ACPMP, Pumpkins, and Pies, Oh My!
'Tis the season for thanks and giving! The Appendix Cancer PMP Research Foundation hopes you had a fun, safe Halloween and wants to wish you an early happy Thanksgiving! While we are still stuck indoors, you can catch up with ACPMP from the comfort of your couch!

We want you to know that we remain committed to working daily on furthering research, education and awareness for appendix cancer and pseudomyxoma peritonei. YOU are the reason we keep fighting!

You can contact us anytime if you have questions or comments, we love hearing from you.
Join ACPMP as we unite this holiday season by helping create change for Appendix Cancer/PMP patients and their families.
Ways You Can Get Involved Now:
Past Events
Virtual Appendix Cancer Survivorship Symposium
Thank you to all who tuned in virtually on Friday, October 2nd for our Appendix Cancer Survivorship Symposium, hosted by ACPMP, Wake Forest, Huntsman Cancer Institute and University of Chicago Medicine.

It was a great opportunity to learn from leading experts, hear updates on research and treatments, and have your questions answered.

The event was recorded and all presentations are available to view below.
Rare Courage Challenge
Held September 6th - October 17th, this six-week virtual competition was designed to help you get fit this fall (at your own pace)! Participants competed for prizes and raised funds for appendix cancer research and education!

Thank you to everyone who participated and supported this exciting fundraiser we hosted through Race Roster! We were able to raise $4,800 for ACPMP!
Rare Cancer Day aims to:
  • Highlight the challenges rare cancer patients face
  • Promote awareness and early diagnosis
  • Spread the word about emerging treatment tools currently available, such as genomic testing, the Rare Cancer Day theme for 2020
Rare Cancer Day 2020
September 30th was Rare Cancer Day!

Rare Cancer Day is devoted to shining light on rare cancers and the issues people living with them face.

You also helped ACPMP raise $2,500 through our Facebook fundraiser! Thank you!

Thanks to Jeremy for sharing his story of how genomic testing informed his treatment for AC/PMP. Watch here!
Upcoming ACPMP Event
Give Time. Give Voice.
Give Dollars.
SAVE THE DATE: Giving Tuesday | December 1, 2020
Giving Tuesday is a global generosity movement unleashing the power of people and organizations.

Last year you helped us raise over $35,000! Can we do it again this year? We previously celebrated by sharing videos of our staff and Board of Directors and how we have all been impacted by appendix cancer and PMP.

This year, we will showcase important research that YOU have helped ACPMP fund! Research is one of our main missions and is so important to us; breakthrough research allows us to further move towards a cure. Stay tuned for these updates by email and on our social media!
Patient & Caregiver News
NEW! Patient Advisory Council!
We are very excited to announce the launch of ACPMP's Patient Advisory Council! This initiative allows us to broaden our community of volunteers to contribute to our work in different ways, such as advocacy and the opportunity to host virtual or in person meetings with others in your community!

Patients and caregivers can get involved to bring ideas and enthusiasm to help make a difference.

Have you wanted to get more involved with ACPMP's mission? We'd love to have you fill out an application!

The deadline to apply is Friday, November 13th.
UPDATED: Clinical Trials Page
We revised and expanded our list of clinical trials for our patients.

This list now includes “tumor agnostic” and “unspecified solid tumor” trials.

ACPMP is committed to increasing participation in clinical trials among those living with appendix cancer and pseudomyoma peritonei.

Contact Deborah Shelton at to learn more or for more information on any trials.
Exciting Update
STAY TUNED: Appendix Cancer Pseudomyxoma Peritonei Patient Registry
ACPMP announced in 2019 the creation of the ACPMP Appendix Cancer Pseudomyxoma Peritonei Patient Registry, a collaborative effort between ACPMP and NORD to study appendix cancer & PMP.

The ACPMP Patient Registry is under development and expected to launch spring of 2021.

Check out Deborah Shelton's presentation about the new Patient Registry from our ACPMP Symposium here!
  • A platform for patients around the world
  • International resource to be used by scientists in future research
  • Electronic surveys to collect information about patient experience & disease progression
  • Patients, caregivers, or guardians can enter information from anywhere
  • Participation will be free and voluntary, participants may withdraw at any time