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As summer winds down and another school year begins, I find myself filled with a profound sense of gratitude for our resilient and compassionate Accessia Health community. Your support has been the driving force behind our ability to fulfill our mission of providing vital assistance and resources to those living with a rare or chronic condition.
I'm thrilled to share the latest updates from Accessia Health below, including the opening of our new patient program for Thrombotic Thrombocytopenic Purpura (TTP). This rare and life-threatening disorder requires specialized care, and we're honored to extend our financial and educational support to those in need. We have also opened other programs for applications (see below). Program space is limited and offered on a first-come, first-served basis. Programs will only remain open as long as funding is available. Be sure to apply today.
In addition, we're excited to announce our two-part webinar series on the Inflation Reduction Act and upcoming changes to Medicare. These informative sessions, led by industry experts, will empower patients, caregivers, and advocates to navigate the evolving healthcare landscape with confidence. I encourage you to register and join us for this timely and valuable learning experience.
Our commitment to patient education remains a top priority, as evidenced by the expansion of our Educational Resources library. I encourage you to explore the latest materials, patient resources, and view educational videos.
Thank you for your continued support of our mission. Together, we will continue to create a future where no patient faces financial barriers to accessing the care and resources they deserve.
With Gratitude,
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Part I: October 3, 2024 Part II: October 10, 2024 | |
Amplify Your Voice, Control Your Care: Understanding the Inflation Reduction Act and Upcoming Changes to Medicare
Accessia Health presents insights and practical guidance on the changes to Medicare and other insurance benefits brought about by the Inflation Reduction Act (IRA). Tailored for patients, caregivers, social workers, and healthcare advocates, this series will empower you to navigate the evolving insurance landscape with confidence.
Hear from Kristi Martin, Chief of Staff for the Centers for Medicare and Medicaid Services and industry expert, William Sarraille, Sarraille & Associates, as they break down the IRA’s key provisions, timelines, and the practical steps to maximize benefits and minimize out-of-pocket costs.
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Kristi Martin, Chief of Staff
The Centers for Medicare and Medicaid
Kristi Martin is the chief of staff and senior advisor to the deputy administrator in the Center for Medicare. As a policy strategist, she draws on her decades of experience working in the public sector, with private sector clients, and in philanthropy. She was previously the Vice President for Health Care at Arnold Ventures where she led the philanthropy’s prescription drug pricing portfolio and was the Managing Director of Waxman Strategies’ health practice where she worked alongside Congressman Henry Waxman driving toward progressive outcomes in health policy.
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William Sarraille, JD, Founder
Sarraille & Associates
Bill Sarraille is a nationally-recognized expert in health care, the Medicare program, and patient access to drugs, medical devices, and other treatments.
The founder of a consulting practice, Sarraille & Associates, Bill is an advisor to Accessia Health and other charities and patient advocacy groups.
Bill also serves as the General Counsel to another patient access organization and is a board member to a rare disease advocacy organization.
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NEW PROGRAM - TTP
Accessia Health is proud to announce the opening of a new patient program for Thrombotic Thrombocytopenic Purpura (TTP).
TTP is a rare, life-threatening disorder that causes blood clots to form in small blood vessels throughout the body. These clots can limit or block vessels and restrict blood flow to organs such as the brain, kidneys, and heart. Plasma exchanges are a common form of treatment for those living with TTP. Without treatment, the blockages caused by TTP can lead to larger complications such as a stroke or brain damage. However, by promoting early treatment, it is possible to improve long-term outcomes for those with TTP.
*Program space is limited and is offered on a first-come, first-served basis. Programs will only remain open as long as funding is available.
If a program is full, you can still submit an application to add your name to the program waitlist. Once you are on the waitlist, you will be notified if assistance becomes available.
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At the time of this email, the following programs are also open for applications:
- Chronic Myeloid Leukemia
- Circadian Rhythm Disorders
- Gaucher Disease
- Hereditary Angioedema
- Kidney Stones
- MPS 1
- Oral Health Fund - expanded to serve MI, OH, & IN residents
- Plasminogen Deficiency - Travel
- Pompe
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Shaping the Future of Healthcare: Key Insights from Top Conferences
Several significant healthcare conferences have taken place, each offering valuable insights and advancements that could impact patients, caregivers, providers, and donors. The Accessia Health team was on the ground at a number of these events and recently wrote about key takeaways from those events.
Read More
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Amplify Your Voice, Control Your Care | |
Our library of educational resources, called Amplify Your Voice, Control Your Care, offers a variety of information for our community to access and take control of your healthcare journey. | |
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Accessia Health exists through generous donations like yours.
Please consider making a gift to provide health and hope to patients nationwide.
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