Today:
Bereavement Network & ECHO Presentation
Palliative Pupus on 9/21
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Thank you to all of our amazing health care professionals and your incredible contributions to caring for our community
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Aloha Jeannette,
We hope you can join today the Bereavement Network of Hawaii's speaker
Bob Baugher on 9/15 and the Pacific Cancer Project ECHO Session on Palliative Care: Choices and Personal Preferences
Please join us next week for Kōkua Mau events: a pediatric case discussion at Palliative Pupus on 9/21 and a presentation on Prognostication by Dr. Daniel Fischberg on 9/29. Details and registration below.
And now is a good time to join Kōkua Mau or renew your membership. Your dues helps to strengthen and expand our work. Details below and Mahalo!
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Thur 9/15 Quarterly Training for the Bereavement Network of Hawaii (BNOH)
The September Bereavement Network of Hawaiiʻs (BNOH) quarterly training will feature Dr. Bob Baugher, during our Zoom meeting. More: download PDF file
Thur Sept 15
1:00-2:00 PM
Register in advance for this meeting. After registering, you will receive a confirmation email containing information about joining the meeting.
https://us02web.zoom.us/meeting/register/tZwtdOCupj8rG9WKA1zGV0XQ2tBM_Xdaqfr8
You are welcome to attend and to tell others who may be interested. BNOH is open to all who are interested and connected to helping people who are grieving and experiencing bereavement.
Several of us met Dr. Baugher at the Compassionate Friends Grief conference here in Hawaii this past spring. He is an excellent speaker ! He has graciously agreed to be our BNOH speaker this month while he is here in Hawaii vacationing with his family.
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9/15 Active Dying - Choices and Personal Preferences - Pacific Cancer Project ECHO
Join us for the Pacific Cancer Project ECHO Session on Palliative Care: Choices and Personal Preferences with Kōkua Mauʻs own Dr. Geoff Galbraith.
Thur Sept 15
4:00PM HST (Sep 15 at 3PM SST | Sep 16 at 12PM ChST).
Dr. Galbraith is Board Certified in Internal Medicine and Hospice and Palliative Medicine. Though currently retired, he continues to be a volunteer faculty at the Univ. of Hawaiʻi School of Medicine, teaching palliative practice and communication skills to medical students, Internal Medicine and Family Medicine Residents, and Geriatric Fellows. He is also active in Kōkua Mau, a statewide movemen in Hawaiʻi.
If you haven't registered to join the Pacific Cancer ECHO series, please REGISTER in advance to join. These sessions are free and open to all so please share widely.
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Congratulations to Hope Young, our amazing Advance Care Planning Coordinator, for 5 years with Kōkua Mau!
This virtual lei as a mahalo for all you do for Kōkua Mau and our community...
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9/30 If the unexpected happens, who would speak for you?
Join us for an Advance Care Planning presentation by Kōkua Mauʻs very own Hope Young for AARP.
Fri Sept 30
10:00am
One of the best gifts family members can give to one another is the gift of advance care planning. Taking the time to do this can help avoid family in-fighting and prevent families from having to guess what a loved one wants during a health crises or serious illness.
- Learn how to document your wishes in an Advance Health Care Directive.
- Get tips on how to engage in family conversations around this issue.
Register for this free event with AARP at https://events.aarp.org/care9-30
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Tailored Advance Care Planning Training with Kōkua Mau
Are you interested in
- Advance Care Planning training for your new staff?
- A refresher for long time staff?
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Workplace wellness for employees?
Kōkua Mau is here to help you. We have recently done training with the Long Term Care Ombudsman volunteers, EUTF, Papa Ola Lōkahi Community Health workers, Zoom sessions with kupuna on Molokai, and in-person presentations with kupuna from Alu Like.
Trainings with Papa Ola Lōkahi staff, Hawaii Public Health Institute Training Hui, AARP and more are in the works.
Recent trainings on Palliative Care with the Caregiver Foundation and the Cancer Coalition, gave us the unique opportunity to do trainings across the islands especially for those who are not able to travel. We are looking for other patient advocacy and support groups who want to learn more about palliative care so please contact us.
Let us know how we can help you!!
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Kōkua Mau on HPR's The Body Show |
Palliative Care and Hospice was the topic two weeks ago on ʻThe Body Showʻ at HPR with Dr. Kathleen Kozak and yours truly Jeannette Koijane.
Advanced Care Directives and POLST was last week's ʻThe Body Showʻ at HPR with Dr. Kathleen Kozak and Hope Young our Advance Care Coordinator.
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New Videos on our Kōkua Mau YouTube Channel
In case you missed our meetings we add new videos to our YouTube channel:
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Join or renew your membership now
Thank You supporters and members for keeping Kōkua Mau strong and serving our community. Since 1999, Kōkua Mau has been a voice for outstanding care and services in Hawaiʻi supporting those with serious illness, their loved ones and those who care for them.
Now is a great time in 2022 to renew your membership or join Kōkua Mau as a first-time member. Your support is what makes Kōkua Mau possible. We thank you for being part of our movement to improve care. Wondering when your membership runs out? Just send Jeannette an email and she can let you know.
Membership of individuals and organizations empower us to do our work. Your financial support is crucial: we raise every penny we spend (with your help). Our Organizational and Individual members supporting us are listed on our website.
5 easy options to support us
We have a rolling membership system so if you join now, your membership will last for the next 12 months. Click here for membership levels
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Donate with PayPal Giving Fund and 100% of the amount will be donated to Kōkua Mau with a few clicks. Click here for the dedicated PayPal link
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Go online using Network for Good and donate with a credit card (with a fee). You can set up a monthly recurring donation, by spreading payments out throughout the year and making it easier for us to plan.
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Through Aloha United Way – Designation Code 80410
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Benevity – please check if your employer (like United HealthCare) offers matching donations through the Benevity platform.
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A check in the US postal mail – 3 steps:
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One: Payable to ‘Kōkua Mau‘ and put ‘membership‘ in the memo field
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Two: Address to: Kōkua Mau • PO Box 62155 • Honolulu HI 96839
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Three: Stick on a stamp and put in the mailboxdroppable-1654552997787
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Wed 9/21 Palliative Pupus
You are invited to join us Palliative Pupus, our exciting local networking and clinical education opportunity. If you are involved with palliative care cases or would like to learn what palliative care actually is, you are invited.
This month our colleagues at Kapiʻolani will present a pediatric case. Details about the case for Palliative Pupus will be announced in the next newsletter.
Wed. Sept 21
5:15 pm – 7:00 pm
Register in advance for Palliative Pupus zoom meeting. After registering, you will receive a confirmation email containing information about joining the meeting.
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9/29 Prognostication at our Kōkua Mau (zoom) Meeting
Our very own Kōkua Mau Board president Dr. Daniel Fischberg will present about Prognostication
Thur Sept 29
3:00-5 PM
Estimating and communicating prognosis, while often challenging, is often an essential part of care for those living with serious illness. Patients, family members, and providers, all need good prognostic information on which to base important decisions. In this introductory presentation on the subject, we will cover the following learning objectives:
- Describe aspects of prognostication
- Review general guidance when discussing prognosis
- List tools and special considerations for a variety of situations
Register here in advance. After registering, you immediately receive a confirmation email with details on how to join the zoom meeting.
Join our monthly Kōkua Mau Meeting to network with colleagues, share your updates and hear about what is happening across the state to improve care for those with serious illness.
If you have announcements to share, please let Jeannette know
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9/24 Hawaii Health Workforce Summit Registration |
Registration is now live for the 2022 hybrid Hawaii Health Workforce Summit: Creating lasting solutions - Effecting real change
Sept. 24, Hilton Hawaiian Village
8:00am to 5:00pm
Registration is now open. More information and full agenda on their website.
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New Resources to Help Clinicians Cope With Moral Distress, Grief, and Trauma-Emotional PPE
The challenges of working in the U.S. health care system have been an existential threat to clinician well-being for years. The pandemic has only exacerbated the pressures health care workers face.
CAPC's new Emotional PPE toolkit provides resources that clinicians and teams can use to support well-being. Most resources in this toolkit are open to all.
What's in the toolkit?
- Whether you have 5 minutes or 60 minutes, there are tools, activities, videos, and practices to help bridge the gap if you are struggling
- Wellness planning resources for team leaders to cultivate safety and advocate for change
- Articles and research on Emotional PPE
- Relevant CAPC events
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Wed 9/21 Advance Care Planning Clinic Classes
This class is offered for physicians, nurses, social workers and other clinicians. It promotes ACP introductions and will review key elements and processes related to ACP, Advance Directives and POLST in the clinic.
Course Objectives:
- Apply ACP resources to promote advance care planning discussions.
- Promote patients’ knowledge of advance directives including healthcare power of attorney designation.
- Describe the differences between an Advance Directive and Provider Order for Life-Sustaining Treatment (POLST) and implement correct documentation of these documents.
- Implement and standardize ACP processes in the clinic.
- Identify the Hawai‘i requirements of Medical Aid in Dying, Our Care, Our Choice Act.
Select one date attend:
Wed 9/21/2022 or Wed 11/16/2022
First Insurance Center (FIC)
862 South Beretania Street, FIC 980
Honolulu
Registrations are limited. Indoor mask mandate is still require
HPH Employees: Manager’s Approval is required prior to registering AND register online through the HPH Learning Center (HLC). Type in the Catalog: ACP; Select Course: HPH – Advance Care Planning (ACP) Clinic Class.
Non-HPH Participants: Register by emailing Michelle Cantillo, RN, HPH ACP Coordinator at michelle.cantillo@hawaiipacifichealth.org.
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10/11 Advance Care Planning (ACP), Advance Directives and Provider Orders for Life-Sustaining Treatment (POLST) Facilitator Training
This training is offered for nurses, physicians, social workers and other clinicians and focuses on communication skills to improve ACP discussions. The class will review key elements and processes related to ACP, advance directives and POLST development.
Course Objectives:
- Apply advance care planning resources to promote ACP discussions
- Engage the multi-disciplinary team to patient-centered discussion addressing advance care planning
- Promote patients’ knowledge of advance directives including health care power of attorney designation
- Implement correct documentation of POLST-CPR, DNAR, full and limited treatment, time-limited trials and comfort care
- Promote correct process of ACP documents-access and utilization in your organization
- Identify end-of-life options including Hawai‘i requirements on Medical Aid in Dying, Our Care, Our Choice Act
First Insurance Center (FIC)
862 South Beretania Street, FIC 980
Honolulu
Tue Oct 11 2022
08:00-16:30
Registration: HPH employees: Manager’s approval is required prior to registering AND register online through HPH Learning Center (HLC). Type in catalog: Advance Care Planning or POLST; Select course: HPH – Advance Care Planning, Advance Directives and Facilitator Certification
Non HPH participants: Register online: https://www.hawaiipacifichealth.org/health-wellness/continuing-education/ Contact Michelle Cantillo, RN, HPH ACP Coordinator at 808-535-7874 or via email michelle.cantillo@hawaiipacifichealth.org for any questions.
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10/20 Free Online Advance Care Planning Classes
Register and attend with your family and friends to learn the importance of advance care planning.
Key areas of discussion include:
- Why it is important to have early conversations on your wishes with your loved ones.
- How to complete an advance directive, understanding the role of a health care power of attorney and choosing wisely.
- Reviewing the difference between an advance directive and Provider Order for Life-Sustaining Treatment (POLST) document.
- Sharing the information with your loved ones and medical providers.
PLEASE NOTE: At this time, classes are only available via Zoom virtual classroom. Register with your email address and you will receive a Zoom link. Space is limited.
Online classes are available on the following dates and times:
Tue, October 20, 2022 from 5:30 to 7:00p.m.
Wed, November 9, 2022 from 12 to 1:30p.m.
Thur, December 1, 2022 from 3to 4:30p.m.
Register today for this free event: HawaiiPacificHealth.org/ACP-Registration. If you have further questions, email Michelle Cantillo, RN, Advance Care Planning Coordinator,
at Michelle.Cantillo@HawaiiPacificHealth.org or call 808-643-HOPE and select Option 2 to speak with a navigator to learn more about this class.
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Kauaʻi: Advance Care Planning (ACP), Advance Directives and Provider Orders for Life-Sustaining Treatment (POLST) Facilitator Training
This training is for nurses, physicians, social workers and other clinicians and focuses on communication skills to improve ACP discussions. The class will review key elements and processes related to ACP, advance directives and POLST development.
Course Objectives:
- Apply ACP resources to promote advance care planning discussions
- Engage the multidisciplinary team to patient-centered discussion addressing advance care planning
- Promote patients’ knowledge of advance directives including health care power of attorney designation
- Implement correct documentation of POLST - CPR, DNAR, full and limited treatment, time-limited trials and comfort care
- Promote correct process of ACP documents – access and utilization in your organization Identify the Hawaiʻi requirements of Medical Aid in Dying, Our Care, Our Choice Act
Thursday, October 27 2022
8:00 a.m. to 4:30 p.m.
Wilcox Medical Center, 3-3420 Kuhio Hwy, Conference Room B/C
Registration:
HPH Employees: Manager’s Approval is required prior to registering AND register online through the HPH Learning Center (HLC). Type in the Catalog: Advance Care Planning or POLST; Select Course: HPH – Advance Care Planning, Advance Directives and Facilitator Certification in Kaua‘i
Non-HPH Participants: Contact Michelle Cantillo, RN, HPH ACP Coordinator at (808) 535-7874 or via email at michelle.cantillo@hawaiipacifichealth.org for any questions.
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Our partner Pacific Health Ministry has Office Space Available |
Office Space Available! Affordable and Convenient Office Space is available on Young Street near Piʻikoi and Keʻeaumoku Streets.
- Air conditioned Building
- Covered Parking
Please call Patricia Camero at Pacific Health Ministry: (808) 591-6556
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New Resource: Audio Version of the Starter Guide |
Our long time partner, the Conversation Project, has created audio versions of their Starter Guides. Subjects available on audio include:
These guides are between 14-19 minutes long, and are a great alternative for individuals who prefer using audio tools. The audio guides are currently listed with the other guides.
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Access to Care in Hawaiʻi (and its future?) |
Healthcare in Hawaii paints a bleak picture. Our partners on Hawai‘i Island, Community First, shared the results of their statewide survey on Healthcare from nearly 3,300 Hawaiʻi residents, along with input from more than 300 health care providers statewide in April and May. You can read the full report here https://communityfirsthawaii.org/access-to-care/. (Scroll down on the page for a summary and a complete report.)
The link to a Civil Beat Article on the findings: Survey: Doctor Shortages Lead To Health Care Delays In Hawaii.
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Integrated Health Hawaii (IHH) is conducting this needs assessment to determine if social workers or healthcare workers would like a CE program for Care Coordination.
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KCC seeking Instructors for CNA classes | Kapiʻolani Community College is looking for instructors for their CNA classes. Requirements: RN for at least 2 years and Long Term Care background for at least 1 year. Contact Martin Chong, Health Education Program Coordinator at martincs@hawaii.edu or 808-734-9540. | |
4th Sunday - Free Medical Aid in Dying Bereavement Support Group |
This support group is specifically for loved ones of those who have chosen Medical Aid in Dying in Hawaiʻi. Facilitated by Leilani Maxera, LCSW and Joy Rodriguez, End of Life Doula.
4th Sunday of the month
6PM over zoom (please note new 6 PM time)
Zoom from anywhere into a space held to process feelings created by the unique experience of walking beside someone who utilized Hawaiʻi’s Our Care, Our Choice Act.
To register please email joydrodriguez@yahoo.com or call (808) 853-0621
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4th Wed - New online support space - Heavily Yours |
Heavily Yours is a free online support group for people working with the dying and the dead. We will be gathering monthly
4th Wednesday of the month
4pm HST
All folks in deathcare are welcome! This means you, death doulas, funeral directors, hospice volunteers, palliative care folks, caretakers, etc. It is open to both medical and non-medical professionals, community workers, and volunteers.
You can reserve a spot at http://bitly.ws/rpYm. This support space is a collaboration between A Sacred Passing (Seattle) & Kaipuokaualoku (Honolulu).
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Medicine meets microphones: Lessons in listening from StoryCorps and Providence | The Humanizing Healthcare Expert Series session hosted by the Providence Institute for Human Caring, in collaboration with StoryCorps, the nation's oldest oral history project. "Medicine meets microphones: Lessons in listening from StoryCorps and Providence" (Recording hopefully available soon?) | |
Resource: Caring for People with Serious Illness |
Caring for People with Serious Illness: Lessons Learned from the COVID-19 Pandemic: Proceedings of a Workshop.
The COVID-19 pandemic has highlighted existing weaknesses in the United States health care system, while creating a new set of challenges related to caring for people with serious illness. The National Academy of Sciences, Engineering, and Medicine's Roundtable on Quality Care for People with Serious Illness hosted a three-part workshop to explore the initial responses to the pandemic. Download the PDF or read for free at The National Academies Press website.
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Resource: When a Child Dies: Planning Acts of Love and Legacy |
The Funeral Service Foundation and the Collaborative of National Pediatric Care Coalitions worked together to create “When a Child Dies: Planning Acts of Love and Legacy.”
The booklet is the outgrowth of a multi-year project that begun in 2018. “The booklet offers guidance and inspiration to help these families who experience the death of their child say goodbye in a way that is meaningful and important to their path forward.” In May, there was a webinar on ways to use the booklet. Links are to order the booklet and the free webinar on its use. Watch the recording.
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Advancing Equity, Diversity and Inclusion (DEI) Webinars
July 7 and July 21 recordings are available. Click here. NHPCO and AAHPM are partnering on a complimentary two-part webinar series (with CEUs) designed to provide practical cases and tools to advance diversity, equity, and inclusion.
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Mrs. Jones Gave Me the ‘Ah-Ha’ Moment That Guided My Entire Nursing Career | |
Executive Office on Aging still needs your help to assess the needs of your community |
The Department of Health, Executive Office on Aging (EOA) is requesting your assistance and participation with two surveys to help us assess needs in the community. The findings will shape and improve Hawaii’s programs and services to meet the needs of Hawaii’s older adults, persons with disabilities, and their caregivers.
EOA developed two (2) separate surveys to assess the needs of Hawaii older adults and/or persons with disabilities and Hawaii’s caregivers. The first survey entitled, “Aging in Hawaii” looks at issues faced by you, our kūpuna, and tomorrow’s older adults. The second survey looks at issues faced by Hawaii’s caregivers.
Responses to all the surveys are strictly confidential, voluntary, and anonymous. The information will help identify needs in our communities and shape the development of our State Plan on Aging. Each survey will take approximately 10 minutes to complete.
To access the survey for Aging in Hawaii, please click on the following link:
To access the Hawaii survey for caregivers, please click on the following link:
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On the July 7 NHPCO/AAHPM Diversity, Equity and Inclusion webinar (see below), there were some excellent resources shared. We have looked at some but not all so welcome your feedback on what we should list on our website and share with the coalition.
DEI Resources from American Academy for Hospice and Palliative Medicine (AAHPM), including practical strategies, opinions and perspectives and a resource portal DEI Resources | AAHPM
Diversity resources from National Hospice and Palliative Care Organization (NHPCO.) This includes the Inclusion and Access Toolkits and several specialized outreach guides Diversity | NHPCO
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Palliative Care - Extra Support for people with Cancer Recording available |
This special presentation is a partnership of Kokua Mau and the Quality of Life committee of the Cancer Coalition to help individuals living with cancer, their families and their caregivers, as well as healthcare providers who want to learn more about how Palliative Care can support individuals with serious illness. Recording available.
Presenters:
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Dr. Daniel Fischberg, Medical Director, Pain & Palliative Care Department, The Queen’s Medical Center
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Sara-May Colón, Chaplain at Adventist Health.
- Hear a conversation with Andrea Bacos about her “Caregiver’s Journey” with Palliative Care.
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Jeannette Koijane, Executive Director, Kōkua Mau: Where to find Palliative Care in Hawaii
This session helps people learn about what palliative care is, who the team is, and what services are included. We will also cover the difference between palliative care and hospice, where to get palliative care and what else is happening with palliative care in Hawaii.
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A Caregiver's Journey with Palliative Care - New Video | A moving caretaker’ testimony about Andrea Bacos and her husband’s cancer journey and palliative care on our YouTube channel. Living on Maui she talks story how they accessed palliative care in Honolulu and at home. | |
Free Resource: Palliative Care Fast Facts |
Are you getting this great free resource? Published every Friday by the Palliative Care Network of Wisconsin “Palliative Care Fast Facts" are edited by Sean Marks, MD; Associate Professor of Medicine at the Medical College of Wisconsin.
Other topics include:pain, non-pain symptoms, communication, prognosis, hospice, Palliative Care consultation, etc. You can see a complete listing and/or sign up at https://www.mypcnow.org/fast-facts/
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Job Board - by Member Organizations |
Please note: We post positions and career opportunities that have been submitted to us by our members, with the request to share them in our network, on our website and our newsletter.
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Hawai‘i Care Choices in Hilo, Hawai‘i is seeking a variety of experienced and compassionate professionals to provide the highest quality care and support for our patients and their loved ones. They offer an arry of benefits, a supportive work environment and seek to maintain an organizational culture that inspires and engages employees.
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New resource: Generalist Palliative Care Resource Center |
The resource center includes project profiles for each of the 9 public health care systems that participated in the implementation phase, with specifics of what they did, how they did it, and what they learned.
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New Videos on our Kōkua Mau YouTube Channel |
In case you missed our meetings or reports we add new videos to our YouTube channel
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Aloha,
Jeannette Koijane and Hope Young
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Useful quick links to Kōkua Mau Topics | | | | | |