December eNews
Give the Gift of C.A.R.E. This Holiday Season
As we approach the end of 2019, we reflect on the past and plan for the future. It’s been an amazing year at The ALS Association Greater Sacramento Chapter as we opened the new Chapter Resource Center and continued to improve and expand services for those living with ALS.

Please consider supporting our programs in the coming year by making a tax-deductible year-end gift before midnight on December 31 st . Your generosity helps to provide:

·         C are service programs to improve quality of life
·         A dvocacy initiatives at the state and federal level
·         R esearch programs to find treatments and a cure
·         E ducation and outreach efforts to raise awareness

By supporting C.A.R.E. this holiday season, you are giving help and hope to hundreds of people impacted by ALS in the 24 Northern California counties we serve. You can make your donation at or mail your gift to:

The ALS Association Greater Sacramento Chapter
5701 Sunrise Blvd
Citrus Heights, CA 95610

From all of us at The ALS Association Greater Sacramento Chapter, we wish you Happy Holidays!

Julia, Nancy, Sara, Stefanie, Norriell, & Amy
Recapping the Unforgettable
2019 Black, Red, & White Gala!
The ALS Association Greater Sacramento Chapter held the Studio 54-themed Black, Red, & White Gala on November 9 th , 2019 at the Tsakopoulos Library Galleria. The 1970’s attire was abundant, and many guests arrived dressed to impress with big hair and go-go boots, while grooving to the sounds of local favorites, The Cheeseballs! It was a memorable evening complete with food, drink, and merriment, all while honoring ALS heroes and raising critical funds for the Chapter’s care service programs.

We are grateful for all who attended, supported, and volunteered. You helped to make the evening truly special for our community. Click below to view pictures from the evening.
Power Wheel Chairs: Critical Components and Accessories to Enhance and Prolong Function

Monday, December 16, 2019
11:00am PST

Complex power wheelchairs are custom designed for maximum benefit of the user. Wade Lucas, PT, DPT, ATP/SMS, Clinical Education Manager, Western US with Quantum Rehab shares the benefits of various PWC features.
ALS Clinical Trial Pipeline Series - Winter 2019

Thursday, December 12, 2019
2:00 p.m. EDT
Dr. Jeremy Shefner will review the ALS clinical trial pipeline and answer questions about the current state of clinical research.

Groundbreaking ALS Voice of the Patient Report Submitted to FDA
The ALS Association submitted a report to the FDA documenting the real impact ALS has on people living with the disease and their caregivers in order to inform the development of treatments. The information in the report draws from a survey of people living with ALS.
New ALS Association Partnership with ALS Investment Fund Targets $100 Million in New Funding for ALS Therapeutic Development
The ALS Association is partnering with, and will be directly investing in, the ALS Investment Fund II to raise $100 million to accelerate investment in ALS research and development. This second venture fund with offices in Boston and Amsterdam, succeeds a fund that started in The Netherlands and raised $25 million in two-and-a-half years to invest in companies with ALS initiatives.
Bride-to-be Caregiver Reframes Future with a Fiancé Living with ALS

Lynn Hogan became a caregiver early in her relationship her fiancé, Steve Ziegler.
“On our first date we went out and he was sitting next to me and he said, ‘You might notice – don’t get weirded out or anything – but you might notice some twitching, weird stuff going on with my arms. We don’t know what it is yet. But one of the things it could be is ALS,’” she recalled.
The Iron Woman Behind the Iron Horse

The Greater New York Chapter of The ALS Association has commemorated a pivotal caregiver from ALS history with a luncheon named in honor of Eleanor Gehrig, the wife of famed baseball hero Lou Gehrig.
Eleanor Twitchell and Lou Gehrig married in 1933, and Eleanor soon became the “First Lady of the Yankees,” traveling the country with the New York baseball team.