April News from the nbmtLINK

Jennifer Nsenkyire was born in Ghana, West Africa with Sickle Cell Disease. It did not stop there. Jennifer also had MS. Bone marrow transplantation cured both diseases. Here is her amazing story.

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Jennifer's support system includes her sisters seen here: Clara front; Pam back.

Check out our latest blog post!

Please click here for more of Jennifer's story.

Our popular cGVHD Series to Begin May 9

We're thrilled to partner with the NIH once again and offer our cGVHD Telephone Series. This is a four night commitment (May 9, 16, 23 and 30, 7 PM EST) over four weeks. It is an incredible resource for patients with cGVHD. There are expert speakers each evening on the call with plenty of time for Q & A. If you're interested in attending, first come first serve, please email Peggy Burkhard, [email protected].

When asked what a participant liked most about our cGVHD four week call series, this was what they had to say:

“Knowing I am not alone. There are other people in the world feeling and dealing with the same difficulties.”

Click here to go to our home page and scroll down to see our flier.

We're Proud to Partner up with Triage Cancer!

We will be attending this event on Sat., May 5 in Ypsilanti, MI

Triage Cancer has developed a series of FREE conferences for cancer patients, survivors, caregivers, advocates, and oncology health care professionals. Learn valuable information about navigating practical cancer survivorship issues wherever you may find yourself on your cancer survivorship journey.

Triage Cancer Conferences include sessions on:

Being an empowered patient and advocate

Understanding Your Health Insurance Options

Navigating Your Health Insurance Coverage, Clinical Trials, & Appeals

Being Prepared: Estate Planning & Other Documents

Employment Issues: Working Through Treatment, Job Search, Taking Time Off, & Returning to Work

Navigating Finances After Cancer

Accessing Financial Assistance Options

Triage Cancer FREE Conference Dates & Locations:

Saturday, May 5 ~ Ypsilanti, MI

Saturday, September 22 ~ Reno, NV

Saturday, October 27 ~ Lewiston, ME

Click here to learn more!

How We Help Others!

We are a phone call away for patients and their loved ones. From one on one peer support to scheduled call series and webinars, we are ready to ease your burden.

How We Help

Patients, caregivers and health care professionals are amongst those we aim to help through our valued resource books, programs and one on one calls.

Who We Help

We simply cannot do it without the support of corporations, foundations and individuals willing to make a difference in the lives of others.

Help Us Help Others

Donate Today

We Invite You to Become A Link Partner!

Link Partners include cancer centers and allied partners who annually support our mission of providing psychosocial support to patients, caregivers, their families and health care professionals dedicated to helping people navigate a bone marrow transplant. If you would like to learn more about the many benefits (books, programs, hyperlink on our website, bookmark inclusion) to being a Link Partner, please do not hesitate to contact us at (248) 358-1886. Want a free bookmark which lists our many Link Partners? Let us know and we will send you one!

American Society for Blood & Marrow Transplantation (ASBMT)

Anthem, Inc.

Barbara Ann Karmanos Cancer Center

Be The Match

Blood and Marrow Transplant Program, John Theurer Cancer Center at

Hackensack UMC

Blood Marrow Transplant Program at Northside Hospital

Blood & Marrow Transplant Program, The Sidney Kimmel Cancer Center at Thomas Jefferson University

Center for International Blood and Marrow Transplant Research (CIBMTR)

City of Hope

Dana-Farber/Brigham and Women's Cancer Center

DKMS (formerly Delete Blood Cancer)

Duke Adult Blood and Marrow Transplant Program

Froedtert Hospital and the Medical College of Wisconsin

Henry Ford Transplant Institute

Incyte Corporation

Memorial Sloan-Kettering Cancer Center

Meredith A. Cowden Foundation

Nebraska Medicine

Oregon Health & Science University Knight Cancer Institute

Roswell Park Cancer Institute

Seattle Cancer Care Alliance

Siteman Cancer Center at Barnes-Jewish Hospital/Washington University School of Medicine

Spectrum Health Cancer Center

The Leukemia & Lymphoma Society

University Hospitals Seidman Cancer Center

UPMC CancerCenter

Vanderbilt Ingram Cancer Center

Thank your for being a friend of the nbmtLINK. We simply could not do this without you. If you can support our efforts at this time, we thank you in advance. Every dollar helps. Wishing you good health in the new year.

Sincerely,

Peggy Burkhard, Executive Director

(248) 358-1886

[email protected]

www.nbmtlink.org

National Bone Marrow Transplant Link

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