July eNews
2019 Walk to Defeat ALS - Saturday, October 5th
Now recruiting! If you are passionate about creating a world without ALS, we want to talk to you! We're looking for community members to join our movement to put an end to ALS by becoming a Team Captain at the 2019 Walk to Defeat ALS. More than an event, the Walk to Defeat ALS brings hope to families living with ALS by supporting them on every front—care services, research, and advocacy—it’s the #1 way to unite and fundraise for those living with ALS.
 
It’s fun—the day is filled with family friendly activities, live music, comradery, and courage.
 
It’s easy. You’ll be assigned a personal coach to help you every step of the way. 
 
More importantly, you’ll be supporting our quest for a cure, while helping families living with ALS in your community.  
 
Click below to sign up. For more information, or to schedule an appointment to meet your personal coach, please contact Stefanie Daniels at sdaniels@alssac.org or 916-979-9265 ex. 2
Our 2018 Annual Report is Available Now
The ALS Association Greater Sacramento Chapter is committed to providing a transparent accounting of how we serve the ALS community with compassion, integrity, and urgency. We encourage you to read the newly released 2018 Annual Report to see how your support helped us to provide critical care for those living with ALS in the 24 Northern California counties we serve.
Integrated Respiratory Care for ALS Patients and Caregivers
Monday, July 22, 2019
11:00am PST

Proactive approaches to the respiratory care of ALS patients can prolong and improve quality of life. Advances in technology have integrated multiple devices into a single unit, easing mobility and caregiving challenges. Guest speaker, Jason Sesmundo, RRT shares an overview of common respiratory issues and the VOCSN multi-function ventilator.
Team Challenge ALS

Grab a friend and join Team Challenge ALS in 2019! Combine your passion and commitment to finding a cure for ALS while achieving physical challenges through athletic events, such as marathons, triathlons, long-distance rides, swimming, and other endurance activities. You will get fit, make new friends, and change lives!
Contact Fundraising & Special Events Manager Stefanie Daniels at sdaniels@alssac.org or 916-979-9265 for more info
Challenge Me to be the Face of ALS
Eighty years ago on July 4, Lou Gehrig gave one of the most famous speeches in American history. His speech marked his retirement from baseball because of his recent diagnosis of ALS. Gehrig was honored by many on the field that day...
CNN Shines Light on "Iron Horse Tour" of MLB Ballparks
CNN featured a profile on Larry Falivena, a person living with ALS since 2017. Larry is visiting all 30 Major League Baseball parks in one season to raise awareness of ALS as part of The ALS Association’s Challenge Me campaign. He began his “Iron Horse tour” on May 30.
The Promise of CuATSM for ALS and the Challenges of Moving from Mice to Humans
In 2016, my colleagues and I published some remarkable results of a new drug called CuATSM in a mouse model of ALS. Moving CuATSM from mice to humans is a long and difficult road that involves the cooperation and scrutiny of many people.
House Approves Increased ALS Research Funding

The House Appropriations Defense Subcommittee approved $20 million in fiscal year 2020 for the DOD ALS Research Program (ALSRP) doubling the funding amount. This is a huge achievement in a program area that rarely sees increases of such magnitude, and it is a direct result of the advocacy of The ALS Association and advocates like you.

Members of Congress Sign "Dear Colleague" Letter to Protect Access to Noninvasive Ventilators

As a result of the efforts of ALS advocates like you, more than 38 Senators and 178 House members have signed a “Dear Colleague” letter urging the Centers for Medicare and Medicaid Services (CMS) to reverse its decision to include non-invasive ventilators in competitive bidding (CB). This issue was a top priority for those attending the 2019 ALS Advocacy Conference.
Meet Andrei Ursu: A 2018 Milton Safenowitz Postdoctoral Fellow
We recently talked with Dr. Andrei Ursu from The Scripps Research Institute (Florida Campus) to learn about his unique research project focused on targeting the most common form of genetically inherited ALS, known as c9ALS, with rationally designed lead medicines.