Take this FAST ACTION today: Watch and share our newest FAST feature video about International Angelman Day!

“Securing this critical funding from CIRM is a major step forward, accelerating our path to a Phase 1 clinical trial,” said Dr. Allyson Berent, chief development officer at TransformaTx Biotherapeutics and chief science officer of FAST. “This achievement is a testament to the dedication of our incredible scientific team and the AS community, whose support has driven this program from the start.” 

Read the full press release:

The Foundation for Angelman Syndrome Therapeutics (FAST) and the Angelman Syndrome Foundation (ASF) continue to work collaboratively on advocacy related to AS. We have created a new tool for advocacy, signed a letter along with over 200 patient advocacy organizations regarding rare disease policy priorities to the Trump Administration, and are happy to share a way you can voice your concerns about threats to Medicaid.  

If you’re traveling to Washington, DC for our AS Congressional Advocacy Day, be sure to book your hotel by February 11th! 

Learn more:

In preparation for International Angelman Day, the 2025 CAN fundraising campaign is now open!  

The high cost of drug development often falls to patient advocacy groups like ours, making contributions from families, friends, foundations, corporations, and the government essential to our progress. Every donation makes a difference. 

Create your CAN page today and share with your friends & family:  

We are excited to kick off our 2025 fundraising efforts by highlighting our first CAN fundraiser! Xiaowei and Ka, parents of Raye, hosted a fundraiser in conjunction with Raye’s 3rd birthday and graduation from early intervention. We applaud and appreciate this creative way to raise funds for FAST! 

Read more:

FAST is proud to be one of the many AS organizations around the world celebrating International Angelman Day on February 15.  

From a blue light bulb at your house to coloring pages for classmates, there are countless ways, big and small, to honor those living with Angelman syndrome.   

Learn more:

AS genetics are complicated! Genetic counseling is meant to answer your questions and help your understanding of Angelman syndrome.  It could include reviewing your loved one’s genetic test report, talking about family planning, discussing additional testing of your loved one or other family members, or learning more about a genotype or genetic variant. 

Talk to FAST’s Certified Genetic Counselor today:

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