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It's “Giving Tuesday”!
Please remember the CLL Society!
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Dear Friends and Supporters of the CLL Society,
New this week!
CLL changes the immune pathways for its own benefit and to our detriment. However, that does suggest that immune therapies targeting those changes may be helpful. For more on this technical subject from one of Dr. Koffman’s top ten CLL abstracts from ASCO 2019,
read and watch here
.
Today is Giving Tuesday
Please consider a gift of cash, art or a vehicle by making a
direct donation
.
Have you started your holiday shopping?
Don’t forget you can support CLL Society at no cost to you! How? Simply type
smile.amazon.com
into your browser and select CLL Society as your charity. Shop like you normally do, and Amazon will automatically donate a portion of the purchase price to CLL Society.
These small amounts add up, and we are so grateful for every dollar, which will help us provide important education and services to the CLL patient community.
The 1st 2020 post ASH Patient Educational Forum at City Of Hope on Jan. 11
We are excited to be returning to City of Hope on the morning of January 11 for our
5th Annual Post ASH Patient and Caregiver Education Forum
featuring the latest news from ASH presented by, among others CLL superstars, Drs. Rosen and Danilov. Final details on this up to the minute patient conference to follow, but you
register here
.
Test Before Treat™
"More Patients Spill the Beans on their Test Before Treat™ Experiences"
:
Bruce’s 2nd opinion with a CLL expert enabled him to enjoy 15 years of Watch & Wait as opposed to the first recommended chemotherapy. Heather’s story reveals the twists and turns of trying to coordinate your care when your local hem/onc and your expert are not in close communication about what testing should be done. Michelle gives us 3 important lessons on how to manage CLL. Gary’s lack of testing will have him forever questioning his first doctor’s treatment recommendation and its relationship to his TP53 mutation.
Read their stories
. Download the Test Before Treat™
one-pager
. Pick up a Test Before Treat Bracelet at one of our
12 Patient Educational Forums
. And send in your stories!
[email protected]
.
Smart Patients Get Smart Care™
.
Watch our latest CLL Society Webinar Archive
If you missed the CLL Society Webinar, “Veterans with CLL: How to Get the Benefits and Care You Deserve,” you can find the webinar recording and presentation slides
linked here
for this important topic.
Patients and Caregivers Needed for Surveys
Pillar Patient Advocates
has a paid ($150) opportunity for 24 patients of varying stages of CLL, who have been diagnosed within the past three years.
Find out more here
.
Focus Pointe Global
is currently recruiting CLL patients for an upcoming medical conditions study. Compensation potential of $1000+.
Find out more here
.
Our CLL Experts Will See You Online!
Would you like a second look at your CLL? A generous grant funds our Expert Access Program, allowing you to see a world-renowned CLL physician- at no cost- for a second opinion, using our
easy online platform
. This program is open to all U.S. patients with a CLL diagnosis, and you are welcome to apply here. If you have used the program before, you may reapply if you need new clinical advice.
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New Support Groups Forming
There has been interest in forming CLL-specific support groups in new locations! Please click on a link to take our short interest survey if you are interested in attending a support group in one of the following cities:
FundFinder
Pan Foundation has opened its co-payment assistance program for CLL. To view more information or manage your account,
log in to FundFinder.
New LLS Patient Financial Assistance Program
Now open! The Leukemia & Lymphoma Society has a new Patient Financial Assistance program for Blood Cancer patients in active treatment.
Learn more about this new assistance program.
Do you shop at Amazon?
Please use
smile.amazon.com
for your shopping and a percentage of your purchases today and going forward will be donated to the CLL Society when you select us as your preferred charity. It costs you nothing and helps us.
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CLL Society Support Group Meetings Coming Up!
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Special announcement
:
the Portland, Central Florida, West LA, Washington DC-area, Milwaukee, Denver, Seattle-Olympic Peninsula, and Nashville CLL Support Groups will not be meeting in the month of December.
Visit our website
for the most up-to-date information on all CLL Society support group meetings.
Lymphoma Research Foundation Meetings
Tuesday, December 3, 2019 from 6:00 PM – 8:30 PM in Phoenix, AZ
The Lymphoma Research Foundation invites you to attend a FREE program:
Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options
at the Sheraton Grand at Wild Horse Pass, Phoenix, AZ, featuring Allison Rosenthal, DO from Mayo Clinic.
Find out more information and register here
.
The Leukemia & Lymphoma Society Meetings
Monday, December 9, 2019 from 6:00 PM to 8:30 PM in Fort Wayne, IN
LLS invites you to attend this FREE Patient Education Program:
Living Well with CLL: diagnosis, treatment and support
held at Eddie Merlot's, Fort Wayne, IN, featuring Dr. Robert F. Manges, MD, from Parkview Health, and Becky Kreps, LCSW, OSW-C, from Cancer Services of Northeast Indiana. Dinner will be provided to registered attendees. This event is free but registration is required.
Find out more information and register here
.
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The CLL Society Inc. is a patient–centric, physician–curated nonprofit organization focused on patient education, support and research. Dedicated to addressing the unmet needs of the CLL and related blood cancer communities, we explain the rapidly changing therapeutic landscape and the importance of clinical trials, support and build patient networks, engage in research and educate providers and patients.
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and the many ways you can help.
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