Hope For Hypothalamic Hamartomas - April 2020
A Time For Reflection - 10 Years Of Impact
Dear Hope for HH Supporter,

We are told we are living in unprecedented times. However, perhaps times like these - living with uncertainty, lack of treatments, and very little knowledge of the condition we face, are not so unprecedented for our small community. Each of us has had to live with a new normal. We have become accustomed to the fear and uncertainty, while fighting for the most vulnerable in our family and our community. We already know what the world at large is just discovering – that people have almost infinite reserves of love, strength, and hope – because we call on those reserves each and every day.      
Whatever the state of the supermarket shelves, compassion is not in short supply. Let us all focus on the hope and light that we see around us every day.

Our recent ten-year anniversary provided an opportunity to reflect on all that has been achieved, and to consider how we as an organization can move forward in our fight against the unpredictable and destructive syndrome that is HH. We asked you to complete the HH Constituent survey in November 2019 and asked you to help us identify the priorities for the future. We are grateful for the feedback you've provided and have taken it to heart as we developed our strategy for 2020 and beyond.

We are excited to share with you the impact report (click to view) which reflects the many successes of the past and outlines the formidable goals we have set for the future!

Thank you for supporting us in our efforts to defeat this devastating condition. 

With love and hope,
 
Erica Webster, Lisa Soeby, Kathy Jensen, Kimberly Ranson and Emma Nott
Our Team Is Growing and We Need Volunteers
If you are interested in becoming a volunteer for Hope for HH, to get the process started we invite you to complete the following  Volunteer Inquiry Survey to gather a bit more info about you and your interests.
Hope For Hypothalamic Hamartomas | www.hopeforhh.org | info@hopeforhh.org