Highlights eNewsletter
January 2016

* CVSA * 
Contact Info

Cyclic Vomiting Syndrome Association
P.O. Box 925
Elkhorn, WI 53121

Phone #: 414-342-7880
Website:   www.cvsaonline.org
Email:  cvsa@cvsaonline.org

Mark Your Calendar!



March 5, 2016 - 

CVS International 

Awareness Day

'United in the Global Fight

Against CVS'! 



June 4, 2016 -

CVSA 10th Annual

'Run for the Bucket' 5K Event

Waukesha, Wisconsin 



June 24-26, 2016 - 
CVSA 12th International 
Adult & Family Conference 
Sheraton Brookfield
Milwaukee, Wisconsin  


Koch Family - Dec 2015 


Thank you for raising 

 $2,080.00 at your Holiday Fair Open House to benefit the CVSA!  So kind and generous of you to open your home to sell holiday products. We are grateful and appreciate the continued support each year. 


Thank you and may you have a blessed 2016!  



CVS International 
Awareness Day! 
March 5, 2016 


United in the Global Fight

Against CVS!  


We would like to encourage all of our members to help us raise awareness for this upcoming day!  You may spread the word by contacting television news stations, radio stations, local newspapers, school districts, doctors offices, hospitals and use social media such as Facebook and Instagram to raise awareness around the world.  Contact Ruth Novak for more information or if you have any questions about how you can help support the day.  


Thank you!  



CVSA Facebook Page has 

Help us to 
Raise Awareness 
around the world 
'LIKE' us today!  
Visit our page to connect with other CVS Sufferers/Warriors
and Caregivers!

Shop Amazon Smile
Today and Support
the CVSA! 
New Year - 2016 

sign-up today and list
CVSA as your charity 
of choice!

Visit:   www.smile.amazon.com 
Here you may list CVSA as your charity of choice.  In return
.5% of all proceeds will be donated back to our organization.  It just takes a minute of your time.  

Share this website with your family 
and friends as it's a wonderful 
way to support the CVSA 
all year long!  



Member Resources


Visit our website to stay connected!  


* CVSA Blog 

* CVSA Facebook Page

* CVSA College Facebook Page

* CVSA Message Board

* Media Links

* 2014 CVSA Conference          Power Point Presentations

* Support Group Conference


* Stories of Hope



Check Out the 
CVSA Membership Page to View our Benefits!


Please contact our office to renew your membership to continue to take advantage of all the benefits CVSA has to offer.  Take a moment to update your address, phone number and email as well.  


Reminder - Donate $500.00 to the CVSA or hold a fundraiser that exceeds $500.00, and your annual membership fee will be waived the following year!



Renewal Letters

If you have received a renewal letter in the mail and would like to renew your membership at this time, please contact our 
Program Director - 
Ruth Novak

You may also visit our website.  This information can be found under the 
'Get Involved' section, and just takes a moment to fill out.  



Thank you for honoring 
your loved ones and 
supporting the 
Cyclic Vomiting Syndrome 


Code 'V'

Our latest issue will be 
arriving soon! 

Next issue - Spring 2016 
* Members Only Benefit * 

Would you like to receive our newsletter?  Sign up today to receive our next issue.  We would love for you to become a member of the CVSA!  


to the January 2016  issue of Highlights!

We have so much planned for this upcoming year - 
Please make sure to mark your calendar for important events, and keep in touch with us throughout the year to receive updates and information on CVS International Awareness Day, the 10th Annual CVSA 5K 'Run for the Bucket' Event, and the 12th International Adult and Family Conference coming up at the end of June.  

Wishing all of you a Happy New Year  from the 
Cyclic Vomiting Syndrome Association!

Board of Directors - Kathleen Adams, 
Jennifer Dhuse,  Ron Novak, Debbie Conklyn, 
Mary Rachael Lovett-Barr, Robin Raskin, 
Anthony & Tara Destribats, Connie Hill, 
Tom & Shelley Kupetis. 

Program Director - Ruth Novak 

Minnesota Auction 
Another Successful Year! 
$3348.00 Raised for CVSA
November 2015

Minnesota had it's 8th Annual Dinner and Silent Auction on November 8, 2015, in Inver Grove Heights, MN. Hosts of the event were Maria Buhl and her son Brent (who has CVS) and Elizabeth Eubank (who has CVS) and her husband, Chris Rustad.  

The evening was well attended and included over 100 items to bid on.   The auction raised over $3300.00!
These individuals have all worked together the past eight years.

Thank you so much for your time and effort to support the CVSA.  Congratulations to all of you!
Shun Emoto
Wins Prestigious Award
"Symbol of Tomorrow"
November 2015 

Shun Emoto (pictured 3rd from the right), won this prestigious award in November for praising young innovators in the public health field.  He is the youngest person to ever receive this award.  Mr. Emoto made a speech at the ceremony about the importance of rare disease research and enlightenment of rare diseases.  

Congratulations to you and your promising future! 

Hope Starts Here 
with Holiday Cheer 
Campaign - $18,000 
November/December 2015

The CVSA is grateful for all of the many donations that came in during the holiday season!  We were able to raise over $18,000.00  through the end of December with matching funds still coming in.  A shout out to all of you who honored a friend or family member who has CVS during the holidays.  T hank you for your generosity!

CVSA Featured On-Line
 in USA Today!
December 18, 2015

Eric Barlow, Senior Publisher at Mediaplanet Publishing, worked on constructing an edition of Digestive Wellness in the USA Today newspaper.  The goal of this campaign was to educate readers in their importance to healthy digestion, along with sharing new ideas including recent breakthroughs as a part of the wellness theme.  The article can only be viewed on-line.  Click below to  read the full article.  Feel free to share with friends  and family!  

Thank you for helping us to raise awareness of CVS!
Santa's Secret Workshop
Fundraiser to Honor 
Julia Benway - December 2015

Carol Kupetis, from Willowbrook, Illinois was able to raise $218.00 in honor of her 15 year-old Granddaugther, Julia Benway, who has had CVS since the age of 4.  

St. Isaacs Jogues Hinsdale  welcomed a number of vendors during the school day on December 9th 
for some Christmas Shopping Fun.  Julia's cousin, Ava Kupetis, attends the school as a First-Grader.   The students and their parents had an opportunity to shop for their families throughout the day.  Carol, owner of Champagne Tastes, made and sold chocolate fudge Christmas trees along with boxes of chocolate covered Oreos for the Santa's Secret Workshop holiday event.  

Thank you Carol for raising awareness in your community, and for supporting the CVSA in honor of Julia!  The $218.00 raised has been added to our 
2015 - Holiday Cheer Campaign.  
Exciting Medical News!
Go Fund Me Project 
for the Adult Guidelines for Diagnosing and Treating CVS 
Goal Achieved - December 2015

The CVSA and the American Neurogastroenterology and Motility Society (ANMS) have partnered to develop Adult Guidelines for diagnosing and treating CVS!   

We are thrilled to announce that after 7 months the CVSA  has raised $22,180.00 to publish these guidelines!  We are planning to donate half of the Hope Starts Here with Holiday Cheer Campaign fund to the Adult Guidelines project as well which brings our total up over $30,000.00. 

Keep an eye out for our Winter 'Code V' Membership Newsletter to read more about this upcoming publication arriving in your mailbox soon!  

On behalf of the Board of Directors and our Program Director, we want to extend our gratitude and say 
Thank You for all of your support in helping us to reach our goal! 

A New Conference Call
Support Group Coming Your Way in January 2016!

Finally, a way to meet people without having to leave your home!   This opportunity is offered by Cricket in North Carolina. She hopes this will give callers a consistent place to join in for hope and support.  Please remember that you can call in from anywhere in the U.S. or Canada .  Please note the time zone!!
Starting in January of 2016, Cricket will be holding a support Group call on the 2nd Monday of each month.  This call will be at 7PM Eastern time, 6PM Central, 
5PM Mountain and 4PM Pacific time. 

The meetings usually last an hour.  Feel free to join in on the call anytime to listen and hang up when needed. 

You will dial the call in number which is:
1-800-977-8002 promptly at the time the call is scheduled .  When prompted you will enter the participant code number:   5429554#.

You will be asked to state your name, and a moment later you will be joined into the call. 

If you have any questions you can email Ruth, at the CVSA Office at: cvsa@cvsaonline.org.  You may also call her at 414-342-7880.

I hope you will take advantage of these calls as it's a wonderful way to meet new people!  

CVSA - 2016   12th 
Family & Adult Conference
'Early Bird' Registration Fees
 June 24-26, 2016

Location:  Sheraton Brookfield 
Milwaukee, Wisconsin
Hotel Rooms:  CVSA Block of Rooms 
$95.00 per Night

Friday, June 24th / 11:00am-Registration
1:00pm Welcome & Introductions
* Please note * - Our Speed Date with the Doctors
session will be held between 2:00pm-5:00pm
5:00pm-8:00pm / Meet & Greet Reception

Saturday, June 25th / 8:00am - 5:30pm 
Registration, Speakers, Stories of Hope,
Reflection, Disability and ER Visits
6:30pm / Dinner and ComedySportz Show 

Sunday, June 26th / 9:00am - 12:00pm 
Concluding Sessions 
$125 Individual/$200 Couple/$225 Family

$200 Individual/$275 Couple/$300 Family

* Early Bird Registration is open now until 
February 29, 2016

Please visit the CVSA Website for more information
on all fees and hotel accommodations.  
If you have any questions you may contact:
Ron Novak at (414) 342-7880