Volume 21 Issue 7 | August 2019
The Latest Updates from TDSN
Join us for the 21st Annual Buddy Walk

Sunday, October 6, 2019
1:30 p.m. - 5:30 p.m.
Archer Lodge Community Center
Clayton, NC
Guest Star Rachel Osterback from A&E's Born This Way

TDSN goes to Gigi's

Back by popular demand, TDSN is sponsoring the last in the series of Pizza and Karaoke Parties at Gigi's Raleigh at Fantastic Friends - August 9th - Raleigh - 6:30 p.m.

Your teen or adult will not want to miss the fun. Who can turn down a chance to grab the microphone and steal the show?
What the Today Show Didn't Tell You
Photo Credit: Jayme Lock
On July 22nd, the Today Show aired a story about former Olympian Shawn Johnson East's pregnancy and the "relief" her and her husband felt after confirmation their baby will be born "healthy." Blogger, Down syndrome advocate, and mom to Rachel, Jawanda Mast wrote a very well- articulated response. Jawanda expressed, in a most delicate, but touching way, the feelings likely shared by many in the Down syndrome community.

What the Today Show did not tell you was that there IS a Down syndrome community out there to educate and support families with a new diagnosis of Down syndrome. Most Down syndrome support organizations across the country have programs designed to provide up to date, accurate, and unbiased information to new families. The Triangle Down Syndrome Network is proud to run North Carolina's First Call Program.  North Carolina's First Call Program is a nationally recognized program to support new and expectant parents, and is so vital. North Carolina's First Call Program provides trained parent mentors available 24 hours a day, 7 days a week, to listen, share, answer questions, and provide valuable information. First Call Parent Mentors meet parents where they’re at and do not place judgement on their feelings or reactions. The First Call Program provides new and expectant parents not only with accurate, up-to-date information, but also the opportunity to connect with other parents who have had the same experience. All North Carolina's First Call Program resources and connections are free and confidential.
Milestones and More!
iCan Bike Camp

The first annual TDSN iCan Bike Camp was a huge success! All of our riders made tremendous progress. We had riders who would not get on the bike on the first day to not getting off the bike on the third day! We had riders who would not peddle their trike before camp and now are so confident they ride their trike and peddle a two-wheeler. We had many riders who made the big jump to riding a conventional bicycle independently!
Congratulations to the 2019 iCan Bike Camp Graduates!

Share your loved one's milestones - big and small.
Email  info@tdsn.org
TDSN & iCan Bike in the News
TDSN iCan Bike Camp would not have been a success without the generous support of our donors and the following partners:

Thank You for the amazing opportunity to change lives!
Starring Zack Gottsagen

The Peanut Butter Falcon, starring Dakota Johnson, Shia Labeouf, and Zack Gottsagen opens nation-wide in theaters
on August 9th, 2019.

Read about Zack's passion for acting and the on-screen chemistry and bond between Zack, the screenwriters, and fellow actors.

Stay Tuned for an exclusive private showing hosted by the TDSN and Global Down Syndrome Foundation.


Benefiting TDSN

The North Hills Beach Music Series is free and open to the public Thursday evenings from 6:00 pm. to 9:00 p.m. TDSN is one of the non-profit beneficiaries. Individuals with Down syndrome are encouraged to volunteer to assist at the entry tents. Volunteers should be 18 years old and be onsite from 5:00 p.m. to 9:00 p.m. Volunteers receive a FREE TDSN Volunteer T-Shirt. Help out and have fun at the same time! Individuals with Down syndrome may attend with their support staff if necessary.


August 8th - Sleeping Booty
August 15th - Liquid Pleasure

Be sure to visit the TDSN exhibit tent!


New Parent Mentor
A note from Christy Cooper: I am mom to Tierney (4) and Kellan (2). My husband, Matt, and I also have two cats, Hops and Barley. We've lived in Raleigh for almost three years now, after moving back to the east coast from Seattle. I'm currently a stay-at-home parent but I'm excited to be in the job hunt! I love reading, being outside, doing an occasional 5k or half marathon, and yoga. One fun fact about me: I have a black belt in Taekwondo, and I broke a cinderblock with my hand to get it.


My son Kellan is one amazing little dude. He just started daycare and is already making good friends, wooing the staff, and picking up mad skills from the other kids. We are trying to get him more confident in his balance so he can walk independently. We are also helping him sign and speak more consistently because he's currently only doing each when he really feels like it.

I'm thrilled to be a part of the First Call program because I want other families to have a contact who knows what they're going through. I want other families to know that they're not alone, and that as scary as this time is, there is so much joy in this journey.
Stronger Together
TDSN is proud to be a sponsor of the inaugural Camp PALS North Carolina. Twenty campers , most from North Carolina, spent the week of July 21st at UNCW. All camper slots were full two days after the application period opened. Due to the high demand and the success of the camp, PALS NC hopes to expand the camp next year, offering it to more teens and young adults.

Saturday, November 16, 2019
Northern Wake Tech Campus
9:00 a.m. - 5:00 p.m.
6600 Louisburg Road
Raleigh, NC 27616

Featuring
Promoting Strengths and Adaptive Resources in Persons With Down Syndrome

Dennis will focus on creative ways to adapt to challenges that have not been emphasized previously. This includes the implementation of concrete forms of thought that will actually affect one's understanding of time, changes in schedule and routine, and the ability to generalize skills across settings. This may also influence the ability to understand communication (such as from teachers, employers, etc.) as well as one's sense of humor or response to humor. We will also reiterate key behavioral characteristics such as self-talk, 'grooves,' social sensitivity, and receptiveness to visual memory and cues – with an emphasis on how these characteristics interact and influence each other. We will discuss how to take advantage of this interaction to solve problems and promote adaptive functioning. For example, we will show how to “reset” a stuck groove (a compulsion) or manage a new situation with the strategic use of self-talk and visual checklists. 

Complete details and online registration will be available soon. Check your inbox!
Did you know that TDSN has a variety of resources in our lending library? Our library includes recent publications as well as resources that have stood the test of time. The lending library is not just limited to books! We have DVDs such as “Signing Time” as well as developmental toys, games, and activities.  This month we are featuring four titles that may be helpful for the “back to school” season. 
Upcoming Events

August 9th: TDSN Pizza & Karaoke Party Gigi's Raleigh Fantastic Friends 6:30 p.m.

August 11th:  Marbles Family Fun Night 5:30 p.m.

August 23rd: Moms' Night Out Painting with Lisa Jordan (Greenville) 6:00 p.m.

September 18th: Dads' Night Out Compass Rose Brewery 7:00 p.m.

September 28th: Family Picnic at Briley's Pumpkin Patch (Greenville) 1 p.m. - 5 p.m.

September 28th: TDSN & Raleigh Parks & Rec Fall Dance 7:00 p.m. - 9:30 p.m.

October 6th: Triangle Buddy Walk Archer Lodge 1:30 p.m. - 5:30 p.m.

November 16th: North Carolina Down Syndrome Conference 9:00 a.m. - 5:00 p.m.

December 7th: TDSN & Gigi's Holiday Party Colonial Baptist Church (Cary)
TDSN Board of Directors Meetings

Capitol Financial Solutions | 8816 Six Forks Rd. | Suite 301 | Raleigh
Third Monday of the month | 6:30 pm - 8:30 pm
August 19th | September 16th
Contact: info@tdsn.org
Together We Can Do So Much!
Why support the TDSN? Your generosity helps us embrace new families with welcome baby bags and provide expectant mothers with up-to-date resources. 
 
Among other things, your support helps to educate healthcare professionals on how to deliver special healthcare guidelines to people with Down syndrome. Whether a monetary donation, volunteering, or in-kind support, we thank you!