Mark your calendars NOW for two GREAT events for amilies and professionals. 

Tuesday, July 25 8 PM EST Webinar: Focused Ultrasound and Potential New Technologies for Difficult to Control Seizures

Saturday - Sunday, December 2-3 DC Family Forum (Washington, DC)

Stay cool this summer, 
Hope for HH Board of Directors


FUS WEBINAR FOR PATIENTS & PROFESSIONALS

Focused ultrasound (soundwaves from outside the head) is being studied as a new way of treating a targeted area of the brain that may be causing a person's seizures. The webinar's panelists will talk about this and other potential technologies being studied for treating refractory (difficult to control) seizures and hypothalamic hamartomas (rare brain lesions characterized by gelastic, known as laughing, seizures).
 
Hear from two leading edge doctors:
 
  • Nathan Fountain MD, Professor of Neurology and Director of the F.E.
    Dreifuss Comprehensive Epilepsy Program at the University of Virginia. Read a blog post with Dr. Fountain here.
  • Travis Tierney MD, Pediatric Neurosurgeon with Nicklaus Children's Hospital. Read a blog post by Dr. Tierney here
 
People living with epilepsy, their caregivers, and medical providers are invited to participate. There will be time to ask questions following the presentations. However, the speakers will not be able to give individual medical advice.
 
This webinar is being offered through a partnership between the  Epilepsy Foundation and  Hope for Hypothalamic Hamartomas (Hope for HH).



Register TODAY for the DC Family Forum

Our speaker line up is superb for the 2017 Family Forum in Washington, DC December 2-3. We will be doing a deep dive on HH and cognition, behavior, memory, transitions, endocrine, family dynamics, and alternative therapies.
Hotels fill up fast in December in DC. We urge you complete your forum registration and book your rooms NOW. Click below! 


Hope for Hypothalamic Hamartomas 

Provides information and support to HH patients, caregivers, and healthcare providers and  promotes research toward early detection, improved treatments, living with HH, and cure.

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