September eNews
Country Fest to Beat ALS
Do you love wine and country music? Join us for County Fest to Beat ALS at Campos Family Vineyards on Saturday, September 28 th ! The evening will include live performances by Coffey Anderson and Jeff Rickets and the Dirt Road Band, live and silent auctions, and the release of the newest label in the Campos Give Back Wine Series: Quinney’s Blend. This event honors the memory of Campos family friend Patrick “Quinny” Ornellas, who lost his battle with ALS 10 years ago, and proceeds benefit The ALS Association Greater Sacramento Chapter.

Purchase your VIP or General Admission tickets by clicking here .
2019 Black, Red & White Gala
Join us on November 9th to honor ALS heroes while raising funds to support research, public policy, and services that directly improve the lives of families living with ALS in our community. The Studio 54 themed Black, Red & White Gala offers guests a festive evening filled with a gourmet dinner, fondue bar, 70's themed cocktails, silent and live auctions, DJ, dancing and special live music guests The Cheeseballs. Please click here to get more information on tickets and corporate sponsorship opportunities.
2019 Walk to Defeat ALS - Saturday, October 5th
If you are passionate about creating a world without ALS, we want to talk to you! We're looking for community members to join our movement to put an end to ALS by becoming a Team Captain at the 2019 Walk to Defeat ALS. More than an event, the Walk to Defeat ALS brings hope to families living with ALS by supporting them on every front—care services, research, and advocacy—it’s the #1 way to unite and fundraise for those living with ALS.
It’s fun—the day is filled with family friendly activities, live music, comradery, and courage.
It’s easy. You’ll be assigned a personal coach to help you every step of the way. 
More importantly, you’ll be supporting our quest for a cure, while helping families living with ALS in your community.  
Click below to sign up. For more information, or to schedule an appointment to meet your personal coach, please contact Stefanie Daniels at or 916-979-9265 ex. 2
Lunch & Learn:
The Art & Science of Caregiving
Join us on Saturday, October 26, 2019 for the first of a series of Lunch & Learns focused on improving the quality of life for patients and caregivers navigating ALS. We will have a complementary lunch and each guest will receive a copy of Annalise's book, The Art & Science of Caregiving. Click below to view all of the details.
IES & IUS Continuing Platinum Walk Sponsorship
We are pleased to announce that Independent Electric Supply and Independent Utility Supply are joining us for another year as a Platinum Sponsor of the 2019 Greater Sacramento Walk to Defeat ALS! These companies provide exceptional service and innovative solutions in electrical distribution across Northern California and Arizona, and uphold the value of giving back to the community they serve to the utmost degree. Thank you so much for your commitment to our mission and for being a true Champion for a Cure!
CYCLEBAR Fundraiser
Join us on September 7 th at CYCLEBAR in Roseville to raise funds and awareness to end ALS. Your support will help the ALS Association provide vital care services within our community, while we seek a cure for this devastating disease. Funds raised through this event will benefit the 2019 Walk Team the Pink Martinis in honor of Shelly Hoover. 

For more information on CYCLEBAR click here

To make a gift to the Pink Martini's click here
Palliative Care in ALS Clinic

Thursday, September 12, 2019
1:00 p.m. PST

Given the complexity of issues accompanying an ALS diagnosis, professional organizations increasingly recommend that ALS patients and their families receive specialist palliative care services concurrent with clinic-based neurological multidisciplinary care. However...
ALS Families: Supporting Children and Youth in School

Monday, September 30, 2019
11:00 a.m. PST
Melinda Kavanaugh, PhD, MSW, LCSW shares insight and information on how ALS families and the community can support our children and youth in school.

ALS Advocates Take Action During Congressional Recess
With Congress home for the August recess, The ALS Association is redoubling its efforts to build upon momentum toward achieving a long sought policy goal – the elimination of a five month waiting period for Social Security Disability Insurance. 
AB Science Publishes the Positive Phase 2/3 Clinical Trial of Masitinib in ALS

AB Science has completed a Phase 2/3 human clinical trial of masitinib in ALS with promising results. The company published the results of its trial, conducted in Spain, in the journal Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
Principles for Urgent, Patient-Centered ALS Clinical Trials Latest in Ongoing Effort to Improve Trial Design

The ALS Association is deeply committed to accelerating the development of novel ALS therapies and ensuring they are accessible to those who need them. The Association is announcing today its latest strategic action with the release of..
The ALS Association, ALS Finding A Cure, and MDA Co-Fund Clinical Trial Grant to Study Restoring Immune System Function to Treat ALS
The ALS Association, ALS Finding a Cure (ALSFAC), and MDA announced they have jointly awarded a clinical trial grant totaling more than $2.5 million over two-and-a-half years to leading investigators at the Houston Methodist Neurological Institute and Massachusetts General Hospital.
Frequently Asked Questions (FAQ) about Our Research Program, Experimental Therapies, and More

To help provide more information about our research program, our spending decisions, our approach to certain experimental therapies, and other matters, we have put together the below Frequently Asked Questions. 
The ALS Association Announces Two New Research Funding Opportunities

The ALS Association is inviting researchers to submit proposals for its Managing ALS Research Program and The 2019 Lawrence and Isabel Barnett Drug Development Program. Applicants are encouraged to apply no later than October 7, 2019 .