Hope For HH has joined forces with the
400 million people globally
who are living with a rare disease. We stand together with these individuals and health care advocates around the world for
Rare Disease Day®
on February 29. Rare Disease Day is an annual awareness day dedicated to elevating public understanding of rare diseases and calling attention to the special challenges people face.
Everyone can have an impact whether pledging
your time, skills, voice, or dollars to support Hope For HH.
According to the National Institutes of Health (NIH), a disease is rare if it affects fewer than 200,000 people in the United States. There are more than 7,000 rare diseases currently identified and approximately 90% of them are still without FDA-approved medical treatments.