Volunteer Newsletter at a Glance:
  • Coming soon - the new CCF Online Store
  • Volunteer of the Month
  • You did it!
  • Volunteers in Action
  • Volunteers Needed
Coming soon - the new CCF Online Store
Check out the new Cholangiocarcinoma Foundation Gear!

We have winter beanies, sherpa blankets, water bottles, bumper stickers and more! We will be celebrating the grand opening during Annual Conference 2019.
Volunteer of the Month
Each month we will recognize those who contributions inspire us and who demonstrate excellence in their service to others. This award was created to thank those outstanding individuals and to bring to light the immense efforts, time and resources that are generously given to the Foundation.
Lauren Rosati
Lauren Rosati has volunteered with the Foundation since 2014 and has since decided to pursue a career as an MD to seek to follow her passion of helping the patient. In her second year of medical school, with an extremely busy study schedule, she continues to find time to volunteer with the Foundation in numerous programs such as fundraising, grant writing, the Nursing Advisory Board and the CARE Team, just to mention a few.

It was during her senior year of undergraduate work at Clemson that Lauren’s stepdad received his diagnosis of cholangiocarcinoma. She became his caregiver, and helped him navigate the clinical trial process. With complications in her stepdad’s health, he eventually was told he did not qualify for any further clinical trials. Adamantly, following that conversation with clinicians she decided to pursue her career in medicine as a doctor to be a force for change. She did not want other patients to have to hear that same narrative.

Lauren has a unique perspective as a previous caregiver, an experienced research assistant, a grant writer, and a medical student that makes for a volunteer who understands so much and helps to improve every program she is involved with. She has brought many ideas to the Foundation when volunteers were extremely few in number and has brought them to completion. Lauren’s favorite event is the Annual Conference and loves that it is so unique in the fact that it is heavily patient driven. In October she cheered on the Chicago Marathon runners with her fellow CARE Team members who she says "are just like family." Lauren continues to volunteer despite her demanding schedule because she says “I feel my happiest when I do. It’s my savior and my coping mechanism.”

The Foundation would like to take this opportunity to thank Lauren Rosati for every effort, her energy and ideas, as well as her dedication and commitment. It is a privilege to honor her as Volunteer of the Month.
You did it!
Giving Tuesday Success

An immense thanks to all of the volunteers who helped make this day a wonderful success! By setting those alarm clocks and making your donations early we were able to earn additional funds from Facebook with their donation match grant! Thank you!
Candle for a Cure Success


Thank you to all you donated, sent photos and videos, shared the social media content, and participated in the Candle for a Cure campaign! With your generosity it was an amazing achievement!
Volunteers in Action
The 7 th  Annual Jacques Dupont Cholangiocarcinoma Memorial Benefit was an amazing success. There were about 205 guests in attendance – another sold out event (about 38 could not attend due to illness). There were touching and informative speeches by Stacie Lindsey, Dr. Nabeel Bardeesy, Sarah Bennett’s parents, and Chef Bobby Marcotte. There were many generous donations, including over 100 Silent Auction items for attendees to bid on, 12 fabulous Live Auction items, a Gift Card Christmas Tree & Pirate’s Booty Raffle. There was also great food, dancing, a professional photographer and DJ, and a very experienced auctioneer for the Live Auction.
 
Each year humbles me by the outpouring of generosity and support I receive. I am confident that this Annual Benefit will continue to grow, as it has been sold out in advance for the past three years. The total amount raised, including in-kind donations was $32,103. We are already starting to plan for the 8 th Annual Jacques Dupont Memorial Benefit. The date is set for Friday, November 22, 2019 and the venue and entertainment are already booked. Many businesses have already committed to donating again next. As always, all proceeds will go to the Cholangiocarcinoma Foundation, as I totally believe that we are making a difference and I am committed to this cause and also to the Foundation.     ~ by Barbara Dupont, Treasurer of the CCF Board of Directors
 
7th Annual Jacques Dupont Memorial Benefit Committee Members
Silent auction tables
Memory Tree at the benefit.
The live auction happening during the benefit.
Silent auction tree ready for the sale.
Bidders at the live auction.
Volunteers Needed
Social Media Influencers
Social Media Influencers work to recognize and support people hosting social media fundraisers, spread awareness of the Foundation’s mission, and research and develop social media campaigns. For more information about becoming a Social Media Influencer please visit the link below:

Patient Mentors
Our CholangioConnect Mentoring Program is growing and to keep up with all the requests for mentorship we need more Patient Mentors for newly diagnosed patients. In order to qualify as a Patient Mentor you MUST have been personally diagnosed with cholangiocarcinoma. 

For more information about the CholangioConnect Mentoring Program please visit the link below.


Cholangiocarcinoma Foundation | (888) 936-6731 | info@cholangiocarcinoma.org | cholangiocarcinoma.org