The AWARD Network has a busy summer planned, with a half-day in-person conference in conjunction with the AcademyHealth Annual Research Meeting and our inaugural Summer Training Institute in July. Stay tuned for announcements about the second round of Pilot Awards and the first awardees of our Research Fellowship program.
Please complete our brief survey to provide feedback on some new program ideas. We have a lot of ideas and want to prioritize what will be most meaningful to you! Please send content and ideas for future Newsletters to AWARDNetwork@ucsf.edu. And send us links to your new publications, announcements about your accomplishments, and information about any presentations you’ve made so we can share them with the Network. Don’t be shy – this is a place to celebrate this important work!
Read on for more news to advance your research on the workforce that serves people living with dementia!
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AWARD Network Annual Meeting on
July 2 at the AcademyHealth Annual Research Meeting
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The AWARD Network Annual Meeting will be on Tuesday, July 2, starting after the Annual Research Meeting closing plenary and ending by 5pm, with an optional no-host dinner. Lunch will be served and there will be ample time for networking in addition to learning about emerging dementia care workforce topics. We are offering the opportunity to do a brief podium talk of your research – you can indicate this on the registration form. You can register here! There is no cost to attend this meeting.
We will have another in-person meeting in conjunction with the Gerontological Society of America conference in Seattle in November 2024 – stay tuned for details!
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AWARD Network Monthly Webinars |
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June 5, 2024, 9am PST (12pm EST): Making and unmaking dementia: a history and a future - James Fletcher, PhD. Register here!
July 10, 2024, 9am PST (12pm EST): Policy vis-a-vis programs: insider perspectives on improving care for older adults – Robyn Stone, DrPH and Jennie Chin Hansen, RN, MS, FAAN
August 7, 2024, 9am PST (12pm EST): Video-delivered dementia home safety and caregiver support– Maureen O’Connor, PsyD, ABPP-CN and Megan Gately, PhD, OTR/L
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The AWARD Network Monthly Webinar Series is scheduled for the first Wednesday of the month, 9am PT / 12pm ET. Note that January’s webinar will be held on January 10 due to the New Year’s holiday during the first week of the month. Watch our Webinar webpage for the schedule and to view recordings of past webinars!
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AWARD Network Data Compendium |
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The AWARD Network is developing a research-ready harmonized dataset of policies and programs that affect the demand, supply, working conditions, and skills of direct care workers. The data compendium will be accompanied by detailed documentation that includes references to primary data sources.
We have released the policy introductions and list of datasets for three policies and programs:
· State Medicaid waiver programs
· Wage pass-through laws
· Training regulations for direct care workers
These include two technical documents for the harmonized dataset. You can download materials from the data compendium webpage, where we will continue to share updates on the data compendium.
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AcademyHealth LTSS and State Health Research Joint Interest Group Event |
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Impact of the American Rescue Plan Act on Direct Care Workforce and Long-Term Services
Speakers include Susan Chapman (UCSF), Clare Luz (Michigan State), and Kezia Scales (PHI)
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Announcing the NHATS/NSOC Conference on Caregiving to Older Adults with Dementia - Online Conference Registration |
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Please join the online NHATS/NSOC Dementia Care Conference on June 21, 2024. To receive a link to the conference, please register here.
A draft agenda for remote attendees is available here.
The conference is sponsored by the National Study of Caregiving, the Michigan Center on the Demography of Aging and the Hopkins Economics of Alzheimer's Disease & Services Center with funding from the National Institute on Aging.
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Learn More about the National Dementia Workforce Study! |
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The National Dementia Workforce Study, sponsored by the National Institute on Aging, is conducting the first large, annual surveys of the dementia care workforce in the United States. Survey data and other linked data sources will create an unprecedented resource for researchers to answer critical questions about the workforce and its impact on care and outcomes for persons living with dementia.
The NDWS website is now live! You can learn more about this important data resource and sign up for the mailing list at: https://www.ndws.org/.
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New National Institute on Aging Milestones for AD/ADRD Include Workforce Topics |
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Eight new Alzheimer’s disease and Alzheimer’s disease related dementias (AD/ADRD) Care and Caregiving Research Implementation Milestones have been released. The new milestones cover:
• Outcomes that Matter
• Comprehensive Care Models
• Health IT Consequences and Disparities
• Identifying Care Partners
• Caregiver Resilience and Wellbeing
• Community-Engaged Research
• Workforce Impact on Outcomes
• Healthcare Decision Making
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Policy Alert! New CMS Regulations Could Have Benefits for Direct Care Workers |
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CMS will require that home-based care providers use 80% of the Medicaid reimbursements they receive toward caregiver compensation. Providers will have up to 6 years to demonstrate compliance and can request exemptions. Read the regulations, effective July 9, here.
In addition, CMS has now released a final rule for nursing homes that includes a first-ever staffing standard of 3.48 hours per resident day (HPRD), including at least 0.55 HPRD of direct registered nurse (RN) care and 2.45 HPRD of nursing assistant care. Providers will have 3 to 5 years to achieve compliance, with some exemptions. Read the regulations, effective June 21, here.
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AWARD Network Advisory Group Member Jennie Chin Hansen Conferred an Honorary Doctorate by Harvard University |
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Jennie Chin Hansen, RN, MSN, (back left in photo) was named Doctor of Humane Letters at Harvard University during their May 2024 commencement ceremony. She is a founding member of the Advisory Group of the AWARD Network and also is an Expert Advisor for the UCSF Health Workforce Research Center on Long-Term Care. Her many contributions to advancing person-centered, high quality long-term care across diverse care settings have had lasting benefits worldwide.
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Save the Date! International Conference on Evidence-Based Policy in Long-Term Care |
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The National Institute on Aging’s (NIA) Division of Behavioral and Social Research (BSR) and the Agency for Healthcare Research and Quality (AHRQ) have a number of funding opportunities relevant to the dementia care workforce:
· Notice of Special Interest: AHRQ Announces Interest in Health Services Research to Improve Care Delivery, Access, Quality, Equity, and Health Outcomes for Older Adults (NOT-HS-24-013) – expires May 15, 2027
· Notice of Special Interest: Dementia Care Workforce for Those Living with Alzheimer’s Disease and Alzheimer’s Disease-Related Dementias (NOT-AG-21-049) – expires November 13, 2024
· Notice of Special Interest: Telehealth for People and Families Living with Alzheimer's Disease (AD) and AD-Related Dementias (ADRD) (NOT-AG-23-060) – expires November 13, 2024
· Special Emphasis Notice: AHRQ Announces Interest in Health Services Research to Improve Healthcare for Persons Living with Disabilities (NOT-HS-24-004)
· F32: NIA Postdoctoral Fellowship Award to Promote Diversity in Translational Research for AD/ADRD (PAR-21-217) – standard due dates, expires August 9, 2024.
· F31: NIA Predoctoral Fellowship Award to Promote Diversity in Translational Research for AD/ADRD (PAR-21-218) – standard due dates, expires August 9, 2024.
· K99/R00: NIA Advanced Postdoctoral Career Transition Awards to Promote Diversity in Translational Research for AD/ADRD (PAR-21-220) – standard due dates, expires July 13, 2024.
· R36: Aging Research Dissertation Awards to Promote Diversity (PAR-24-052) – multiple due dates, expires January 8, 2027
Non-Federal Funding Opportunities:
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New Publications of Interest to AWARD Network members |
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Send us your new articles so we can include them in future newsletters! Email us at AWARDNetwork@ucsf.edu.
Choi, U Yeong, Patrick Patterson, and Norma Chinho. Reducing the Burdens of Paid Caregivers of Older Adults by Using Assistive Technology: A Scoping Review. Western Journal of Nursing Research, online February 29, 2024. https://doi.org/10.1177/01939459241234233.
Espinosa, Cisco G. Sasha Vergez, Margaret V. McDonald, Monika Safford, Jacklyn Cho, Jonathan N. Tobin, Omar Mourad, Rosa Marcus, Joanna Bryan, Samprit Banerjee, Nicola Dell, Penny Feldman, Madeline R. Sterling. Leveraging home health aides to improve outcomes in heart failure: A pilot study protocol. Contemporary Clinical Trials, 2024, 107570, https://doi.org/10.1016/j.cct.2024.107570.
Fashaw-Walters, Shekinah A., Momotazur Rahman, Olga F. Jarrín, Gilbert Gee, Vincent Mor, Manka Nkimbeng, Kali S. Thomas. Getting to the root: Examining within and between home health agency inequities in functional improvement. Health Services Research, 2024, 59 (2). https://doi.org/10.1111/1475-6773.14194.
Gately ME, Waller DE, Metcalf EE, Moo LR. Caregivers’ Role in In-Home Video Telehealth: National Survey of Occupational Therapy Practitioners. JMIR Rehabil Assist Technol 2024;11:e52049. https://doi.org/10.2196/52049.
Ghosh, Amab K., Mark Aaron Unruh, Hyunkyun Yun, and Hye-Young Jung. Clinicians Who Practice Primarily in Nursing Homes and Quality of End-of-Life Care Among Residents. JAMA Network Open, 2024, 7 (3). https://doi.org/10.1001/jamanetworkopen.2024.2546.
Gruneir A, Chamberlain SA, Jensen C, et al. Burnout Among Nursing Home Care Aides and the Effects on Resident Outcomes. Medical Care Research and Review. 2024;81(3):233-244. https://doi.org/10.1177/10775587231220072.
Holmes, Patricia, Laura Santurri, Heidi H. Ewen, and Sharron Baggett. The Experiences of Skilled Nursing Staff in Memory Care Units During the COVID-19 Pandemic. The Gerontologist, 2024, 64: 1-9. https://doi.org/10.1093/geront/gnad108.
Ingraham, Bailey C., Douglas Barthold, Paul Fishman, and Norma B. Coe. Caregiving for Dementia: Trends Pre-Post Onset and Predictive Factors of Family Caregiving (2002-2018). Health Affairs Scholar, 2024, 2 (3): 1-7. https://doi.org/10.1093/haschl/qxae020.
Liu YH, Chen Y, Wang QH, Wang LR, Jiang L, Yang Y, Chen X, Li Y, Cen Y, Xu C, Zhu J, Li W, Wang YR, Zhang LL, Liu J, Xu ZQ, Wang YJ. One-Year Trajectory of Cognitive Changes in Older Survivors of COVID-19 in Wuhan, China: A Longitudinal Cohort Study. JAMA Neurol. 2022 May 1;79(5):509-517. doi: 10.1001/jamaneurol.2022.0461. PMID: 35258587; PMCID: PMC8905512.
Miller VJ, Bell J, Wagner J, et al. “I Like the Feeling of Connecting With People”: A Mixed-Methods Study of Nursing Assistants Experiences Across the Care Continuum. Gerontology and Geriatric Medicine. 2024;10. https://doi.org/10.1177/23337214241249027.
Ming, Joy, Dana Gong, Chit Sum Eunice Ngai, Madeline Sterling, Aditya Vashistha, and Nicola Dell. 2024. Wage Theft and Technology in the Home Care Context. Proc. ACM Hum.-Comput. Interact., 2024, 8, CSCW1, Article 151. https://doi.org/10.1145/3637428.
Olanrewaju, Sherif A, and Susan J. Loeb. Internationally Educated Nursing Staff Caring for Older Adults: A Scoping Study. Journal of Transcultural Nursing, online March 28, 2024. https://doi.org/10.1177/10436596241239300.
Reckrey, Jennifer M, David Russell, Mei-Chia Fong, Julia G Burgdorf, Emily C Franzosa, Jasmine L Travers, and Katherine A Ornstein. Home Care Worker Continuity in Home-Based Long-Term Care: Associated Factors and Relationships With Client Health and Well-Being, Innovation in Aging, 2024, 8 (3), https://doi.org/10.1093/geroni/igae024.
Reckrey, Jennifer M, Deborah Watman, Sasha Perez, Emily Franzosa, Katherine A Ornstein, Emma Tsui, Paid Caregiving in Dementia Care Over Time: Paid Caregiver, Family Caregiver, and Geriatrician Perspectives, The Gerontologist, 2024. https://doi.org/10.1093/geront/gnae055.
Wylie, Molly J, Kathrin Boerner, Edward Alan Miller, Kyungmin Kim, Jeffrey A Burr, Type of Home Care—Informal Versus At Least Some Formal—Matters for Recipients’ Perceived Control, The Gerontologist, 2024, 64 (5), https://doi.org/10.1093/geront/gnad127.
Xu, E.L., Watman, D., Franzosa, E., Perez, S., & Reckrey, J.M. Home Care Workers Providing Person-Centered Care to People With Dementia. Journal of Applied Gerontology, 2024. https://doi.org/10.1177/07334648241252010.
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