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Photo courtesy of the National Council on Independent Living
[Image description: A large group of people, with one person in the foreground using a wheelchair, move down a sidewalk towards the U.S. Capitol Building, which is visible on the horizon.]
"Attending the National Council on Independent Living (NCIL) Annual Conference in Washington, D.C. was one of the most inspiring experiences of my advocacy career.
Surrounded by hundreds of disability advocates, representatives of the many Centers for Independent Living (CILs), and community leaders from across the country, I was reminded that meaningful change happens when people come together with a shared purpose.
One of the conference's defining moments was marching to the U.S. Capitol alongside Senator Tom Harkin, the legendary disability rights champion and author of the Americans with Disabilities Act (ADA). Walking beside someone whose leadership helped transform the lives of millions was a powerful reminder of how far the disability rights movement has come, and how much work remains.
At the Capitol, advocates from every corner of the nation gathered for a rally calling on Congress to protect and strengthen federal funding for independent living, home and community-based services, and programs that expand economic opportunity for people with disabilities.
This was a critical message for our Congressional Representatives as they began the appropriations process. The energy was unmistakable: people with lived experience, advocates, and allies united to ensure the disability community's voice was impossible to ignore.
Our advocacy continued with meetings on Capitol Hill; the Colorado delegation met with each one of our Congressional Offices. We urged members of Congress to support several critical pieces of legislation.
These included H.R. 8540, the HCBS Access Act, which would reduce institutional bias and strengthen home and community-based services; H.R. 2598, to strengthen the Individuals with Disabilities Education Act (IDEA) and ensure every child has access to a free appropriate public education tailored to their needs; and H.R. 2540, the SSI Savings Penalty Elimination Act, which would modernize outdated asset limits and finally account for inflation.
More than anything, the conference reinforced the power of community. Seeing so many passionate advocates from across the country stand together in pursuit of equity, inclusion, and independence was deeply motivating. The NCIL Annual Conference wasn't just an advocacy event, it was democracy in action, and I was honored to be part of it."
Frank Santana
Legislative Advocacy Specialist
The Independence Center
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