Weekly Parkinson's Newsletter from PAACI

Since our Spring Parkinson's Symposium is coming up very soon (April 6, 2024 from 10am-2pm) I wanted to give you a little more information about the event. Hopefully something we're offering in this event will entice you to attend. First, let me say that we are very ok with you only attending part of the event if that's all that interests you or all the time you have. Secondly, since this event will have several alternative treatments we ask that you consider this for information purposes only and should not be considered an endorsement by PAACI (the organization or members of the board).

Now, on to the fun stuff...

This year's PAACI Spring Symposium will feature Dr. Stuart Isaacson speaking on Managing Off Episodes. You will also be able to see an actual Buzz Board and gloves modeled after Vibrotactile Coordinated Reset research. Learn about the CUE 1, a device used in the United Kingdom, that is not yet FDA-approved in the US. You can also see an actual Hyperbaric Oxygen Treatment Chamber. This conference will cover exciting new studies looking at alternative treatments and discuss new medication under development for PD. We do request that you register for this free event by April 1, 2024 so we can assure an accurate food order. To register you can respond to this message, by e-mailing sheripaaci@yahoo.com or by calling 317-255-1993.

Have a great day! Sheri, John & the PAACI Board!

Research Opportunities

Join a Study - Parkinson's Foundation List of Available Studies

Parkinson's Disease Medical Care Planning Resource

Dr. Jiayun Xu is creating a tool to help you and your family members talk about future medical planning in Parkinson's Disease. They are looking for a person with Parkinson's and a family member who is/was caring for a family member with PD within the last 5 years. You must be able to speak and read English, willing to be audio-recorded and have access to a phone or internet. For more info contact Dr. Xu at caregive@purdue.edu or phone 765-494-4017.

Speech Accessibility Project

Beckman Institute at University of Illinois Urbana-Champaign has a new study called the "Speech Accessibility Project" to help speech recognition tools understand diverse voices. You can record your speech from home and earn up to $180/$90 for caregivers. For more info: 1-888-309-6499 or speechaccessibility@beckman.illinois.edu