A monthly newsletter from the Mesulam Center for Cognitive Neurology and Alzheimer's Disease at Northwestern University Feinberg School of Medicine.

April 2021

PPA Conference Builds Connections

More than 350 participants from across the globe joined us for our Primary Progressive Aphasia (PPA) Conference: Communication & Connection on March 26. Our faculty shared the latest PPA research, and persons with PPA and their families offered their experiences with the diagnosis.

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Meet Gary: Mesulam Center Research Participant When Gary Kratina was first diagnosed with behavioral variant frontotemporal dementia (bvFTD) in 2018, he and his wife, Robin, did not know much about the disease.  From Nebraska, they found the Mesulam Center and Gary is now involved in the Clinical Core study and has agreed to donate his brain. Read the full story

Mesulam Center Faculty Receives Inaugural Rogovin Award in Neuroscience Margaret Flanagan, MD, assistant professor of Pathology and Neuropathology Core Leader, has received the inaugural Mark Rogovin Pilot Research Award in Neuroscience from the Northwestern University Clinical and Translational Sciences (NUCATS) Institute. Flanagan’s lab explores the role of TDP43, a disease-causing protein in the brain, and its effect on neuroinflammation that ultimately results in dementia.

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Upcoming Events

Join us for our annual Alzheimer Day! Join us for our annual event hosted online this year featuring Emily Rogalski, PhD, who will discuss heterogeneity and resilience in cognitive aging during the signature Mendelson Lecture. In addition to the lecture, persons living with dementia and their family members will share their stories and experiences in the Quality of Life Symposium sponsored by the Glen & Wendy Miller Family Foundation. Alzheimer Day is generously supported by Linda and Robert Mendelson and the Glen and Wendy Miller Family Foundation. Register here

Announcements & Updates

COVID-19 Information We understand there may be worries about receiving the COVID-19 vaccination and/or scheduling an appointment. Here are some resources you might find useful: Northwestern Medicine vaccination information >> Northwestern Medicine COVID-19 FAQ >> State of Illinois Vaccination Locations>>

Still Enrolling! Our Communication Bridge study is still enrolling individuals with a diagnosis of primary progressive aphasia. This speech language therapy clinical trial is completely remote and technology is provided. If interested contact Clinical Research Associate Libby Rogers. Learn more about the study

Run4Papa's Pursuit for PPA Treatment Jason Boschan is a longtime supporter of the Mesulam Center. Inspired by his grandfather, Dr. Louis "Papa" Heyman, a pediatrician, he runs races around the world on behalf of families and patients battling dementia, and in memory of those who lost their lives.​ Jason has launched a new fundraising campaign to raise funds to support the work of the Mesulam Center. Learn more about the campaign

Share Your Story Are you a Mesulam Center research participant? Are you interested in sharing your story? Consider joining our team of research advocates.

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