Stop Speaking for Us. Start Listening to Us.

Centering the voices of those directly affected by Parkinson's remains essential for meaningful progress in research and care. Esther Labib-Kiyarash reflects on her advocacy journey following a Young-Onset Parkinson's diagnosis to highlight why community perspectives must guide the conversation.

 To drive real change, PD Avengers is launching community pulse surveys to gather direct feedback on research disruptions, clinical trials, and funding challenges from both patients and professionals.

So...Your Friend Has Parkinson's

In “So…Your Friend Has Parkinson’s,” Michael and Harrison have a candid conversation about showing up for a friend with Parkinson's — from navigating changes in handwriting to staying connected and helping counter social isolation.

The video taps into the chemistry Michael and Harrison share in the Apple TV Emmy-nominated series "Shrinking". It uses gentle humor to bring the urgency — and tremendous promise — of Parkinson's research to a broad audience.

Be a friend. Watch, share and help us cure Parkinson’s:

From National Plan to National Action

Larry Gifford addresses the Federal Advisory Council on Parkinson's Research, Care, and Services. The council includes scientists, clinicians, people living with Parkinson's, caregivers, advocates, and representatives from federal agencies. Its role is to advise HHS on developing and updating the national plan.

DOCUMENTARY: COME TALK TO ME

Thanks to everyone who attended the PD Avengers screening of Come Talk To Me. The 76-minute film, directed by Deacon Warner and produced by Jackie Hunt Christensen, has earned a selection for the upcoming Twin Cities Film Fest.

The project explores the experiences of individuals living with Parkinson’s disease and utilizes artificial intelligence to recreate the voice of a subject to facilitate communication. Support groups and organizations are encouraged to hold their own screenings of the film. 

Onwards & Sideways

(*Premiering at Toronto Int'l Film Festival) 

Onwards and Sideways is an upcoming British comedy-drama directed by John Madden and written by Paul Mayhew-Archer, who drew on his own experience living with Parkinson's disease. The film stars Rhys Ifans and Laura Linney as two people who share a love of dance, a sharp sense of humour, and a Parkinson's diagnosis

Stay Informed on Parkinson's News 

Keep up with the most significant developments in the Parkinson's community as they unfold. Visit Parkinsons.News to explore the biggest stories, breaking updates, and essential insights in Parkinson's research and care at any given moment.

Light Buildings Blue for World Parkinson's Day

Volunteers are needed to help contact local buildings and secure commitments to light up blue on April 11 for Spark the Night. No previous experience is required, and full training will be provided.

Reach out directly to Carolyn@PDAvengers.com or Lucie@PDAvengers.com to get involved.