Misinformation Surrounding Autism | | |
When navigating social media, I am often struck by how much misinformation is promulgated about Autism. In a world where those with Autism often struggle because people don't understand them, misinformation exacerbates the problem.
One of the earliest pieces of misinformation about Autism was put forth by Leo Kanner, who identified Autism in 1943. His theory that “refrigerator mothers” caused Autism (now discredited) is pretty clearly misinformation to any of us who have been around an Autism mom – we love, support and protect with every cell in our bodies.
Another unhelpful myth is that of “The Rainman.” While some with Autism have the ability to tell you what day of the week any date occurred on, play an instrument by ear, or have exceptional memories, the majority do not. Autism is a spectrum disorder and only about 10% are estimated to have “savant” skills.
Thirty years ago, one of the printed Autism resources, consisted of a series of stick figures depicting Autism (and failing to mention that these characteristics were not universal). Included was the myth that Autistic people have no empathy. While I have run into plenty of people in my life that have no empathy, most of them were NOT Autistic.
I think what is interpreted as a lack of empathy is more likely a lack of the skill to express it. Or, perhaps, someone being so overwhelmed with the emotion that they shut down. One of my vivid memories is of taking my son, Kieran, to speech therapy and, when his therapist closed the door to keep her daughter out of the room, he (obviously distressed) chided her, “but, Mindy, she's CRYING.”
Another of the stick figures announced that those with Autism have no sense of humor. This may result from the literal interpretation of language that may prevent understanding of a joke. It is, I think, clear to anyone who has spent time with the Autistic that many of them have a tremendous sense of humor. If you want to hear a bad pun, just spend a little time with my son!
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And, finally, let me get to the “cure” myths. No, children do not outgrow Autism. They may learn the skills so their Autism is barely detectible. As for finding a “cure” for Autism – it is a set of neurological and developmental differences, not a disease. Many people with Autism don't want to be “cured”. They want to be understood and treated kindly. They want people to understand that their differences are not faults, but strengths. They want to live in a world where they don't have to mask who they truly are – a world where myths are remembered to be fiction.
The challenge for August: as Autism advocates, we need to be more vigilant about myth busting!
And, don't forget, August 19 is National Soft Serve Ice Cream Day. I see a walk to Dairy Queen in Kieran's future.
| | This is my favorite photo of Kieran and ice cream – taken many years ago, but it makes me smile every time I walk down our upstairs hallway. | | Kathi J. Machle, President | | |
Just in time for back to school, the American Federation of Teachers (AFT) and the Autism Society of America have released Beyond Acceptance: Autism Inclusion and Equity—A Guide for Educators, Parents, and Students, a comprehensive resource designed to help schools, families, and communities create learning environments where Autistic students are supported, included, and empowered to succeed.
The guide provides an overview of Section 504 of the Rehabilitation Act and the Individuals with Disabilities Education Act (IDEA), explains Individualized Education Programs (IEPs) and 504 Plans, outlines students’ legal rights, shares practical strategies to support learning and inclusion, offers guidance on postsecondary transition planning, and features lived experiences from members of the Autism community.
| | ASO grants can help bring Autism-friendly programming and events to your neighborhood! If you would like to plan an Autism friendly event in your county, check out our grant program or contact your local affiliate. | | |
World Drowning Prevention Day was July 25. Because drowning is the number one cause of death for Autistic children, Autism Society has created a free
Water Safety Packet.
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The Autism Society relies upon the tremendous work of our local organizations to help individuals and families throughout Ohio. If you don’t see your county listed below, please contact the Autism Society of Ohio so we can connect you with support and services in your area. For more information, call 614-495-7551 or
via email at info@autismohio.org
For information about events and support groups sponsored by other local Autism Society Affiliates, click HERE. The page identifies counties covered by a local affiliate and provides contact information.
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Autism Society Central Ohio is excited to present their 3rd Annual Let's Get Revvved Up for Autism Car Show at New Beginnings Church in Delaware, Ohio!
Mark your calendars for August 22 for a day filled with amazing cars, family-friendly games, community fun, and fundraising to support Autism Society Central Ohio! Whether you're a car enthusiast or just looking for a fun day out, there's something for everyone!
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Autism Society Dayton has a new name: Autism Society-Greater Miami Valley. The name change better reflects the counties served by the organization:
Miami, Greene, Preble, Darke and Montgomery.
Learn more on their website autismsocietyofdayton.org.
| Autism Society Greater Akron will host its 5th Annual Step Into Autism Walk, Fundraiser, and Resource Fair on September 26 from 10 AM to noon at Tam O'Shanter Park in Canton, Ohio. Funds raised through sponsorships, donations, and team fundraising stay in our community to provide the connections and resources that empower everyone in the Autism community with the resources needed to live fully. | | |
Other Local Affiliates and Events
The Disability Center of Ohio is hosting an In-Person Town Hall with the Center for Disability Empowerment on August 7 at 2 PM in the Columbus Metro Library.
Come to the 2nd Annual Young Adult Advisory In-Person Forum on August 13 at Perkins High School in Sandusky, OH. There will also be resources and programming for parents in the family room.
The Ohio Self Determination Association will hold an Ohio Disability Policy Candidates Forum on August 20 from 11:30 AM to 4 PM at the Fawcett Center of Tomorrow in Columbus. There is also the option to attend virtually.
If you live in the Cincinnati area, check out Autism Connections.
| | NOW is a great time to order ASO merch for yourself or give as a gift. Find your new favorite hat, T-shirt, and more on our website! | | |
Looking for a fun and impactful way to support those with Autism in your community or throughout the state? Consider hosting a third-party fundraising event! Whether you're an individual, business, or organization, there's something for everyone to get involved in. These events raise vital funds, spread awareness, promote inclusivity, and can significantly impact families living with Autism.
Let's make a difference together!
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Examples of third-party events:
- Sip and paint
- Car washes, craft shows, or bake sales
- Casual Fridays and holiday parties
- Grand openings and store promotions
- Art shows/art auctions
- Bike-a-thon, walk-a-thon, bowl-a-thon
- Golf tournaments
- Black-tie events
- 5k races and marathons
| | STATE AND NATIONAL ADVOCACY | | |
The Ohio legislature is out of session until mid-September. We will resume updates about proposed legislation thereafter.
The Autism Society has joined with 750 other disability, civil rights, and education organizations in calling upon the Administration to preserve IDEA and civil rights functions within the Department of Education. You can add your voice to this important issue. Visit votervoice.net for assistance in making your opinions known to Congress.
For information about this issue, visit thearc.org.
Section 504 and disability civil rights protections may also be under threat. Recently, the Justice Department announced that the federal government's previous guidance on the enforcement of the American with Disabilities Act's community integration mandate and Olmstead will no longer be relied upon. This threatens the right of those with disabilities to be placed in the most integrated setting appropriate to their needs. We will keep you informed about what effect this announcement may have on the rights of Ohioans with disabilities.
Autism Society of America continues to monitor what is happening in Washington. For updates on national legislation, you can subscribe to The Capitol Connection.
ASO has continued its advocacy statewide. Please reach out to us with comments or concerns. Your voice is important.
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