Volunteer Newsletter at a Glance:
  • Call for Videos
  • Volunteer of the Month
  • Introducing the new Team CCF microsite
  • You did it!
  • Volunteers in Action
  • Volunteers Needed
  • Coming Soon - CCF Online Store
Call for Videos
Candles for the Cure - December 2018
With our Candles for the Cure campaign fast approaching in December, CCF is calling for your video contributions. If you would like to share a short video on who you will light your candle for, why you donate, or what it means to have others donate in your honor, please send them to cindy.thomas@cholangiocarcinoma.org by December 20th. Also, please keep in mind the following criteria when submitting:

  • No more than 45 seconds in length;
  • Please include good lighting;
  • Please include clear audio; and
  • Landscape/horizontal formatting.

We would like to share your videos through social media during the month of December and have included an example (see below) for you to get started.
Volunteer of the Month
Each month we will recognize those who contributions inspire us and who demonstrate excellence in their service to others. This award was created to thank those outstanding individuals and to bring to light the immense efforts, time and resources that are generously given to the Foundation.
Cait Telaak
Cait is a cholangiocarcinoma patient who was first made aware of her cancer diagnosis just shortly over a year after she married. She says her diagnosis was atypical because in less than 24 hours after her trip to the emergency room for a pain in her side, she was diagnosed. So many patients don’t share the experience of an instant diagnosis, followed by wonderful oncologist recommendations and extraordinary care and that has been one concern that Cait is passionate about changing - her hope is that it’s different for everyone in the future. Spreading educational awareness is just one of the many facets of volunteerism Cait has begun with the Foundation.

She connected with the Foundation only days after her diagnosis and knew she wanted to be a part of the Discussion Boards right away. In celebration of her completion of chemo, following her liver resection surgery, she and her husband, Mike, wanted to give back by hosting a ‘Farm Extravaganza’ fundraiser on their dairy farm. She felt she had benefited from so much love and support within the Foundation family that she jumped into another yet another volunteer opportunity.

Cait herself says “I am no scientist,” but feels the Foundation has an accountability to grow the science to find a cure and she wants "to help bring the science to the patients by building a bridge.” She is a blogger for ‘ Cholangio...what? ,’ a CARE Team member and one of Team CCF ’s biggest fans! She’s given hundreds and hundreds of hours in nearly every program the Foundation offers volunteers. Cait is also currently preparing a “Clinical Trial Bootcamp” class for patients in hopes of calming the overwhelming stress of patients and families as they begin the clinical trial process and educating them on the science that may not be familiar to them. Cait gives her all in everything that she does and is constantly thinking of how to make a better experience for other patients.

The Foundation would like to take this opportunity to thank Cait for every effort and her many, many hours of hard work and commitment. It is a privilege to honor her as Volunteer of the Month.
Introducing the new Team CCF microsite


Team CCF has a new microsite! Visit the site to find out how to get involved, see upcoming races and learn more about the incentive program.

You did it!
Over 465 hours were reported from our volunteers in October alone! This was a recording breaking month. Thank you for every minute of time! This work included fundraising events, a mini-conference for the CARE Team, discussion board moderating, social media work, mentoring with CholangioConnect, research advocacy and more. In the last five months our volunteers have given over 1,543 hours of service and we cannot thank you enough!
Volunteers in Action
Runners and cheer squad from the Yonkers Marathon in October.
Team CCF showing off the medal! Great work!
Congratulations to Team CCF in the Yonkers Marathon! Way to go!
Team CCF pauses for a picture at the Philadelphia Marathon/Half Marathon/8K in November.
Congratulations to Team CCF from the Philadelphia Marathon/Half Marathon/8K for their November race!
Volunteers Needed
Cheer squad volunteer
Cheer Squad Volunteers encourage, support and give a vital boost to runners and walkers in races.

Key Responsibilities:

  • Make as much noise as possible in support of Team CCF!
  • Bring your shout outs, signs, noisemakers and lawn chairs to encourage Team CCF!
  • Create an exciting environment for everyone!
  • Help spread awareness.
Email meredith.mcguffage@cholangiocarcinoma.org if you are interested in this position.
Patient Mentors
Our CholangioConnect Mentoring Program is growing and to keep up with all the requests for mentorship we need more Patient Mentors for newly diagnosed patients. In order to qualify as a Patient Mentor you MUST have been personally diagnosed with cholangiocarcinoma. 

For more information about the CholangioConnect Mentoring Program please visit the link below.

Coming soon - CCF Online Store
CCF Online Store is coming!
CCF Tshirts, coffee mugs, beanies, bumper stickers, blankets and more are coming soon for purchase. Look for future details to be announced on our Facebook page.
Cholangiocarcinoma Foundation | (888) 936-6731 | info@cholangiocarcinoma.org | cholangiocarcinoma.org