Your Participation in the
Our Voices
Survey
is Important Because…
•
The survey is your opportunity to express how primary sclerosing cholangitis (PSC) impacts your life and why enhanced treatments and a cure are so important for your life and/or the life of a loved one.
•
All data collected is de-identified (no name, birthdate, etc.) and
will help drug developers determine future clinical trials.
•
In the brief time it takes you to complete the survey, you will be giving scientists valuable information that will impact their research.
•
Strong, community-wide participation shows how committed our rare disease community is to PSC research and finding treatments and a cure for this rare disease.
•
For those who complete the survey via the Registry
,
your name will be automatically entered in a drawing for prizes.
The Grand Prize is free registration for the 2021 PSC Partners Annual Conference!