Spring 2022
Welcome to Our First Newsletter!
What is CDLRN?

The Canadian Dementia Learning and Resource Network (CDLRN) is a vibrant collaborative that supports and amplifies the successes of projects across Canada that are funded under the Dementia Community Investment (DCI).

CDLRN supports the DCI projects’ efforts to develop, improve and spread community-based initiatives that aim to improve the wellbeing of people living with dementia and family and friend care partners.

CDLRN is supported by a staff and research team at the Schlegel-UW Research Institute for Aging (RIA) and is guided by a Community Advisory Committee. Funding for CDLRN and the community-based DCI projects is provided by the Public Health Agency of Canada (PHAC).
News and Events
Faces of Dementia Campaign: Virtual Launch Event
The Empowering Dementia-Friendly Communities Hamilton, Haldimand project invites you to a FREE virtual campaign kick-off event.

Thursday, May 12 • 12:00 PM—1:00 PM EDT

Faces of Dementia is an awareness campaign to highlight stories of people living with dementia. Through compelling videos, beautiful posters and imagery, Faces of Dementia has been crafted around the stories of people living with dementia and their individual messages that they are so much MORE than their diagnosis.

The event will feature:
  • Campaign film screening
  • Unveiling of the “I Am More” campaign
  • Panel discussion about the campaign creation, including participants, artists and filmmakers
  • An “inside scoop” on the making of the campaign
Dementia Dialogue Podcast: New Francophone Episodes
Dementia Dialogue is a podcast that provides people with lived experience a way to share their stories with each other and the broader community. Listeners who are living with dementia, care partners, and others gain insight and strengthen their adaptive skills.

The podcast features people living with dementia, care/life partners, researchers, authors, advocates, health professionals, and others who are contributing to improving the lives of people with dementia.

There are currently four seasons with over 40 English episodes to enjoy!
Project Spotlight: Community-led Advance Care Planning Programs for People Living with Dementia and Family Caregivers
The Community-led Advance Care Planning for People Living with Dementia and Family Caregivers project was a two-year initiative (2020-2021) with the aim to promote the engagement of people at risk of dementia, people living with early stages of dementia, and their family and friends in Advance Care Planning (ACP).

In this video, Kathy Sheng, Project Manager, reflects on the project’s goals and key learnings, shares common misconceptions about Advance Care Planning, and offers advice for other organizations looking to support individuals with Advance Care Planning. 

The project team created a practical resource to help you engage family and friend caregivers in Advance Care Planning. This tool includes questions that can be used to help start a conversation with individuals about Advanced Care Planning to understand where they are in the process and how you can provide support.
Featured Resource
Host a Community Conversation: A Tool for Talking About the Dementia-Friendly Initiative in Your Community
The New Brunswick Dementia Friendly Initiative project, led by the Collaborative for Healthy Aging and Care, has created this conversation tool to guide communities who are interested in hosting a conversation on dementia inclusivity. The tool includes questions for getting started and tips and strategies for hosting a successful community conversation.
We encourage you to visit the CDLRN website to explore many other resources on various topics from all the DCI projects.
Voices of Dementia
In this section, we highlight important work, stories, and/or contributions by people living with dementia. This issue, we are pleased to share a touching poem written by Rose Ong, an advocate living with dementia and a member of our CDLRN Community Advisory Committee. Thank you, Rose, for sharing your beautiful writing with us.
I’m Looking for Rose
By Rose Ong (April 2022)

I’m looking for Rose; have you seen her?
She just doesn’t look like what she used to
But this is odd, because I once knew her well
Or at least I thought I did.
Perhaps the mystery of time has taken hold
And she is but a wisp of a breeze that affected people
Once upon a time; once upon a time.
 
I’m looking for Rose; have you seen her?
Someone told me to look in a mirror;
But this is odd, because I see an old woman,
Who appears to be fading,
Into the mystery of time, as one who dreams
A wisp of a breeze, barely heard or seen by people, now
Once upon a time; once upon a time.
 
I’m looking for Rose; have you seen her?
A birdy told me to look around and listen;
But this is odd, because all I hear are whispers,
Of a truth that used to be,
A mystery of time, that age favors the young
And casts aside the broken, the elder, the wisp
Once upon a time; once upon a time.
 
I’m looking for Rose; and I found her!
Her mind is affected by aphasia, dementia and loss
But this is odd, because I don’t want to waste a moment,
Worrying about what I’ve lost,
The mystery of time has taught me to embrace
My strengths, my hopes and essence – the wisp!
For today is all I have and all I need for tomorrow.
 
Once upon a time, I was looking for my wisp,
That breeze of hope; that essence of me; my wisp.
What I found were like-minded people who share
The Hope of a better future.
My Wisp shows me time may have given me dementia,
But dementia will never have me,
It will never own me.
 
Today, I’m flying high, above the doubts, the fears
Above the foggy brain and I almost feel “Normal”,
As normal as I get these days.
But when the fog returns, I no longer get anxious.
I KNOW that the light is still at the end of the tunnel,
And though I may not be at my best today, I know
My wisp will return.

© Rose Ong, 2022
Shared with permission from Rose Ong.
Stay Connected
To learn more about CDLRN, including projects, resources, news and events, visit our website: https://cdlrn.the-ria.ca
We'd love your feedback! Let us know what you think of this e-newsletter and what you'd like to hear more about in upcoming editions of CDLRN Spotlight: cdlrn@the-ria.ca

CDLRN is hosted by the Schlegel-UW Research Institute for Aging (RIA). Production of this project has been made possible through a financial contribution from the Public Health Agency of Canada. The views expressed herein do not necessarily represent the views of the Public Health Agency of Canada.