Your Participation in the
is Important Because…
The survey is your opportunity to express how primary sclerosing cholangitis (PSC) impacts your life and why enhanced treatments and a cure are so important for your life and/or the life of a loved one.
All data collected is de-identified (no name, birthdate, etc.) and
will help drug developers determine future clinical trials.
In the brief time it takes you to complete the survey, you will be giving scientists valuable information that will impact their research.
Strong, community-wide participation shows how committed our rare disease community is to PSC research and finding treatments and a cure for this rare disease.
For those who complete the survey via the Registry
your name will be automatically entered in a drawing for prizes.
The Grand Prize is free registration for the 2021 PSC Partners Annual Conference!