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BOO! Halloween celebrations are in full swing! Are you a more of a chocolate or sour candy fan (or something else entirely)? Just as our sweet tooths vary, our needs as skin disease advocates and patients are different.
Whether you're a chocolate aficionado or a sour worms lover, the CSD strives to provide you - the skin disease community - with a wide variety of resources. Dip your hand into our goody-bag newsletter and take a bite into one of our many updates:
- Mark your calendars for the CSD 2025 Hill Day from May 18 - 20!
- CSD Exhibits at the American Academy of Family Physician Annual Meeting
- Legislative and Policy Updates
- Upcoming Conferences - CSD Presence and Open Invites
- Patient Group Learning and Engagement Opportunities
- October Skin Awareness
- Skin in the News
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CSD 2025 Hill Day
Mark your calendar for the upcoming CSD Hill Day from May 18 - 20, 2025! We're excited to head to Washington, D.C. to advocate on behalf of the 84 million Americans with a skin disease. In addition to meeting with legislators to discuss the CSD's legislative and policy priorities, we'll have prominent speakers and advocacy training. Please be on the lookout in the coming months for more information on how to apply, and you can read through the CSD's Hill Day 2024 Report here.
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CSD at FMX
Last month marked a significant milestone for the CSD as we exhibited for the first time at the American Academy of Family Physicians' annual conference, FMX.
Executive Director, Kelly Barta, had the privilege of representing our coalition and engaging with many of the over 4,000 dedicated healthcare professionals. This opportunity allowed us to raise vital awareness about skin diseases and the invaluable support our member organizations provide to patients and their families.
We were truly inspired by the enthusiasm and appreciation expressed by physicians and residents, who conveyed a strong need for resources to better assist their skin disease patients, and we are delighted to share that every single one of our CSD QR stickers designed to connect patients with support organizations was eagerly picked up by healthcare providers!
These QR stickers, which affix to the back of HCP medical badges, lead patients directly to our CSD webpage, where they can explore our member organizations and discover essential resources. Together, we are making a meaningful difference!
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Big congratulations to CSD Member, SAF, for the introduction of new ICD-10-CM Codes for Scarring Alopecia, as a result of their great efforts!
The Centers for Disease Control and Prevention (CDC) has officially approved the ICD-10-CM codes for Central Centrifugal Cicatricial Alopecia (CCCA) and Frontal Fibrosing Alopecia (FFA), L66.81 and L66.12, respectively. These new codes will be effective starting October 2024, thanks to the collaborative support and advocacy from patients, dedicated dermatologists, nurses, physician assistants, professional dermatologic societies, and patient-focused dermatology organizations. The CSD is proud to have been a strong supporter of this effort. Please see this message from the Scarring Alopecia Foundation's Executive Director, Jean Pickford, to learn more about this exciting development!
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Legislative and Policy Updates | |
Upcoming Conferences - CSD Presence and Open Invites | |
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Autoimmune Community Summit
The CSD will have a virtual exhibit at the Autoimmune Community Summit on Thursday, October 17 and Friday, October 18, 2024. Hear from physicians, researchers, mental health professionals, policy leaders, patient advocates, and other experts while gaining valuable insights on the most pressing issues impacting the autoimmune community.
- Date: Thursday, October 17 and Friday, October 18, 2024
- Time: 11:00AM - 3:00PM ET
- Location: Virtual
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Register here for free!
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The CSD is looking forward to exhibiting once again at the Pediatric Dermatology Research
Alliance (PeDRA) upcoming annual conference from October 24-26 in Phoenix, Arizona. The
PeDRA Annual Conference is an opportunity to connect and collaborate with dedicated scientists,
trainees, industry partners, patients, and advocates to advance research that improves the lives of children with skin diseases and conditions. PeDRA generously invites our members to join them for this awesome event, which is dedicated to advancing research across all skin diseases and conditions affecting children.
- Date: Thursday, October 24 through Saturday, October 26, 2024
- Location: Phoenix, Arizona
- Register here!
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Fall is a busy conference season for many of the CSD's members. Please take a look at some of the conferences and meetings being held in the coming weeks:
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Patient Group Learning and Other Engagement Opportunities | |
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Would you be willing to share resources to help others in the CSD? Many of our
members have mentioned how beneficial it would be to have a repository of helpful guides they
could glean from to inform their own work and minimize the need to start from scratch, which
would save tons of precious time and elevate our whole community.
If you have templates or examples of organizational policies, fundraising strategies, patient
conference planning, email drip campaigns, and the like, please share them! You can easily
upload those documents here.
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FDA Webinars and Engagement Opportunities | |
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On October 1, 2024, the FDA launched a reorganization effort. The Stakeholder Engagement Staff (within the Office of External Affairs) and the Patient Affairs Staff (formerly within the Office of Clinical Policy and Programs) merged into one larger new team – the Public Engagement Staff within the Office of External Affairs. Through the new Public Engagement Staff, patient advocacy groups and other interested parties can engage with the Office of the Commissioner and other FDA centers and offices on agency priorities. For patient specific inquiries, please contact Patients Ask FDA. For other inquiries, please e-mail PublicEngagement@fda.hhs.gov.
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Additional Patient Resources
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Eczema Awareness Month
October is Eczema Awareness Month! Please visit the the National Eczema Association's website to learn more about eczema, join live events, and "help us celebrate our eczema community, raise awareness, reveal truths, build compassion and reduce stigma."
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1717 N Street NW, Washington DC, 20036
info@coalitionofskindiseases.org
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The Coalition of Skin Diseases gratefully acknowledges the generous support of our
Healthcare Industry Partners.
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