Today, Friday, May 13, is our second annual SLC13A5 Epilepsy International Awareness Day. This disorder knows no geographic boundaries and TESS Research Foundation is the only organization solely dedicated to SLC13A5 Epilepsy, and supports families around the world. YOU can support our mission on awareness day (and every day)!
There are many things you can do to help to spread awareness of this severe genetic epilepsy, starting with educating one new person about the struggles and symptoms of SLC13A5 Epilepsy: seizures starting at birth, difficulties talking, walking, eating, and sleeping, the need for 24-hour care, and dental issues.
You can wear purple and post a photo of yourself holding your I 💜 Someone with SLC13A5 Epilepsy sign. Or plan and host a facebook fundraiser or make a donation to fund SLC13A5 research.
Together, let's raise awareness of SLC13A5 Epilepsy and continue to move toward treatments and cures for this devastating neurological disorder!