CONNECTING THE CANADIAN NET COMMUNITY
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- Vice President's Message
- Join Team Zebra Toronto
- Daniels Constellation Fund for NET Research
- Canadian NET Medical & Scientific Meeting
- World NET Cancer Day
- 2019 French NET Patient Conference
- Online Private NET Patient Support Groups
- Upcoming NET Support Group Meetings
- NET Cancer Information Brochure
- 2019 Maureen Coleman Award Nominations
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Dear all,
About a week ago, Jackie Herman, our president, asked if I would be willing to write a few paragraphs for the fall newsletter. I thought I would reflect about my involvement with CNETS Canada over the past fifteen years or so and share some of my feelings.
I have had the pleasure of being involved with CNETS Canada since the mid 2000’s, first as a provider when I was in charge of the nuclear medicine program at the London Health Sciences Center in London, Ontario and for the past 12 years as a member of our society. Navigating the complex arcane of the Canadian Health Care systems is an enormous challenge for the health care providers and foremost for the patients. Together, we have fought many battles with the provincial and federal governments to show and demonstrate that our community and patients have not been served appropriately and that they have not received from their health authorities the care that they need and they deserve. The most gratifying part of this journey has been the privilege to work directly with our patient community and to feel that you have made me a better doctor.
While we still have a long road ahead of us to find “the cure” for neuroendocrine tumours our efforts were recently rewarded by the approval of 177-LU dotatate by Health Canada. Finally, patients will now have access to a specific therapy to treat their disease. During the upcoming exciting meeting of our Scientific & Medical Advisory Board and our 2
nd
annual Canadian NET Medical & Scientific Meeting next month in Toronto, we will challenge the NETs Health Care Professionals from across Canada to help securing the appropriate federal funding for this treatment. We will also ask our medical and scientific community to help us understand the current and upcoming NETs therapies and the latest medical and scientific developments.
I wish you all a very enjoyable end of the summer and I am looking forward to sharing with you the information that we will be able to gather during the upcoming fall meetings.
Dr. Jean-Luc Urbain
CNETS Canada - Vice President
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Scotiabank Toronto Waterfront Marathon
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Run or walk with NET Zebras!
Please support our last major fundraising event for 2019 to raise much needed funds to support NET cancer research. CNETS Canada needs your commitment to be able to continue funding Canadian based NET cancer research projects. Our amazing Canadian researchers and clinicians who are dedicated to the NET patient population have many great ideas and projects in the pipeline and we want to see them come to fruition. Help us support them and Canadian NET research.
Join Team Zebra Toronto
Team Zebra Toronto is once again participating in the Scotiabank Toronto Waterfront Marathon (STWM) on October 20
th
, 2019. Our Team is made up of NET patients, caregivers and their friends and families. We will have participants walking and running in the 5k and half-marathon events and we need more participation! Please join our team of passionate supporters who will be sporting zebra gear and help us raise much needed funds!
1 - Contact us at
[email protected]
to our Charity PIN Code for discounted registration fees.
2 - Follow the step-by-step instructions on how to register for the event, set up a fundraising page and join Team Zebra Toronto.
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DANIELS CONSTELLATION FUND FOR NEUROENDOCRINE CANCER RESEARCH
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In 2018, Bailey and Jonathan Daniels created the KAYAK-BIKE-HIKE TRIATHLON, to help fund Neuroendocrine Cancer Research in Canada.
The 2
nd
Annual KBH Triathlon for Neuroendocrine Cancer Research took place on Saturday, August 10, 2019, raising an incredible
$42,400,
via 178 separate donations to the DANIELS CONSTELLATION FUND FOR NEUROENDOCRINE RESEARCH.
The KBH Triathlon combines three outdoor activities with the challenge of doing them in succession in one day. Participants included
10 kayakers, 6 cyclists, and 12 hikers. 4 participants completed the entire event.
KAYAKING - 8 km
CYCLING - 53 km
HIKING - 10 km
NET cancer has touched Bailey and Jonathan Daniels personally – Bailey is a 17 year pancreatic NET patient (pNET). Bailey was recently featured in a Zebra Chat and shared details of her long journey with NET cancer and
how she has given back to the NET cancer community over the years.
Check out
Bailey's Zebra Chat
.
CNETS Canada is tremendously grateful that Bailey and Jonathan Daniels have chosen to support Neuroendocrine Cancer Research in Canada, through CNETS Canada's NET Cancer Research Fund.
Huge THANK YOU to Bailey and Jonathan, for helping to make a difference in the lives of NET cancer patients in Canada!
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2
nd
ANNUAL CANADIAN
NET MEDICAL & SCIENTIFIC MEETING
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CNETS Canada is delighted to host the
2
nd
Annual Canadian NETs Medical & Scientific Meeting
taking place on
Saturday October 26, 2019.
This meeting is intended for medical professionals in Canada who are treating NET cancer patients.
The agenda will include discussions, case presentations and lectures on the most important topics impacting NET treatment and care in Canada. We will communicate further as soon as registration for the event is open. Space will be limited and therefore registration will be on a first come, first served basis.
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O
n
Sunday, November 10
th
, 2019
– World NET Cancer Day, CNETS Canada will be raising awareness about NETs throughout Canada.
Let's Talk About NETs
We’re taking the grass roots approach to this campaign and need your help to get the word out there!
If you would like to promote NET awareness in your local community, i.e coffee shop, school, library, hospital, bank, or any local business - CNETS Canada can send you awareness materials - Let's Talk About NETs branded coffee cups, NETs Brochures, Awareness Postcards and INCA NET Cancer Day Pins.
Thanks so much to the volunteers who have come forward already.
#LetsTalkAboutNETs
We will also update the community on other plans we have for NET cancer awareness in Canada in the weeks leading up November 10, 2019.
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2019 FRENCH NET PATIENT CONFERENCE
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Journée d’Éducation Québec 2019
2019, conférences et présentations lors de la journée d’éducation à Québec pour comprendre les tumeurs neuroendocrines et leurs traitements.
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ONLINE PRIVATE NET SUPPORT GROUPS
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CNETS Canada has three private, online support groups to help connect and support NET patients and caregivers from across Canada.
With a combined membership of over 800 members, these groups are a place to share personal experiences, doctor recommendations, treatments, clinical trials and information to aid in navigating the Canadian healthcare system. Kindness, support and love to all.
In order to join one of our groups, you need to confirm that you are a NET cancer patient, or a caregiver of a NET cancer patient.
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UPCOMING NET SUPPORT GROUP MEETINGS
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September 24, 2019 @ 6:30 pm – 8:30 pm
Maple Soft Centre - Ottawa Regional Cancer Foundation -1500 Alta Vista Drive
September 26, 2019 @ 7:00 pm – 8:30 pm
Yakimovich Wellness Centre - 1454 Hillside Ave
September 28, 2019 @ 10:00 am – 12:00 pm
The Wellwood Home, Juravinski House - 501 Sanatorium Rd
September 29, 2019 @ 10:30 am – 12:30 pm
Wellspring Westerkirk House - 2075 Bayview Ave
October 3, 2019 @ 6:30 pm – 8:00 pm
Hope & Cope Wellness Centre - 4635 chemin de la Cote-St-Catherine
For more information on CNETS Canada's NET Patient and Caregiver Support Group Meetings check our Calendar of Events.
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CNETS CANADA
NET INFORMATION BROCHURE
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2019 MAUREEN COLEMAN AWARD
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One way that CNETS Canada honours those individuals who have made an outstanding commitment and contribution to the NET cancer patient community is through our annual Maureen Coleman Award.
CNETS Canada is pleased to announce the call for the 2019 Maureen Coleman Award.
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STAY CONNECTED TO CNETS CANADA
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