An Organizational Update from CSD Board President Holly Priebe

Dear CSD Members -

I'm pleased to share an important organizational update: Beginning in 2026, the Coalition of Skin Diseases will partner with Woodberry Associates, a respected association management firm, to lead and support the organization. This transition reflects the CSD’s continued growth and our commitment to building a strong, sustainable future for the skin disease community.

As part of this change, Natalie Mamerow will transition to being an employee of Woodberry Associates while continuing her work on behalf of the CSD. Natalie will remain deeply engaged with the CSD’s mission, programs, and community, ensuring continuity in relationships, advocacy efforts, and member engagement.

We would like to extend our sincere thanks to the CSD Board of Directors, whose leadership, guidance, and thoughtful stewardship over the past several months have been instrumental in managing this transition. Their dedication has helped ensure a smooth, strategic process that keeps the needs of our community front and center.

We are confident that this partnership will strengthen the CSD’s operational capacity while preserving the values, voice, and community-driven focus that define our organization. We appreciate your continued trust and support.

With gratitude,

Holly Priebe

CSD Board President

Your Voice Matters: Serve on the CSD Board of Directors

The Coalition of Skin Diseases is seeking dedicated leaders to serve on our Board of Directors. If you’re passionate about advancing the needs of the skin disease community and helping guide the future of our organization, we’d love to hear from you.

CSD Board members play a vital role in ensuring the strength and integrity of our work through:

• Legal Oversight – Upholding our mission, protecting the CSD’s assets, and maintaining legal and ethical accountability.
• Management Oversight – Ensuring strong organizational leadership, including selecting, supporting, and evaluating the executive director.
• Financial Oversight – Providing responsible financial stewardship, approving the annual budget, and ensuring adequate resources.
• Program Oversight – Ensuring the CSD’s programs effectively advance our mission and strategic goals.

If you’re interested in learning more or would like to be considered, please contact Natalie Mamerow, Director of Community Engagement, at your convenience. We welcome members who are ready to contribute their expertise, energy, and passion to this important work.

CSD Hill Day 2026

Mark your calendar for the upcoming CSD Hill Day from Sunday, May 17, to Tuesday, May 19, 2026! We're excited to head to Washington, D.C., to advocate on behalf of the 84 million Americans with a skin disease. In addition to meeting with legislators to discuss the CSD's legislative and policy priorities, we'll have prominent speakers and advocacy training.

Please see the Hill Day social media toolkit to help spread the word and to share the excitement! Be on the lookout in the coming months for more information on how to apply, and you can read through the CSD's Hill Day 2025 Report here.

CSD Signs Coalition Letter

Last month, the CSD signed onto a coalition letter to Congress in support of the Senior Savings Protection Act (S. 2466/H.R. 6210). Led by the National Council on Aging and signed by over 100 organizations, the letter emphasizes the vital role this program plays in helping millions of older adults and people with disabilities afford Medicare through outreach and enrollment assistance.

As a reminder, please encourage your members to contact their legislators about skin disease community legislative priorities via the CSD Action Alert Platform!

AAD Annual Meeting and CSD Development Day

The CSD is excited to host our annual Development Day in conjunction with the American Academy of Dermatology's Annual Meeting in Denver, CO.

Our full Membership is invited to this event taking place on Saturday, March 28th, from 8:30 am - 12:45 pm. The CSD and the AAD are thrilled to be able to offer two complimentary registrations for each of our Patient Group member organizations.

This event will be a time for our hard working members to be poured into with lots of great content from our keynote speakers and opportunities to connect with colleagues, old and new. The Development Day will include catered breakfast and lunch.

Please feel free to reach out to Natalie Mamerow and/or Liz Demorest at the AAD with any questions.  

2026 SID Annual Meeting CSD Tabletop Exhibit Invitation

The Society for Investigative Dermatology (SID) is excited to invite members of the CSD to join us in Chicago, Illinois, for the 2026 SID Annual Meeting, taking place at the Chicago Hilton from May 13 - 16, 2026!

As a valued partner, they are pleased to offer each Coalition member organization a complimentary tabletop exhibit space along with two (2) complimentary meeting registrations.

Complimentary Tabletop Exhibit

Each Coalition member organization is eligible for:

• One (1) complimentary tabletop exhibit
• Two (2) complimentary SID Annual Meeting registrations

Confirming Your Tabletop Exhibit Space

This year, the request process is a bit different. To reserve your tabletop exhibit space, please complete the online request form here.

Once your tabletop request is received, SID's registration team will follow up directly with a separate link and instructions to register your complimentary attendees.

Tabletop Exhibit Details

• Location: Chicago Hilton (exact location to be confirmed)
• Tabletop includes:
• One (1) six-foot skirted table
• Two (2) chairs
• Set-up times and additional logistics will be shared closer to the meeting date.

Meeting Registration

• Each Coalition organization may register two complimentary attendees
• Registration instructions will be provided by our registration team after your tabletop request is submitted
• All registered attendees will have access to the meeting’s networking events and social programming

Please join CSD member organization, the Derma Care Access Network (DCAN), at their upcoming virtual roundtable.

This roundtable will convene advocates and policy stakeholders to collaboratively explore solutions for coverage barriers and gaps in care for people living with vitiligo and alopecia areata. In this session, our goal is to develop a unified messaging framework and identify advocacy tactics needed to drive change at the Centers for Medicare & Medicaid Services (CMS), state Medicaid agencies, and on Capitol Hill.

• What - Collaborative Virtual Roundtable: Advancing Accurate Classification & Coverage for Vitiligo & Alopecia Areata
• Date - Wednesday, January 21
• Time - 12 - 1:30PM ET
• Register - HERE!

Public Meeting: FDA Rare Disease Day 2026

The FDA will host Rare Disease Day, a virtual public meeting, on Monday, February 23, 2026 from 9AM - 4PM ET in global observance of Rare Disease Week. The theme is: “Moving Forward. Looking Ahead. An Event for Patients.” The goal of this year’s Rare Disease Day is to explore ways to engage and collaborate with patients and their communities to support and accelerate the development of medical products for rare diseases. The FDA wants patients to connect with them and stay involved with their outreach and engagement programs to ensure the patient voice informs medical product development and regulation throughout the FDA. 

Please register for the meeting here!

The Coalition of Skin Diseases gratefully acknowledges the generous support of our

Healthcare Industry Partners.