|
Kristin Carpenter’s husband, Dave, was 52 when he was diagnosed with young-onset Alzheimer’s disease. In a personal essay, Kristin describes the long search for answers, the limited guidance they received after diagnosis, and the challenge of finding support for their family.
The diagnosis brought significant changes. Dave stopped working and driving, while Kristin and their young adult children adjusted to an uncertain future. Yet Alzheimer’s has not taken away everything that gives his life meaning. Dave continues to run, pursue photography, connect with others living with dementia, and spend time with his family.
Their experience highlights an important gap in dementia care. Families need more than a diagnosis and information about disease progression. They also need help answering a deeply personal question: How do we continue living now?
Kristin calls for better post-diagnosis support that helps people living with dementia maintain purpose, dignity, relationships and joy. Her story reminds us that there can still be a full life in the beginning and middle stages of Alzheimer’s.
|