| CHARGE Accounts | June 2026 | | Welcome to The CHARGE Syndrome Foundation's newsletter! Each month, we'll detail the latest Foundation news and events, with links to our website to learn more. | | Announcement of the 17th International CHARGE Syndrome Conference Theme | |
Thank you to everyone who submitted a theme idea for the 17th International CHARGE Syndrome Conference, coming to the Hilton Anatole in Dallas, TX, July 22-25, 2027. We are pleased to announce the winning theme, “Don't Mess with CHARGE,” submitted by both Nancy Hartshorne and Sophia Chandy.
Click below to watch a short video with members of our community introducing the theme, and a message from Nancy Hartshorne, a 16-time Conference attendee, about what Conference means to her.
| | Help Make Conference a Success! | |
Conference is a little over a year away, but it's never too early to start planning! There are so many opportunities to volunteer for Conference, including joining the Pre-Conference Workgroup, which will begin meeting virtually in Fall 2026.
You can also help by submitting your story in the form of a short video, or a few sentences along with a photo, telling us what Conference means to you!
| | Summer Fun - Warm Weather Activities | |
As summer gets into full swing, many families are looking for ways to keep their children active, engaged, and having fun. We asked community members about their favorite summer time activities and products.
Click below to read the article.
| | Ask the Expert: The Ways You Can Play! A Review of Recreational Equipment and Programming | |
Join us June 17, 2026 at 7:00 PM for an Ask the Expert Webinar entitled “The Ways You Can Play! A Review of Recreational Equipment and Programming,” presented by Emily Weber, PT, Lauren Kling, PT, Maebh Barry-Reardon, APE, and Matt LaCortiglia, APE, from Perkins School for the Blind in Massachusetts
Click below to read the full description and register.
| | 2026 Recipients of the Crocker Barker CHARGE Sibling Scholarships | |
Congratulations to our 2026 Crocker Barker CHARGE Sibling Scholarship recipients: Addison Gaucher, Alaina Roth, Vincent Kozuch, Kylie Steinhauser, Mary Gruber, Sarah Lent, and Christian Patrick. We commend your dedication to your education and are looking forward to seeing all you accomplish as you continue your academic journeys!
A special thank you to our Scholarship Committee, made up of Family Liaisons, staff, and individuals with CHARGE syndrome, for their time and dedication spent reviewing submissions: Scott Lynn, Rafael Garrigos, Matthew Jones, Katie Daigle, Kate Ragona, Takrima Sadikot, Brandy Johnson, Jodie Beavers, and Becky Read. The Crocker Barker CHARGE Sibling Scholarship applications were reviewed by this committee without identifying information to ensure an unbiased evaluation of all applications.
Click below to read the article.
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The CHARGE Syndrome Foundation is seeking family volunteers to represent the following states.
The following states currently need Family Liaisons:
- Delaware
- Hawaii
- Indiana
- Louisiana
- Maryland/DC Area
- Minnesota
- Montana
- New Hampshire
- New Mexico
- North Dakota
- Rhode Island
- Tennessee
- West Virginia
- Wyoming
Click below to learn more about the requirements and responsibilities of our Family Liaisons.
If you are interested in becoming a Family Liaison for one of these states, please contact our Outreach and Engagement Manager, Lourdes Quintana Baez.
| | Check Out Our Hot New Designs! | |
Start your summer in style with these new designs from our CHARGE Syndrome Awareness Store.
Spread awareness about CHARGE syndrome and the Foundation everywhere you go.
Awareness items make great gifts for family, friends, teachers, healthcare providers, and caregivers!
The best part is that proceeds from your purchase support the Foundation and help us create a better world for people with CHARGE syndrome! Click below to shop our Awareness Store.
| | Adults with CHARGE Corner – Meet David | |
My name is David Carlile, and I am an adult living with CHARGE syndrome. Growing up, much of my experience involved learning how to navigate a world that didn’t always fully understand or accommodate the complexity of CHARGE. Some aspects of my condition are visible, while others are not, and that combination has shaped how I experience relationships, communication, work, and identity.
Click below to read David's story.
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