Thanks to your advocacy efforts, we are pleased to announce that the House Appropriations Committee has included $25 million for the Neurofibromatosis Research Program (NFRP) in their Fiscal Year 2024 Defense spending bill!
In February, nearly 100 advocates of the NF Network Advocacy Program educated Congressional offices on the importance of federal funding for NF research. Advocates participating in this program have been the voice of the NF community on Capitol Hill for over 20 years, and have been instrumental in generating over $427 million dedicated to NF research. We came together as one voice for the NF community and advocated for this request.
While this is only the first step in the process, we are one step closer to securing this funding for critical NF research! We will continue to update you as the legislation makes its way through Congress.
THANK YOU for your continued advocacy efforts and your support of the NF Network Advocacy Program. With your unwavering support, we are able to continue educating Congressional offices on the importance of these federal research dollars for NF research and help accelerate the search for treatments and a cure to end neurofibromatosis.
