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August 2015 NEWSLETTER
Serving Northern California from Fresno to Monterey to the Oregon border
Candlelight Gala
Save The Date

SATURDAY, November 21, 2015
The Fairmont Hotel San Francisco
Registration COMING SOON!
In This Issue
Website Quick Links
A Summer Experience
Meet EFNC Intern Emily

Many thanks to Emily Hsu, who volunteered at EFNC this summer as an intern. Emily gained experience in relaying resources and information, locating grants and clinical studies, integrating her writing and editing skills, and managing social media. She also learned more about epilepsy and seizures through communicating with clients.

Emily heads to Bryn Mawr college this fall to study sociology and computer science. We wish Emily the best of luck in her college endeavors!
2015 Gala 
 
Contact Us!
Free Training | Education
Schools, businesses and community groups receive free training on Seizure Recognition and First Aid.
Schedule Yours Today:
415.677.4011
Donate Used Goods &
Shop Savers
Berkeley, Dublin, Vacaville
D onations benefit the 
Epilepsy Foundation of Northern California and  are
tax deductible
.
855.336.0212
Savers accepts all gently used clothing and housewares.
Shop Amazon!
When you shop
AmazonSmile & select EFNC, Amazon will make a donation to help people w/ seizures.
Get Started Now!

Thank You
2015 Stroll Sponsors
Olympic

Marathon

Sprinter
  




Epilepsy Center of Excellence

Stroller



Camp ROUND-UP
Making Memories!

This year Coelho Epilepsy Youth Summer Camp took place in August at CYO Camp in Occidental, CA. 37 (ten more than last year!) campers and 14 EFNC volunteers stayed for five busy and exciting days of activities including archery, swimming,  yoga,  
and of course heated games of capture the flag and Gaga ball! Many friendships were reunited and newly formed. On the final night around the campfire, c ampers embraced each other and shed tears  as they shared  what the week meant to them.  Dr. Joseph Sullivan, camp physician says, "We look forward to reuniting these campers next year but also look forward to attracting more kids to come to camp, share their stories and enjoy an amazing week with other kids just like them." 

Watch for the 2016 date!

Special thanks to Lundbeck, Sports Basement and Team Mike for your support!
   
Congratulations Dr. Edward Chang!
2015 Blavatnik Laureate Award
 
Edward F. Chang MD EFNC Board Co-Vice Chair and Associate Professor in the Department of Neurological Surgery at the University of San Francisco, has been named the 2015 Blavatnik Laureate in the Life Sciences. He is awarded for his fundamental discoveries of how speech and language are processed in the human brain. 

The award is one of three Blavatnik National Awards for Young Scientists, which are given annually to honor the nation's most exceptional young scientists and engineers. The three National Laureates were selected from nominations submitted by 147 of the nation's leading universities and research institutions. Each institution was invited to nominate one chemist, one life scientist, and one physical scientist or engineer.

Dr. Chang is the first physician and neurosurgeon ever to be named a Blavatnik Laureate. We congratulate you on this exceptional achievement!
School's Starting!
How to Prepare

Develop a Seizure Action Plan with your child's epilepsy care team and the school nurse.  Seizure Action Plans can help you organize your child's seizure information and have it available when and where you need it.  This  will help aid families and schools in responding appropriately to a seizure.
 
Seizure Action Plans should be completed by the parent/guardian of a child with epilepsy and their physician.  Review the plan with your health care team and family on a regular basis--at least once a year or if seizures or treatments change.

Help educate and take ACTION!
Volunteers Make Waves!
Meet Kathleen
 
Kathleen Beiser is a dedicated nurse volunteer for EFNC, traveling across counties to do Diastat trainings for teachers and school nurses so that children can return safely to school. Without these trainings, numerous children would still be waiting to return to the classroom, or receiving their education in dangerous environments in which their teachers are not properly trained to administer rescue medication. 

Before retiring, Kathleen Beiser was a registered nurse in the area of dialysis, home health, and clinical research for 42 years. She became interested in epilepsy after her daughter's diagnosis and experiencing a few 
seizures of her own . Kathleen has a unique personal and parental perspective.

EFNC and many families are grateful for her time and dedication--a huge thank you to Kathleen! 
Brain Health Registry
Get Involved!
 
If you are 18 years or over, you can help the Brain Health Registry speed up cures for Alzheimer's, Parkinson's, depression, PTSD, and other brain disorders. The Brain Health Registry promotes healthy brain function through the prevention of brain diseases, brain disorders and brain injuries that affect brain function in adults.   Learn more!

Ask your whole family to join whether or not they have epilepsy! Invite your friends!
Our Brains Matter!

How It Works
Research Opportunity
ESETT

A prolonged seizure affects individuals of all ages, from the very young to the elderly. Status Epilepicus (SE) is a seizure lasting longer than five minutes without stopping on its own. A person whose seizure does not stop despite receiving a full dose of medicine to make it stop is considered to have Established Status Epilepticus (ESE). 

ESETT is a research study designed to try to save and improve the lives of people who experience established status epilepticus (ESE). Emergency department care of patients with a long-lasting seizure in the US is  not the same everywhere. This study will look at three commonly used medicines given in the emergency departments for ESE: fosphenytoin (fPHT), valproic (VPA), and levetiracetam (LVT) to learn which treatment is most effective at stopping a seizure quickly.

Normally, researchers get permission before a person can be included in a study. A person having a seizure will not be able to give consent. A seizure that will not stop on its own must be treated quickly; time is limited to locate and talk to the person's legal representative about the study, so the person will be enrolled in the study without his/her legal representative's consent. This is called "Exception from Informed Consent" (EFIC). 

FOR MORE INFORMATION: www.esett.org
Contact: jeany.duncan@ucsf.edu/ 415-206-4106