September 22, 2014
 
 
Welcome to the 1st edition of CP-NET Today! This newsletter will help you keep up-to-date on exciting research developments in the area of Cerebral Palsy (CP) research funded by the Ontario Brain Institute (OBI). Please feel free to share this newsletter with family, friends and colleagues. They can subscribe to the CP-NET Today e-Newsletter for free by registering here. Don't forget to check the cp-net.org website for more great resources on CP.
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Research Update
We are excited to announce that OBI has renewed the CP-NET research contract until March 2018! Funding for the 2nd phase of this project will allow us to continue to improve our understanding of CP and accelerate the development of new treatments and other developments for the field. In this phase, we have expanded the scope of our research in the following ways:
  • We will recruit children and young people from the full spectrum of individuals with CP
  • In addition to the 5 major research themes from Phase 1 (Developmental Outcomes, Genetics, Constraint Therapy, Neuroimaging findings and Technological Innovations), we have also added projects investigating neonates, adolescents and young adults, as well as children's math skills.
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CP-NET News!
Congratulations to CP-NET Executive Committee Member and researcher Dr. Peter Rosenbaum on receiving the Lifetime Achievement Award at the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) on September 11, 2014! This award acknowledges Peter's "creative contributions of outstanding significance to the field of medicine and for the benefit of patients with cerebral palsy and other childhood-onset disabilities." Dr. Darcy Fehlings, Scientific Director/Lead of CP-NET and First Vice-President of the 68th Annual Meeting of the AACPDM, presented the award.
  
                        
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World CP-Day
In celebration of World Cerebral Palsy Day (World CP Day), CP-NET is hosting "Creating Possibilities for CP: CP-NET Science & Family Day" on October 1/14 at Holland Bloorview Kids Rehabilitation Hospital! The day will consist of reports about the latest CP-NET research and technology advancements and will also have an open house of community organizations to allow families to connect, network, and learn more about resources in the community! We will also celebrate World CP Day with lots of other surprises! For more details and information, please see http://cpnet.canchild.ca/en/CP-Net-Science-Family.asp or register at https://www.regonline.com/builder/site/Default.aspx?EventID=1610970. Register by September 24th.
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Webinar Series
In October, CP-NET will be launching a monthly webinar series dedicated to disseminating CP information of interest to families of children with CP and generating discussion. Topics have been chosen with input from families and will include: causes of CP, complementary and alternative therapies, social, emotional and cognitive issues, and use of social media for families of children with a disability. If you would like to propose a webinar topic, please email: [email protected]. Please check the CP-NET parent corner for more information on webinars: cp-net.org.
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Want to Get Involved?...
Research studies now recruiting:
Are you an adolescent or young adult with cerebral palsy (CP) between the ages of 16-30? If yes, we need you! Most brain research for people with CP focuses on early brain development. More research is needed to understand how the brain changes through the teenage years and into adulthood. The MyStory Project is recruiting individuals between 16-30 years of age to understand physical health (fatigue and pain), mental health (anxiety and depression), chronic stress and overall well-being. To find out more about this study click here.
 
Has your child been diagnosed with Cerebral Palsy (CP)? Consider participating in the CP-NET Clinical Database. We're looking for children aged 2-7 yrs old who reside in Toronto, York, Peel, Halton, Oshawa, Durham, Hamilton, St. Catherine's, Kingston, Frontenac, London, Sudbury, and Ottawa. Participants will be asked to attend two research sessions, one when they are between the ages of 2-6 yrs old and again when they turn 7 yrs old. During these sessions, parents will be asked to complete an interview and some questionnaires, the child will have a visit with a study doctor, saliva samples will be collected, and medical records will be requested for review. Each session will take approximately 3 hours and certain components may be completed online or on the phone. Our goal is to learn about children with CP in different parts of Ontario including information on what causes CP, as well as the impact on participation and quality of life. If you are interested in participating in this study or have additional questions, please contact Karizma Mawjee by telephone (416-425-6220 ext 6482) or by email ([email protected]) with your interest and she will get back to you.
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