My NF compass: Aunt Flora

Cheri Stewart, president of the Neurofibromatosis Network, shares an inspirational message. Read more
Drug shrinks pediatric neural tumors 

In an early-phase clinical trial, in most cases, children with neurofibromatosis type 1 and plexiform neurofibromas responded with tumor shrinkage.

Jeff Leibow shares personal mission

Jeff Leibow recently appeared on Good Morning Washington to raise awareness for neurofibromatosis.

Contributing to health care reform

Beverly Oberlander, a patient advocate for Neurofibromatosis California, recently participated in a roundtable discussion on health care reform with U.S. Representative Pete Aguilar.

Portraits and pasta

Members of the NF Central Plains community joined a crowd at the Kansas City Artists’ Coalition gallery for a special exhibit entitled “Portrait of a Disorder: Neurofibromatosis.”

Upcoming Events
The mission of the  NF Network,  "is  to find treatments and a cure for Neurofibromatosis by promoting scientific research, improving clinical care, providing outreach through education and awareness, while offering hope and support to those who affected by NF."
Will you join with us?