• Volunteer of the Month
  • You did it!
  • Team CCF Update
  • Volunteers Needed
  • Call for Videos
  • Call for Photos
Volunteer of the Month
Each month we will recognize those whose contributions inspire us and who demonstrate excellence in their service to others. This award was created to thank those outstanding individuals and to bring to light the immense efforts, time and resources that are generously given to the Foundation.
Lisa Layton
It is a great honor and privilege for the Foundation to recognize Lisa Layton as Volunteer of the Month. Lisa was diagnosed with stage IV cholangiocarcinoma in May of 2013 and continues to be in active treatment. She is a wife, mother, and speech-language pathologist. The first few weeks after the diagnosis Lisa remembers constantly wiping away tears and being in a state of shock and grief.

Now, as an experienced patient, she has a tremendous desire to lift up other patients. Lisa loves entertaining and decorating for parties and holidays. After attending her first conference Lisa learned of plans for a patient lounge at the next conference at the Marriott Hotel. She immediately asked if she could help. Lisa Layton along with Lisa Craine have spearheaded the patient lounge for the last three years. Lisa’s favorite part about the lounge is making people feel welcome, spending time connecting with patients, and providing love and encouragement. 

Lisa has raised money for the foundation through partnering with the retail establishment Charming Charlie. Her volunteer work also includes research advocacy and patient mentoring in the CholangioConnect program. She considers it a privilege to be a mentor and included in the lives of other patients and their families. She explains about the mentor/mentee relationship this way, “We share a deep connection because we all have fear, anxiety, and experience setbacks. We also share the joys and the successes.” Her hope as a mentor is to share blessings, tenderness, to listen, to give hope, joy, and love.

Lisa’s positive attitude is contagious. She fittingly emulates her favorite quote by Ralph Waldo Emerson, “ Write it on your heart that every day is the best day in the year.” Her advice to anyone thinking about volunteering with the Foundation, “You will be glad you got involved. The CCF is a wonderful organization and it gives you a sense of purpose and a feeling of happiness.”
You did it!

Thank you Rene McFadden for your beautiful earring donations! Rene's jewelry is the newest addition to the online Awareness Store. She has also created handmade bracelets for purchase in the store. Through gifts like these, and many others, together we work to find a cure!
Team CCF Update
Looking for runners in Denver and Cleveland!

On May 19th Team CCF will run in the Kaiser Permanente Colfax Marathon in Denver, CO as well as the Rite Aid Cleveland Marathon in Cleveland, OH. Come join the fun! There are also 10K, 8K, 5K and 1 Mile route options.

Each participant will receive a Team CCF training shirt and a personalized fundraising page. See website for details.
Volunteers Needed
The Foundation is currently seeking contributors to the Cholangiocarcinoma Foundation's blog called 'cholangio what?' Bloggers would write, edit, post and promote the content of the Foundation's blog. Blogggers would also generate, research and pitch ideas for future posts. If interested, please email cindy.thomas@cholangiocarcinoma.org .
Discussion Board Greeter
The Foundation is currently seeking additional Discussion Board volunteers who would welcome new patients and caregivers to the discussion board community. Please email cindy.thomas@cholangiocarcinoma.org if interested.
Social Media Influencers
Social Media Influencers work to recognize and support people hosting social media fundraisers, spread awareness of the Foundation’s mission, and research and develop social media campaigns. For more information about becoming a Social Media Influencer please visit the link below:

Call for videos

The Foundation has a need for video submissions. If you would like to share your story about any of the questions below, we would love to hear from you!
  • What services does the Cholangiocarcinoma Foundation provide that are important to you? 
  • Why is it important to support funding for this rare cancer?
  • Why is it important for patients to be their own advocates with this type of cancer?
  • Why is it important to do research?
  • What do you want people to know about cholangiocarcinoma?

Submit your video content to cindy.thomas@cholangiocarcinoma.org .

Please submit videos in a horizontal format and keep them brief - 30 seconds in length would be ideal.
Call for photos
If you have had/attended an event, run a race, attended a conference, or fundraised and have photos, feel free to send to cindy.thomas@cholangiocarcinoma.org .
Cholangiocarcinoma Foundation | (888) 936-6731 | info@cholangiocarcinoma.org | cholangiocarcinoma.org