|
Now that spring is well underway, we are feeling that vernal energy of rebirth and rejuvenation! And we hope you are too!
We’re just days away from Living Proof: a Cabaret and we're excited to celebrate this new event all about survivor storytelling and performance. If you are not able to attend, you can join in online on our Facebook live stream (details below). And, we're inspired by folks who have participated in our I.Am.Living.Proof. project, sharing their messages of hope and lending their voices to prove that getting to specialized care means living longer and better!
There is still time to register for tomorrow's [April 21] webinar Demystifying Ostomies: What Patients and Caregivers Need to Know. Can't make it? The session recording will be available on our website and YouTube Channel. We're also looking forward to the next installment in our education webinar series, Stomach Cancer and Peritoneal Metastasis: Advancing Treatment Through Clinical Trials with Dr. Maheswari Senthil is scheduled for Thursday, June 18th.
And this month we published a new resource focused on the importance of Support Systems, designed to help patients and caregivers at all stages of their cancer journey build their team to have the support they need.
Thank you for being a part of this community,
The Alliance Team
| | Updates from the Alliance | | |
Thank you for your Support!
We Beat our March Matching Madness Goal!!!
| |
This community stepped up to slam dunk their support, helping advance education, expand awareness, and uplift patients and families facing abdominal cancers. Thanks to this incredible generosity, we not only met but surpassed our fundraising goal before the final buzzer!
Thank you to everyone who supported this campaign and helped us unlock the full match!
Missed the match and still want to donate? The buzzer may have sounded, but every gift still fuels our mission.
|
| |
Ostomies Webinar: Register Now! | |
Tuesday, April 21 at Noon ET.
Demystifying Ostomies: What Patients and Caregivers Need to Know
| |
An ostomy can feel overwhelming, especially during cancer treatment. This webinar offers clear, practical guidance to help patients and caregivers feel more prepared and confident.
We'll cover why ostomies are needed, what to expect after surgery, and how to manage daily life, including appliance care, skin health, nutrition, and emotional adjustment.
| | |
| Living Proof: a Cabaret! is bringing together survivors and caregivers from across our community for an evening of storytelling and performance to highlight the strength, resilience, and full lives of those navigating rare and advanced abdominal cancers. And it's almost here! | |
You can tune in to watch the event this Friday from anywhere on our live stream. Join us from wherever you are for this special new event!
- Friday, April 24, 2026
- Live stream begins at 7:30pm ET
- Facebook Live
Thank you for your support of this special new event supporting our mission to empower and connect the abdominal cancers community!
| Our Living Proof Performers |
| |
|
Stomach Cancer and Peritoneal Metastasis: Advancing Treatment Through Clinical Trials
Thursday, June 18 at Noon ET
| |
Stomach cancer that spreads to the peritoneum remains one of the most complex and difficult-to-treat forms of the disease, often with limited treatment options and outcomes.
Expanding access to new approaches—especially through clinical trials—is critical to improving care. In this webinar, Dr. Senthil will explore current treatment strategies and highlight promising clinical trials available in the US, offering insight into emerging options and what they could mean for patients and families.
| | |
| Support Systems: New Resource for Patients and Caregivers on the Cancer Journey | |
The cancer journey can feel overwhelming and isolating, but the right support can make a profound difference. Strong support systems provide emotional encouragement, practical assistance, and sometimes even financial relief when it’s needed most.
You are not alone. Learn about building a strong support system that can provide comfort and practical help for patients and caregivers on their journey.
| | |
| | |
This month, survivors across our community began sharing why they are Living Proof that an abdominal cancer diagnosis is not a death sentence - that it is not the end. There is hope, there is life, and there is a path forward!
These videos spread hope, raise awareness, and help others find the specialized care that can change everything. Because all survivors deserve to say: "I am still here."
|
We want to give others hope! We all have a story to tell, and we would be honored to share yours. Join us in raising awareness and send us your story today! |
| Looking Ahead: New Research Helps Predict Outcomes in Rare Appendix Cancer | |
Some rare tumors that start in the appendix can spread inside the abdomen and produce a jelly-like substance. This condition is called pseudomyxoma peritonei (PMP).
The main treatment for PMP is a major surgery called cytoreductive surgery (CRS) combined with heated chemotherapy placed directly into the abdomen (HIPEC).
Doctors want better ways to predict how patients will do after this treatment. This study looked at tools called “nomograms”—these are prediction calculators that estimate survival based on patient and tumor factors.
| | | PSOGI World News - April 2026: From the World's Experts in Peritoneal Cancer | |
A quarterly newsletter with the latest news, views and announcements from Peritoneal Surface Oncology Group International (PSOGI). Led by pioneering surgical oncologist Dr. Paul Sugarbaker, PSOGI is a collaboration of experts from around the world on the treatment of peritoneal cancer and is dedicated to improving treatment and survival of patients with peritoneal metastases.
We are proud to share their quarterly newsletter!
| | | |
The Appendix Cancer/PMP Patient Registry from the ACPMP Research Foundation - A global patient registry to study appendix cancer and PMP | |
The Appendix Cancer/PMP Patient Registry collects critical information to help build a better understanding of this rare cancer and drive new therapies forward. Launched in partnership with the National Organization for Rare Disorders (NORD), this global patient registry provides the community with an invaluable dataset to to study appendix cancer and PMP.
For more information about how to register, click here.
| | | | |
|
Coping with Stress: a webinar with Triage Cancer
May 27 at 1:00pm ET
| | |
The Alliance is happy to support our partner, Triage Cancer, to share about their webinar on May 27 to learn practical steps to cope with stress.
This session will explore why uncertainty weighs so heavily on our mental and emotional wellbeing, and provide practical strategies to manage stress, worry, and fear. Attendees will gain tools to sharpen self-awareness, cope with intense emotions, and create sustainable practices for resilience. In recognition of Mental Health Awareness Month, this webinar will highlight realistic ways to find calm, stay grounded, and build stability in the midst of change.
.
| |
Join the Patient and Caregiver Network | |
Be a part of our dedicated network connecting patients and caregivers. Our mission is to save lives and improve quality of life by fostering a community where individuals can share experiences and find support in the face of rare and advanced gastrointestinal and gynecologic cancers.
| | |
| | | |
