March 2020 eNews
UC Davis Receives $125,000 for
Multidisciplinary ALS Clinical Care!
On March 3 rd, 2020, The ALS Association Greater Sacramento Chapter was honored to present the UC Davis ALS Association Certified Center of Excellence with $125,000 to support multidisciplinary ALS clinical care in Northern California. The team at UC Davis are experts in the unique health challenges of ALS and how to vastly improve quality of life through a wraparound approach to health care. ALS multidisciplinary clinics are critical for extending length of life and quality of life for those living with ALS and ensure that health care providers are collaborating and communicating every step of the way.

The Chapter is proud to be a part of this collaborative approach by working closely with UC Davis’ medical providers to customize long-range care plans for those we serve. Thank you to Dr. Nanette Joyce and the entire team at UC Davis for your dedication to the ALS community! To learn more about ALS Association Certified Centers of Excellence in our area, visit www.alssac.org
Coming soon… Big DOG 2020!

It’s that time again… time to pull out all the stops and give BIG to organizations (like ours) doing incredible work in our community. On Thursday, May 7 th, the Sacramento Region Community Foundation will host their annual 24-hour Big Day of Giving, which showcases the philanthropic spirit of Sacramento and raises hundreds of thousands of dollars to do good in our city.

Your generosity on last year’s Big Day of Giving broke down barriers for the Chapter and allowed us to pursue exciting new technologies that improve quality of life for people living with ALS. This year, we’re back at it and ready for our biggest Big DOG ever!

We’re excited to share what we’re working on this year, and how your contributions on Sacramento’s most charitable day will help us to give back what ALS takes away. So mark your calendars, set your alarms, and get ready to change the face of our ALS community on May 7 th!
The Walk to Defeat ALS turns 20 This Year!
2020 marks a very special year for The ALS Association as we commemorate the 20 th anniversary of the Walk to Defeat ALS®. Over the past two decades, more than 100,000 teams have united across the nation to make a stand in the fight against ALS. We want to say THANK YOU to everyone (past, present, and future) from The Greater Sacramento Chapter who has walked in honor, in memory, or in support of someone diagnosed with ALS. Thank you for being a foot soldier in the fight against ALS and for your critical contribution to creating a world without ALS.

To us, the Walk signifies help, hope, and family. This year we will honor the 20 th anniversary by reuniting our Walk team families, past and present, to join forces at Sutter Health Park on Saturday, October 3 rd . Together, we will ensure that everyone impacted by ALS feels the strength of our community behind them. We believe that, within the next 20 years, we will have realized our 20/20 vision of a world without ALS. With your help, we know it’s possible.

Please register, join a team, or donate at web.alsa.org/SacWalk2020 and help us celebrate 20 years of uniting the ALS community.

P.S. We’re looking for photos and memories from the early 2000’s to reminisce and recognize our longtime teams and walkers! Please send any memories you’d like to share to Stefanie at sdaniels@alssac.org .
Please RSVP by June 15 th
Email nwakefield@alssac.org or call 916-979-9265
Bergelectric's Tossing Tournament in Support of ALS
On Friday, Sept. 13 th, 2019 the Bergelectric Northern California Regional Office held their 4th Annual Cornhole Classic at their office located in Rancho Cordova. Their tournaments are held for fun AND philanthropy, and each year they contribute proceeds to local charities in Sacramento. The NorCal office started this fundraiser in 2016 with 16 teams, growing to 28 teams in 2017, 43 teams in 2018 and 44 teams in 2019. This year, the Greater Sacramento ALS Association is proud to be a chosen charity and grateful for the fun-loving, generous crew at Bergelectric! 

The Classic was attended by general/sub-contractors and vendors from the local area, along with Berg employees, totaling over 100 attendees! Food was provided by local food truck Tacos Trujillo and sponsored by All-Phase Electric Supply. Everyone had a great time and are looking forward to next year’s Cornhole Classic with a goal of making each year bigger and better to support the work of local charities.

Thank you Bergelectric for all you do to make your community a better place to work and live. We appreciate your support of our vision to create a world without ALS! 
Preemptive Actions to Help
Prevent the Spread of Respiratory Diseases
For the most recent information about the corona virus (COVID-19), The ALS Association recommends that you reference the websites for the Centers for Disease Control (CDC) and the World Health Organization (WHO). For specific information about symptoms you may be experiencing or questions about personal exposure as someone living with ALS or as a caregiver, please contact your physician directly. 
ALS Focus Launches and Seeks Participants for Important Ongoing Survey Program 
The ALS Association has launched the ALS Focus survey program.
The goal is to recruit people living with ALS and their caregivers to capture their experiences and preferences. Data will be collected in a scientifically rigorous way through quarterly surveys. ALS Focus will provide a deep and evolving understanding of disease burden and experiences of people with ALS and their caregivers.  
Susan Hoerber’s Journey of Hope
Two days before her birthday in January 2018, Susan Hoerber was diagnosed with ALS. “I was symptomatic for about four years. I knew there was something terribly wrong,” she said. Susan first noticed her symptoms when she struggled to hold a fishing pole. “I was an avid fisherman and outdoors person,” she said. “That’s the first time I got kind of scared and I went to the neurologist.”


How Joel Shamaskin Continues to Inspire and Care for Others While Fighting ALS
Joel Shamaskin spent 30 years caring for others as a primary care physician before his ALS diagnosis rushed him into retirement. Over the course of his career he had cared for some patients who had the disease, so by the time he received confirmation of his diagnosis, he and his wife Ann, who was a primary care physician as well, felt like they already knew. But ALS hasn’t taken away his desire to care for others.
What to Know About Feeding Tubes and Decision Making When Living with ALS

Learning that you should consider a feeding tube can be overwhelming. It is a lot to take in, particularly in combination with the many medical issues that come with an ALS diagnosis.
In the Past Year, The ALS Association Has Committed $21.5 million to 70 Promising Research Initiatives

The tallies are in for The ALS Association’s research program for the 2020 fiscal year, showing a total commitment of $21.5 million dollars in 70 promising research initiatives around the world.
A Deeper Look into ALS Association Efforts to Speed Approval of Gene Therapies 

We are getting enthusiastic feedback and questions about our partnership with Project ALS to fund a clinical research project for jacifusen, an experimental therapy being developed at Columbia University’s Eleanor and Lou Gehrig ALS Center for FUS-associated ALS. We thought it would be helpful to describe the strategy underlying the project.
The ALS Association and Project ALS to Fund Columbia University Drug Trial for Patients with Rare Genetic Forms of ALS

The ALS Association and Project ALS announced a joint two-year, $900,000 commitment to pilot a clinical research program for an investigational gene therapy for mutant FUS-associated ALS, at Columbia University’s Eleanor and Lou Gehrig ALS Center. This is the first step in developing a comprehensive strategy to treat multiple rare ALS genes.
Thank you to our national sponsors!
Thank you to our local sponsor!