August 2019 Resources of the Month
Dear UCCCN members and interested parties,

Here are your August 2019 resources and meeting summary.
Announcements :
We are planning a short video to help describe what the Utah Children’s Care Coordination Network is, so that other similar groups can learn how to do something like it in their area. 

To that end, we would love your testimonials, particularly if you are able to tell us how UCCCN has helped your work, practice/organization, and/or a family that you serve. Just email Mindy. Thank you!  We’d also like your okay to record a bit of the brainstorming session and the networking at the end of the September meeting from the front of the room, so that faces will be captured along with your comments/questions.  If you are uncomfortable with this, we’ll make sure you won’t show or be included in the resulting video. A release will need to be signed by those who attend the September meeting. 

Brainstorming:
 Case #1 f rom Kelsey Homedew with the Integrated Services Program in Blanding, 11 year old with a referral for behavioral, ADHD, medication for seizures; care plan and IEP in place, mental health counselor, PC provider. Kicked out of first counseling session. Repeated episodes of running away, threatening with a knife, DCFS report, non-compliant with meds. With help from Natalie Allen, UDOH CSHCN Rural Clinics, they tried UDAC (6 – 9-month wait). The PC provider talked with several people at UNI, had a bad experience. Kelsey searched MHP and found Utah Behavior Services, 2 -3 weeks for assessment. Just trying to maintain until then – could use any suggestions. System of Care mobile unit? Kelsey is part of the System of Care group in Blanding. Is there a mobile unit? Don’t think so (per Wes).  Referral link is broken. SoC Regional contacts below. Suggestions: ask insurance for resources; DCFS may have resources.

 
 
Service Category Respite Care
 
  • Canyonlands Youth Center, Blanding. Can take youth ages 12-18 years of age for a 12-hour period at their receiving center. This program can provide immediate crisis respite for the older youth, can only be up to 72 hours or overnight. It is also a shelter for DCFS. No Cost. MHP 1116
 
 
  • System of Care – DHS, a wraparound approach to keep families safely together while effectively helping children with emotional and/or behavioral health needs thrive in their homes, schools and communities. MHP 10609
 
Regional Coordinators for System of Care

 
Case #2 f rom Gwen Anderson, Integrated Services Program, Carbon County. 12-year-old with CP and seizures, G-tube, nonverbal and non-mobile has returned to Carbon after 6 years out of state. He is approved for a medically complex waiver. Gets 30 minutes/month SLP and PT through the school, cannot attend school because no trach aide; cannot find a home health provider; no qualified person in the area to help. 12-year-old with CP and seizures, G-tube, nonverbal and non-mobile has returned to Carbon after 6 years out of state. He is approved for a medically complex waiver. Gets 30 minutes/month SLP and PT through the school, cannot attend school because no trach aide; cannot find a home health provider; no qualified person in the area to help.
 
Need a skilled nurse for the trach, commercial insurance covers this benefit, exceptions are made for rural; an aide will be covered. [Just because patient has a trach doesn’t mean will meet criteria for a skilled nurse.] Suggestions: relocate to Salt Lake area. Think outside the box – train someone to do the trach work and ask insurance to pay them.  (See also the MHP page on Tracheostomy .)

Service Category Nursing Services

 
Disclaimer: These resources come from our members as part of the meeting brainstorming session; please check with your providers to make sure they are appropriate for your patient/families.

You can find a custom list of these service providers that can be printed, emailed, and more, here :
Presentation: "Supporting Students through MTSS" Amy Hurst, Parent Consultant, Utah Parent Center"

MTSS, Multi-Tiered System of Supports , aims to intervene with any/all children at the first opportunity to build the support system they need to succeed. MTSS used to be referred to as RTI, Response To Intervention , referring to the measurement of how the student responds to intervention. Data collected is used to plan what interventions the student needs next. It provides targeted and individualized support to struggling students, screens all kids and aims to address behavioral as well as academic issues.

MTSS can’t be used to delay or deny evaluations of students suspected of having a disability. Emphasis is on what a child can do instead of what they cannot do. MTSS is:
 
·        Data Driven
·        Supplemental or targeted instruction in small groups or individually
·        Identifies students who are struggling early on and targets their needs
·        Changes methodology and interventions to target how the student learns
·        Is results driven, measuring the student’s progress
 
  • Utah State Board of Education UMTSS Contact the State Board of Education for information from the MTSS team on which districts are engaging MTSS/RIT. Alpine SD is engaging, Jordan SD is emerging, Murray SD seems to be implementing. MHP 35587
 
 
  • PBIS (Positive Behavioral Interventions and Supports) Utilizes MTSS, a process of systematically documenting the performance of students as evidence of the need for additional services after making changes in classroom instruction; promises to change the way schools support students with learning and behavior problems by systematically delivering a range of interventions based on demonstrated levels of need.
Other:
Our next meeting will be September 18th at the SLC (Taylorsville) USU Campus and upon request, at additional USU extension campuses. Our topic:
Jordan District contact - Dr. Fulvia Franco for FERPA  Scenarios
Here is our UCCCN YouTube playlist o f recorded archived meeting recordings.

Best,
Mindy & Tay
Mindy Tueller, MS
Manager, Medical Home Portal
Facilitator, Utah Children’s Care Coordination Network
Department of Pediatrics
University of Utah
801-213-3920


Tay Haines
Portal Services and Resources Coordinator
Medical Home Portal
Department of Pediatrics
University of Utah
801-587-1464
Medical Home Portal | UCCCN | 801-213-3920 | mindy.tueller@utah.edu | Medical Home Portal