Vol. 1, No. 3 May 2025

Ramsay Hunt Syndrome Foundation Newsletter

“It’s like a car accident.”


On May 1, 2025, members of UNC-Chapel Hill’s Health and Humanities: An Interdisciplinary Venue for Exploration (HHIVE) Lab had the opportunity to speak with Howard Stall about his experience living with Ramsay Hunt Syndrome. In this month’s newsletter, we’ll be highlighting Howard’s story, with a special focus on his diagnosis, treatment, and life with RHS.

Three years ago, Howard Stall’s life changed forever when he was diagnosed with Ramsay Hunt Syndrome (RHS). The exact date of Howard’s diagnosis is difficult to pinpoint, as it involved trial and error with a visit to the ER, physician referrals, discussions with family and friends, and internet research. Like so many with RHS, Howard’s diagnosis trajectory was highly uncertain.


Early on, physicians misinterpreted Howard’s symptoms, the primary one being facial paralysis, as signs of Bell’s palsy. Howard’s symptoms immediately prompted him to go to an emergency department in Savannah, GA, where he was at the time of his symptoms’ onset. Although he was misdiagnosed at that time, he was prescribed a 10-day course of oral steroids, as well as Valtrex. After that initial ER visit, Howard saw his primary care physician and a neurologist in Charlotte, NC. His initial hope that the facial paralysis might be temporary faded upon receiving a formal RHS diagnosis, a feeling he likened to a car accident or suddenly hitting a brick wall.


Want to learn more about Howard’s RHS experience? Click HERE to read the full story.

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Why this foundation?

The need for a foundation dedicated to raising awareness and providing support for RHS patients and their families is therefore critical. The Ramsay Hunt Syndrome Foundation is committed to enhancing the care of all individuals affected by RHS through comprehensive support, education, and advocacy. Our mission is to cultivate a community of hope and empowerment, ensuring that every patient and their loved ones receive the care, information, and compassion they need on their journey to recovery.

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Ramsay Hunt Syndrome Foundation | PO Box 2038 | Chapel Hill, NC 27515 US