forward to every year. Extended family would drop in to deliver gifts and exclaim how big all eight of us grandkids had gotten. Grandma always put out a spread of sandwich fixings, her homemade potato salad, and her chicken noodle soup. And there were cookies - chocolate chip, spritz, thumbprint, and rugelach! Everyone would find places to sit around the tree in the living room and we'd take turns opening gifts, oohing and aahing over whatever Santa had brought.”  – Robin D.


Whether your favorite holiday memories are being made now or live in the past, whether they center around tradition or food or togetherness, we hope this holiday brings you a whole heap of joy, and opportunities to forge future favorite memories you’ll look back on with fondness! We wish you a wonderful holiday season and Happy New Year from your family at the NODCC!

With our 2024 conference on the horizon, we'd love to hear about your past NODCC conference experiences, and how the conference has affected you. Click the button below to share how NODCC conferences have made a difference in your and/or your family's lives!

Click Here

Fundraisers & Donations


Show Your Support for the NODCC Through Annual Membership

The NODCC was founded to help those who are caring for someone with a disorder of the corpus callosum (DCC) or an individual living with a DCC by providing information, resources, and facilitating connections between members. Memberships help keep our operations and programs going – but most important, memberships ensure we can serve those living with a DCC in the future.


When you join or renew your dues for membership with the NODCC, you are investing in the future of the organization and ensuring we have the resources to help others for years to come.


Please consider becoming a member of the NODCC to pay it forward!


Click Here to Become a Member


Matching Gifts

​Don’t forget to check for matching funds from your employer. Many companies have matching gift programs that will equal or exceed employees’ charitable donation amounts.


Facebook Fundraisers

Fundraising for charities on Facebook is an easy way to help raise money for the NODCC. Simply click on the “Support Nonprofit” option when creating a new Facebook post and select the NODCC as the recipient. Birthdays, memorials, remembrances, and celebrations are great events to encourage giving from your family and friends.


Looking for other ways to support? The NODCC is searching for sponsors and partners who want to support our organization. We encourage all readers of the newsletter to send company names or potential company contact information to info@nodcc.org.


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Contact Us

(714) 747-0063 I info@nodcc.org I nodcc.org

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