PANDAS Network Newsletter - June 2019
US database show 1000+ adults with OCD high incidence of strep as a child
 Sweden 45 PANS patients have Autoimmune Disease & high rate of throat infection
I mmune-Related Comorbidities in Childhood-Onset Obsessive Compulsive Disorder: Lifetime Prevalence in the Obsessive Compulsive Disorder Collaborative Genetics Association Study
Clara Westwell-Roper, Kyle A. Williams, Jack Samuels, O. Joseph Bienvenu, Bernadette Cullen, Fernando S. Goes, Marco A. Grados, Daniel Geller, Benjamin D. Greenberg, James A. Knowles, Janice Krasnow, Nicole C. McLaughlin, Paul Nestadt, Yin-Yao Shugart, Gerald Nestadt, and S. Evelyn Stewart

Establishing a Pediatric Acute-Onset Neuropsychiatric Syndrome Clinic: Baseline Clinical Features of the Pediatric Acute-Onset Neuropsychiatric Syndrome Cohort at Karolinska Institutet
Caroline Gromark, Robert A. Harris, Ronny Wickström, AnnaCarin Horne, Maria Silverberg-Mörse, Eva Serlachius, and David Mataix-Cols

SHAR WIN this Book! The first 24 people to share your Encouraging Words about your PANDAS/PANS Journey
"My life path has been altered by an illness that is still being debated. But I have my son back. I have my family back. I have my own life, richer because of all of it. I believe in the power that each of us has to live this life fully and abundantly when we view our experiences with gratitude. That shift changes everything. I am stronger. I am wiser, I am courageous. I am."  ~ Heather Korbmacher, " What Happened to My Child"

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Join Heather and PANDAS Network in leaning into our wins, our celebrations, our gratitude. This illness is not for the weak, each of us has had to dig deep at times to overcome the fear, the doubt, and the anger. But we are resilient and we are warriors.

PANDAS Network is gifting one of Heather's books to the first twenty-four courageous parents and care givers who respond.  

Email us at and tell us.........

In a few sentences, share what you've learned through this process, what you might have missed in your life, how you've turned this into something beautiful for yourself and/or your family. We will publish your words, 2 entries a month, throughout the year in this newsletter or on FBook to continue to spread your light and love. We will only use your first name if you prefer to be anonymous.

LEAN INTO WHAT IS POSSIBLE - let's help the next generation of families never feel so alone.....Big Hugs (PNetwork)

Dedicated to improving the diagnosis and treatment of children with PANDAS and PANS