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CLL SOCIETY:

THIS WEEK


June 7, 2022

WHAT'S NEW IN CLL/SLL

ASH 2021: Dr. Jennifer Woyach on a Clinical Trial in Progress with Combination Ibrutinib, Venetoclax, and Obinutuzumab

Clinical trials that compare the efficacy of different treatments are key for determining standards of care. There is a new clinical trial that is currently enrolling patients with untreated CLL or SLL in order to compare the efficacy of ibrutinib and obinutuzumab against the triple combination of ibrutinib plus venetoclax and obinutuzumab. Watch our interview with Dr. Jennifer Woyach to learn more. 

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ADVOCACY

Take Action Now: Tell Congress to Consider the Immunocompromised When Making COVID-19 Decisions

With the emergence of each new dominant variant and subvariant, the need for our government officials to have a long-term strategy in mind when it comes to anticipating the country’s ongoing needs related to COVID-19 preventative therapies, vaccinations, testing, and life-saving treatments has become increasingly evident. Please consider sending a letter to your elected members of Congress to inform them about the importance of keeping those who are immunocompromised in mind when making decisions related to ongoing COVID-19 management. 

Send a Letter
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Dr. Brian Koffman at the Congressional Personalized Medicine Caucus Briefing on Cell and Gene Therapy

Cell and Gene Therapy is an important part of the movement toward personalized medicine. Our own Dr. Koffman recently contributed to educating congress about this important issue. 

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UPCOMING EVENTS

The Evolving Role of BTKi’s in CLL 

Tuesday, June 28th at 10 AM PT / 1 PM ET

The targeted therapy Bruton tyrosine kinase inhibitors (BTKi’s) have come a long way since revolutionizing CLL treatment with the arrival of ibrutinib. Join CLL Society and Dr. Matthew Davids from Dana Farber Cancer Institute to take a deep dive into different BTKi’s, how they work, how they compare to each other and other treatment options, potential side effects, and the future role of these therapies.

Register Now

Celebrating Long Lives 5K Walk/Run 

Saturday, July 23rd

Join us in supporting and raising awareness of those who have been touched by a chronic lymphocytic leukemia/small lymphocytic lymphoma (CLL/SLL) diagnosis. By participating as a fundraiser for the mission of CLL Society, you can provide CLL/SLL patients and caregivers with the support and education they need to conquer their diagnosis

Register Now

EDUCATION ON-DEMAND

Is a Clinical Trial Right for You? 

If you missed the recent clinical trials webinar with Dr. Adrian Wiestner, CLL research nurse Kaitlin Kennard, and fellow CLL patient advocate Christina Rodriguez Fuller, you can catch the replay here!

Watch Now

Why Do These Matter in CLL: Long-term Data, Side-Effect Management, and Staying Healthy?

When you first receive a diagnosis of CLL it can be overwhelming to try and understand treatment options, associated side effects, and potential complications. Dr. Jennifer Woyach, a noted hematologist-oncologist, along with patient advocate Therese Conlin, discuss current and emerging therapies, strategies to manage side-effects, and patient-caregiver health maintenance. The recorded educational event is available to watch now. 

Watch Now

LIVING WITH CLL

Jillian York on CLL Society Expert AccessTM Program


Whether you’ve just received a CLL diagnosis or are thinking about treatment options, it can be hard to navigate all the available information. Fellow CLL patient Jillian York knows this feeling well and found that getting connected to a CLL expert physician through CLL Society’s Expert AccessTM Program gave her the reassurance she was looking for. Listen to Jillian’s story and consider if participation in Expert AccessTM is right for you. 


Watch Jillian's Video     Learn About Expert AccessTM

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SPECIAL FEATURE: Test Before TreatTM

Getting the right test done before starting treatment or any new therapy is imperative in CLL/SLL, as it is a heterogeneous disease that develops differently in everyone. Receiving the appropriate testing will aid in the development of a unique treatment plan that is right for you. To help you learn what tests must be performed and how to interpret them, CLL Society has developed a collection of resources that everyone with CLL/SLL should become familiar with. 


Learn More

Support CLL Society


When you donate to CLL Society you make credible education, meaningful support, and CLL specific research accessible to people everywhere impacted by chronic lymphocytic leukemia/small lymphocytic lymphoma.


You can also support CLL Society by shopping on AmazonSmile and selecting us as your preferred charity. A percentage of your purchase will then be donated to CLL Society without costing you anything.


CLL Society is invested in your long life. Please invest in the long life of the CLL Society by supporting our work.

Donate Today
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Looking to Join a Support Group?

CLL Society Support Groups are located around the US and Canada and focus exclusively on the needs of people living with or caring for someone with chronic lymphocytic leukemia (CLL). The groups provide mutual support, learning opportunities, patient-friendly and physician-reviewed information, and the opportunity to discuss anxieties and concerns with others.


Please note, all meetings take place virtually since the onset of the COVID-19 pandemic.


Join a CLL Society Support Group

CLL Society would like to thank Regeneron, Pharmayclics, and Janssen for supporting our ongoing efforts to bring CLL patients the latest information on COVID-19.

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CLL Society

www.cllsociety.org

support@cllsociety.org

1454 Melrose Ave., Ste 1-247

Chula Vista, CA 91911

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