With more than 40,000 people dying annually of breast cancer, there are few among us who have not been touched by the disease. Leading up to National Breast Cancer Awareness month in October, one University of Kansas Cancer Center effort has been working toward a lofty goal to increase genetic testing to prevent breast cancer and improve treatment for breast cancer patients. The Efficacy of Point of Service Testing in Breast Cancer (ePOST BC) program is based on the
Project ECHO model
, a telementoring program through which teams of experts collaborate with primary and specialty care providers to teach specialty skills.
The goal of this project is to reach a 50% genetic testing rate for eligible breast cancer patients. According to one of the project leaders, Jennifer Klemp, Ph.D., MPH, the ECHO model, which emphasizes democratization of knowledge, is well-suited for this project.
“Cancer genetics is really a perfect fit because so much of our screening, management and now treatment decisions are based on genetic information getting that into the hands of patients and providers wherever they practice is vitally important for shared decision making,” said Klemp during June’s inaugural ECHO session.
The purpose of the ePOST BC program is to educate cancer care providers about topics including the clinical process, guidelines and interpretation of genetic testing for breast cancer patients, cascade testing and high-risk management. Attendees have included advance practice providers (PAs & NPs), nurses, navigators and registrars. One unique aspect of this ECHO project is the quality assurance component. The leaders have developed a resource guide to assist with implementation, and participants have homework to complete between sessions.
In addition to educating providers, the ePOST BC program leaders emphasize the need to educate payers and patients about genetic testing.
Patients, said Klemp, are often feeling overwhelmed and are not excited about having to go to yet another medical office or specialist for services, which can lead to a high drop-rate when it comes to actually undergoing genetic testing. The point of service model helps alleviate some of that burden by getting patients tested where they are and then referring them to a genetic counselor if warranted by the test results. Also, it may be difficult for patients who already have breast cancer to understand why they need genetic testing. Educating patients about how the testing can benefit their treatment and help prevent cancer in loved ones is key.