I hope this email finds you well as we wrap up the month of April. We're looking forward to continuing to share meaningful updates, resources, and opportunities to stay engaged in the work ahead.

In recognition of Fabry Awareness Month, we are bringing attention to a rare condition that often goes unrecognized while supporting those navigating its challenges every day. We invite you to learn more, explore available support, and hear from Wes and Lori as they share their healthcare journeys.

We're also pleased to share with you our latest insights on the evolving realities of care. Accessia Health's two newest blogs explore financial toxicity and how individuals and families can better plan for the long-term costs associated with rare and chronic conditions, along with a thoughtful perspective by VP of Clinical Strategy, Jennifer Noonan, on the future of rare disease and the growing impact of cell and gene therapy.

This week, our team is at the Asembia AXS26 Summit from April 26 through April 30. If you are a partner, advocate, or industry leader attending, we'd love to connect with you for conversation and resources for patient access and affordability. Please feel free to reach out to me, Jennifer Noonan, or EVP of Development & Growth, Alan Wood to schedule a time to visit; or come find us at Booth #1416.

It's always a pleasure to have you alongside us as we continue working to expand access, share knowledge, and support individuals and families navigating care.

Thank you for being a part of our community. Your involvement and trust in us drives the impact behind everything we do.

April is Fabry Awareness Month, a time to bring visibility to a rare condition that often goes unrecognized and to support those navigating its challenges every day.

Fabry disease can impact multiple systems in the body, requiring ongoing care, specialized treatment, and consistent support. But for many individuals and families, the cost of that care can quickly become overwhelming.

Accessia Health is here to help ease that burden. Through our patient program, eligible individuals with Fabry disease may receive financial assistance for copays, insurance premiums, medical expenses, and travel related to treatment. 

We're proud to provide support for those with Fabry. Take a moment to hear from Wes and Lori about their healthcare journey with this condition.

Find Further Resources & Support:

• Fabry Support & Information Group
• National Fabry Disease Foundation
• Fabry International Network
• Fabry Facts

Have you ever been negatively impacted because your insurance required you to try one medication first before you could receive the medication originally prescribed by your doctor?

If so, we would like to better understand how this process affected you. Your feedback can help us advocate for policies that provide your doctor with options to override requirements like these when they might be burdensome or harmful to your health.

Are you or a loved one navigating healthcare costs and looking for support? We're here to help cover medical expenses for the following open programs:

• Alpha 1
• CIDP
• Circadian Rhythm Disorders
• Fabry Disease
• Gaucher Disease
• Healthy People. Healthy Communities. Oral Health Fund
• Hereditary Angioedema
• Hypoparathyroidism
• Kidney Stones
• MPS I
• Myasthenia Gravis
• Plasminogen Deficiency
• Pompe
• Thrombotic Thrombocytopenic Purpura (TTP)

*Program space is limited and is offered on a first-come, first-served basis. Programs will only remain open as long as funding is available.

If a program is full, you can still apply to add your name to the program waitlist. Once you are on the waitlist, you will be notified if assistance becomes available.



To apply:

1. Click the button below.
2. Select 'open' under 'step two'.
3. Select the appropriate program and begin the application process.

Accessia Health, a national charitable patient assistance organization, is dedicated to eliminating healthcare barriers for people with rare or chronic health conditions. Comprehensive services include personalized case management, financial assistance, education, and legal aid support. Our flexible funding model goes beyond copays, allowing individuals to pay for other essential medical expenses including insurance premiums, screening and diagnostics, therapy services, travel costs and more. Accessia Health works to ensure that every individual has access to the care they need to lead a healthier life. 

Accessia Health exists because of generous donations from our community.

Consider making a gift to provide health and hope to patients nationwide.