AAIDA is excited to host Simu Thomas, Ph.D, of Alexion Pharmaceuticals and Shelby Harrington, RN, of Avalere, for our 2nd educational webinar during Rare Disease Week, 2023.
Simu and Shelby will discuss the following:
- Advancements in health technology assessments (HTA’s) that evaluate and bridge patient research, health insurance companies and government policies to foster rare disease drug development and availability
- Review the impact and missed opportunities to expand awareness of rare diseases
- Discuss new approaches with HTA’s that help address indirect cost for rare disease patients such as productivity and loss of wages and family and caregiver impacts
- Learn ways patients can advocate for themselves with state and local government agencies and officials
Following their presentation Shelby and Simu will conduct a live 15 minute Q& A session with attendees. This webinar will be recorded live and made available on the AAIDA website and YouTube channels for our community.