Hi Cure,

As of today, we’re one month away from the 2023 Global Science Summit and Gala!! We can’t wait to see the AS community in Miami.

If you have updates you would like to be included in next week’s newsletter, please email us at info@cureangelman.org.

Last November, we announced our new FAST-TRAC Grant recipient, Dr. John Marshall at Brown University, who was aiming to advance a novel drug candidate to help restore the function of BDNF (Brain-Derived Neurotrophic Factor) activity in the Angelman syndrome (AS) mouse model, which is known to be deficient in Angelman syndrome. We are excited to share an update!

Check it out here:

To close out the summer, Patrick and Laura Sargent, parents of Maddie, who lives with AS, held their 2nd annual Maddie’s Mission Block Party. This family-focused event brought together the local community in Kansas along with supporters around the Midwest and together, raised $211,088 with partial proceeds going to FAST to fund potential therapeutics!

Thank you to the Sargent family and supporters for your dedication to the holistic support of the Angelman syndrome community. 

Read more about this successful event:

FAST is committed to keeping you up to date with the latest in research for Angelman syndrome and news on upcoming and ongoing clinical trials. There have been several updates this year so be sure to check out our website to find information in an organized way so you understand the options for your loved ones.

Learn more:

Our FAST Athlete, Jon Au, father of Noel, who lives with AS, will run the Melbourne Marathon this weekend! Let’s cheer him on as he endures 26.2 miles while raising awareness and funds for Angelman syndrome! Follow him on IG: @jon.angelman 

“There are many reasons why I run - running has always been a way for me to get away from life a little bit, to keep healthy, and to see how far I can push myself. But now I run to raise awareness and make the goal of curing Angelman syndrome known on the global stage.” — Jon

Because of his passion for health and the AS community, Jon helped to launch FAST Athletes Down Under with FAST Australia! It’s a new group with the same goal — continuing the impactful FAST Athletes program at the local level.

Learn more about FAST Athletes Down Under:

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